Waiting on breast biopsy results - heads a mess

Hello everyone.

Ive never really posted on anything like this before but I just feel so lost and scared right now I thought Id see if there is anyone else out there feeling the same. 
Im 36, beautiful son and hubby. Couple of weeks ago was doing my fake tan, noticed just the slightest of dips in my left breast (bottom outer corner). I was due on my cycle so left it a few days encase it was something related and when it didnt go I made an appointment with my GP. They couldn't feel anything but made a referral to the breast clinic based on asymmetrical breasts. 
So I head to the clinic, consultant has a feel and agrees on the dip and can feel a lump underneath it. This then leads them to book me in as urgent for the following day but for a biopsy, mammograms and so on. So I have the mammograms done, they take multiple images. Wait again to head into the consultation room with 2 student nurses, the consultant, a Ultrasound tech and a nurse. They start talking about the lump and identify another one but at this point Im a bit numb and not really taking it all in. I have the biopsies done and then the consultant speaks to me, here is where Im upset at myself as I cant remember the exact wording (my head was and is a mess) but something along the lines of “Concerned” or “Suspecting” malignancy. It was all so fast though. I had titanium chips popped in over the two lumps tested then sent back out for another mammogram to confirm their placement and booking me in for an MRI. During the last mammogram I felt so stupid, I was almost literally frozen as every muscle was so tense and I just couldn't stop trembling. The poor technician was trying to get me to relax but I just couldn’t 
I feel so lost, so scared and to be honest completely blindsided and I don't know if Im just being a big baby or if this is a normal reaction to it all. Has anyone experienced something similar and its come back as benign? Im praying it comes back benign but their reaction and way they are speaking has made me feel like they already know it’s cancer. Then I spiral thinking oh god what if its spread already? And the littlest pain anywhere is making me so paranoid.
Im so grateful to my GP and hospital for moving so quickly, the other half just feels terrified. 
Sorry for the long rambly post and thank you for reading, I just feel like Im free falling right now x

Parents
  • Remember you can deal with what you know. Sending strength x

  • Hi Rambleon I'm glad you've had good news from the surgery. That's really good.

    Have a good chat with the oncologist. Chemo is scary. I had my meeting with the oncologist but my benefit with chemo is 15% so definitely worth it after the 59/100 on the oncotyping result and definitely recommend for me. Plus tamoxifen, aromatase inhibitors and likely bisphosphonates. I just wish they'd sent me straight for chemo rather than do oncotyping. The oncologist was suprised the other hospital did that test given my tumour was Grade 3. It's just delayed everything a month or so.  

    However the list of health impacts is really scary.  I just view it as a necessary evil. Xx

  • I'm wondering if I have this now too as since the holiday I've been getting pains on and off. 

    Coming to terms with the scar is a big step forward. Every step forward is important here I feel. 

    I start chemo on 1 October, the day after my 40th birthday.  I just want to get on with treatment now. Xx

  • Thank you lovely. 
    Its weird right now as its almost like I wont let myself believe the good news at the moment. 
    my surgeon has been fantastic but said he was taken aback by the suggestion of chemo by the oncologist. I feel like now preventative chemo has been put on the table though Il always wonder what if if I don't do it. Scary though. I hope you get on alright with it lovely. Im here if you ever need a vent xxxx

  • Oh lovely please dont ever feel guilty!! Our journeys may take different detours but we have all been through the ringer and have shared experiences we can all be there for each other with. No matter what our treatments look like, everyones unique and responses are so so valid. Im sorry to hear your struggling with nerve pain, it can be absolutely horrible, it may be worth looking into hydrotherapy! Its really gentle and great for nerves.

    On the boob topic I wasnt sure how Id feel about it but Ive embraced my flat side and it doesnt bother me, being totally candid I never really noticed how small my bust was until having my mastectomy, even the size 1 softie is bigger than remaining righty real boob!! Xxx

  • Aww bless you, made me giggle about your boob lol. Glad you're in fine spirits too. Yeah responses are valid and it helps to talk it out. Nerve pain has been ok so far today. Hope it stays that way, doubt it lol xx

  • Hi lovely, good luck with the chemo. Seems we both have September birthdays, mine on Tuesday but can't be bothered lol. Got my appointment on 4th October so I'll let you know. Xx

  • Hello lovelies. 

    Thought Id hop on and see how your all doing? Hope you all had a lovely weekend and doing well. 

    Not sure about anyone else but my anxiety has been a mare these last few days. Before BC I ate a keto diet to help control my hormonal acne and moods, since being diagnosed Ive been eating oreos, cake, basically any carb that looks like it would temporarily cheer me up worked at the time but just started my menses and its the worst its been in months for my skin and anxiety my thoughts are just a bit rain cloudy right now! Praying I get along okay with Tamoxifen as all I hear are the stories around that. 
    Thats my moan for today anyway, hope everyone is all okay but if your feeling fed up, anxious, angry, hormonal or a cocktail of them all please don't feel alone and if you need to chat Im here xxx

  • Hi Rambleon.  I think this whole journey is a rollercoaster. I haven't cried much during this journey but yesterday I had a full on meltdown whilst having my PICC line inserted before my first EC chemo. They couldn't get it in until the 4th attempt. I was in full panic mode! 

    As a result I felt shocking yesterday. Today isn't so bad. 

    What did you decide in terms of chemo? Did you speak to the oncologist? 

    I was on tamoxifen between diagnosis smd surgery about a month and a half all in all. I didn't find it at all bad. The only side effect was being dehydrated. It actually stopped the night sweats I had been getting before hand. Hope that helps. Xx

  • Oh bless you, Im sending you a massive hug right now.
    Is the PICC line insertion sore? How many chemo sessions are you having? 

    ive decided to go for it, Im now waiting on meeting with the oncologist to see what they feel the next best steps are. Im scared but it felt like had I not gone for it Id be feeling like I should have and not felt like I did all I could. I am hoping Il be one of the 4months of chemo ones but I’ll go with what they feel is best. 
    It really is such a rollercoaster isnt it, on the good days I feel brave and on the bad I almost feel like a scared kid. I have a sensitivity to hormones so although Im praying I get along with tamoxifen okay Im also a bit nervous about  it. Xxx

  • Don't worry the PICC line shouldn't be sore. They do give you local anaesthetic but they said my veins are really smaller so they kept hitting problems and nerves so it was sore for me. Hopefully though you won't have a problem. It's fine now expect the ends are long. 

    I'm on 3 rounds of EC. So 1 infusion every 21 days and then 3 rounds of Docetaxel with the rounds every 21 days and then radiotherapy as I had a lumpectomy. 

    Yeah I think the what ifs are the big issue. There's so much to consider. Mine is a no brainer at 15% benefit. Everyone at the chemo unit was brilliant and very friendly yesterday. It's very chilled. 

    I have PCOS so my hormones are all over the place anyway  maybe that's why I got some benefit to tamoxifen - who knows. Xx 

Reply
  • Don't worry the PICC line shouldn't be sore. They do give you local anaesthetic but they said my veins are really smaller so they kept hitting problems and nerves so it was sore for me. Hopefully though you won't have a problem. It's fine now expect the ends are long. 

    I'm on 3 rounds of EC. So 1 infusion every 21 days and then 3 rounds of Docetaxel with the rounds every 21 days and then radiotherapy as I had a lumpectomy. 

    Yeah I think the what ifs are the big issue. There's so much to consider. Mine is a no brainer at 15% benefit. Everyone at the chemo unit was brilliant and very friendly yesterday. It's very chilled. 

    I have PCOS so my hormones are all over the place anyway  maybe that's why I got some benefit to tamoxifen - who knows. Xx 

Children
  • Awe Im glad the atmosphere there is chilled, that in itself makes a huge difference. How long from your oncology meeting to starting chemo was it for you? I doubt we will end up in the same chemo month chats that are out there unless referral to starting treatment goes really quickly for me but keep me posted on how you get on lovely. Just messaging on here has made my anxiety a little less so thank you. 
    Are you giving cold capping a go? Xxx

  • 2 weeks and 1 day from the consultant meeting to starting.  I'm not doing any other chats. Just the Younger Women Together group from Breast Cancer Now. Which is also brilliant group support. They are all a bit further on that me so I've had a few hints and tips from them.

    I decided against cold capping. I can't stand the cold and I have borderline Raynauds Syndrome and all the extra time and faff I didn't want to bother with. I just keep telling myself it's temporary. And especially with the outcomes I've heard of it was the right decision for me. Xx

  • Hi    ladies, just reading your posts....I'm emotional this week, Friday when I get results from operation. I'm back at work, this is second week in....took me til now to catch up with everything! I'm dreading Friday, it is a roller coaster of emotions. Pain is much better today, amitriptolene from doctors helped so much...still taking it as its definitely helping me sleep to as I was struggling with that as well..  I'll let you know how I get on xx

  • 2 weeks! crickey thats not long to wait! 
    I hope it all goes well lovely, its a big decision but its one of those “the only way out is through” situations I think. Im here if you need to chat and will share any tips I hear.

    Im tempted to give cold caping a go but then part of me just feels like it may be a lot of faff and the results arent a given, may get my eyebrows microbladed though as all I went through my teens/early 20s drawing on my brows and even with all those years experience I was absolutely rubbish at drawing them on. Il see what my BN and Oncologist says.

    Your right this is temporary “this too shall pass” as they say xxx

  • Oh lovely Ive been thinking of you. 
    Im so glad your in less pain and sleeping well, that will help you no-end. I just wish I could give you a hug because its a lot when waiting to get your surgical results. I found it was like a slightly less intense “Biopsy limbo” but still incredibly difficult. 
    keep us posted, you arent alone xxx

  • Thank you hun, means a lot....same here so sending hugs back your way xxxxx

  • I really hope you get good news on Friday   Do let us know how you get on.  I'm glad the pain is much better now. Being mostly pain free and being able to sleep is really important for healing but also psychologically. Im sure work is a struggle. There's no way I'd be able to do my job at the moment. Its too risky. It wouldnt be fair on me, my clients or my colleagues. So I really admire you going back to work so soon . Xx

  • Yes this is definitely my mantra. It worked with the kids so it will work here lol. 

    Lots do get microwaving done. I didn't personally. Not great with needles still. 

    I'm considering now booking the hairdresser to shave all my hair short. Probably need to get on and take the plunge. Goes somewhere around day 14-18. But I've lost loads recently anyway. Probably the stress of it all. Xx

  • Thank you so much, well I felt I had to go back after they put me on SSP and then the financial side of things takes its toll, it was too much to bear, so I went back last week in September and a day before my birthday. I didn't mention it was my birthday at work I just let the day go as I wasn't in the mood  if that makes sense, I felt like the new girl all over again....yes of course I'll let you know. You stay strong and same for Rambleon88 xx

  • Hope today went well lovely, been thinking of you xxx