Lymphoma Non Hodgkins

Just been in hospital with server tummy pain, after cat scans, biopsy & pet scan I’ve been told I have Lymphoma Non Hodgkin but it’s not clear which type I have yet so I need another biopsy. Once I get this it will another wait for the results, I’m so anxious what am I to expect next?

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  • Hiya 

    I'm in a very similar situation to you and sounds like we are both at the same point of the journey 

    I found a lump in my neck and was referred 

    First i had the camera up my nose and a ct scan with contrast and mri scan all on same day,next i was given a FNA and then a biopsy taken of a mass behind my nose, then I had a core biopsy of lymph nodes but they was all inconclusive and doctor said I had hodgkins lymphoma but didn't know exactly what kind. Then I had a pet scan and was told it was only in my neck and hadn't spread but still didn't know what kind, I had that on 5th September and last monday I had a excision of my left cervical lymph node.....

    I received my diagnosis today and I have grade 2 hodgkins lymphoma and have been referred....

    I really hope this helps you a bit with what you might expect....

  • Yes it has helped, I saw my doctor yesterday & he told me it’s grade 2 which was a relief but still waiting for my second biopsy but hopefully I will hear very soon fingers crossed, thank you so much 

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