Lymphoma Non Hodgkins

Just been in hospital with server tummy pain, after cat scans, biopsy & pet scan I’ve been told I have Lymphoma Non Hodgkin but it’s not clear which type I have yet so I need another biopsy. Once I get this it will another wait for the results, I’m so anxious what am I to expect next?

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  • Hi Nitrovern, 

    Probably fairly typical experience. It is a two week cycle - infusions on day 1, then two weeks to recover and then start again two weeks later. Very tired the first few days, then energy levels pick up. My immunity levels are low as a result of the chemotherapy so I am having to be very careful with infections - masking up and minimising contact with people. The other problem is that the infusions cause pain in my arms, but the nurses have so far managed this by changing flow rates, using heat pads and swapping arms. A minor side effect of loss of appetite for a few days.

    I have had 3 sets of infusions with 3 more planned.

    It is manageable - take each day as it comes and the end of planned treatment will be reached. 

    Hope you start your treatment soon. 

    Take care. 

    Matt 

  • Wow fantastic answer mate you've managed to answer all the questions I've got with that lol....

    Sounds like you're coping really well, I hope I can do the same.

    Good luck with it all  and thanks