Waiting on breast biopsy results - heads a mess

Hello everyone.

Ive never really posted on anything like this before but I just feel so lost and scared right now I thought Id see if there is anyone else out there feeling the same. 
Im 36, beautiful son and hubby. Couple of weeks ago was doing my fake tan, noticed just the slightest of dips in my left breast (bottom outer corner). I was due on my cycle so left it a few days encase it was something related and when it didnt go I made an appointment with my GP. They couldn't feel anything but made a referral to the breast clinic based on asymmetrical breasts. 
So I head to the clinic, consultant has a feel and agrees on the dip and can feel a lump underneath it. This then leads them to book me in as urgent for the following day but for a biopsy, mammograms and so on. So I have the mammograms done, they take multiple images. Wait again to head into the consultation room with 2 student nurses, the consultant, a Ultrasound tech and a nurse. They start talking about the lump and identify another one but at this point Im a bit numb and not really taking it all in. I have the biopsies done and then the consultant speaks to me, here is where Im upset at myself as I cant remember the exact wording (my head was and is a mess) but something along the lines of “Concerned” or “Suspecting” malignancy. It was all so fast though. I had titanium chips popped in over the two lumps tested then sent back out for another mammogram to confirm their placement and booking me in for an MRI. During the last mammogram I felt so stupid, I was almost literally frozen as every muscle was so tense and I just couldn't stop trembling. The poor technician was trying to get me to relax but I just couldn’t 
I feel so lost, so scared and to be honest completely blindsided and I don't know if Im just being a big baby or if this is a normal reaction to it all. Has anyone experienced something similar and its come back as benign? Im praying it comes back benign but their reaction and way they are speaking has made me feel like they already know it’s cancer. Then I spiral thinking oh god what if its spread already? And the littlest pain anywhere is making me so paranoid.
Im so grateful to my GP and hospital for moving so quickly, the other half just feels terrified. 
Sorry for the long rambly post and thank you for reading, I just feel like Im free falling right now x

  • Hi hun, been Doctors and definitely have nerve pain so I've got amitriptolene to take each night and see how I get on, very understanding doctor to. I k ow what you mean about work but last week I was asked for sick noes so I know I'm only getting SSP and well...that won't pay the bills!! Doctor said if I can't manage then she's happy to give me another sick note...I can only try...this shooting pain in my arm pit, omg and when my arm is by my side it feels like it's sticking to me...its hard to describe. I'm pleased you are healing well hun, my scar area is so numb to touch still. If you think chemo will help then it's your decision, I've still got to wait for final results and will no doubt be on my next appointment and any tablets which no doubt will be same for me..  I've had to say a few times to people that even though they've removed the tumour doesn't mean I'm OK! Think some need reminding of that, in my head I'm definitely not but I know I've got to deal with it best I can, my mind my body etc. Just like yourself. Getting the dressing off was a big thing for me and coming to terms with the scar, but then I think of you hun, much more than a scar taken away and then guilt gets hold of me...that's not anything bad towards you at all, I'm grateful mine was where it was at when it was found thank God but we all in this together and that means so much to me. You have come a long way since you first posted, like I have.  Only we know what it's like.. I'm happy you are hun...hope you have a lovely weekend luv T xxx

  • Hi Rambleon I'm glad you've had good news from the surgery. That's really good.

    Have a good chat with the oncologist. Chemo is scary. I had my meeting with the oncologist but my benefit with chemo is 15% so definitely worth it after the 59/100 on the oncotyping result and definitely recommend for me. Plus tamoxifen, aromatase inhibitors and likely bisphosphonates. I just wish they'd sent me straight for chemo rather than do oncotyping. The oncologist was suprised the other hospital did that test given my tumour was Grade 3. It's just delayed everything a month or so.  

    However the list of health impacts is really scary.  I just view it as a necessary evil. Xx

  • I'm wondering if I have this now too as since the holiday I've been getting pains on and off. 

    Coming to terms with the scar is a big step forward. Every step forward is important here I feel. 

    I start chemo on 1 October, the day after my 40th birthday.  I just want to get on with treatment now. Xx

  • Thank you lovely. 
    Its weird right now as its almost like I wont let myself believe the good news at the moment. 
    my surgeon has been fantastic but said he was taken aback by the suggestion of chemo by the oncologist. I feel like now preventative chemo has been put on the table though Il always wonder what if if I don't do it. Scary though. I hope you get on alright with it lovely. Im here if you ever need a vent xxxx

  • Oh lovely please dont ever feel guilty!! Our journeys may take different detours but we have all been through the ringer and have shared experiences we can all be there for each other with. No matter what our treatments look like, everyones unique and responses are so so valid. Im sorry to hear your struggling with nerve pain, it can be absolutely horrible, it may be worth looking into hydrotherapy! Its really gentle and great for nerves.

    On the boob topic I wasnt sure how Id feel about it but Ive embraced my flat side and it doesnt bother me, being totally candid I never really noticed how small my bust was until having my mastectomy, even the size 1 softie is bigger than remaining righty real boob!! Xxx

  • Aww bless you, made me giggle about your boob lol. Glad you're in fine spirits too. Yeah responses are valid and it helps to talk it out. Nerve pain has been ok so far today. Hope it stays that way, doubt it lol xx

  • Hi lovely, good luck with the chemo. Seems we both have September birthdays, mine on Tuesday but can't be bothered lol. Got my appointment on 4th October so I'll let you know. Xx

  • Hello lovelies. 

    Thought Id hop on and see how your all doing? Hope you all had a lovely weekend and doing well. 

    Not sure about anyone else but my anxiety has been a mare these last few days. Before BC I ate a keto diet to help control my hormonal acne and moods, since being diagnosed Ive been eating oreos, cake, basically any carb that looks like it would temporarily cheer me up worked at the time but just started my menses and its the worst its been in months for my skin and anxiety my thoughts are just a bit rain cloudy right now! Praying I get along okay with Tamoxifen as all I hear are the stories around that. 
    Thats my moan for today anyway, hope everyone is all okay but if your feeling fed up, anxious, angry, hormonal or a cocktail of them all please don't feel alone and if you need to chat Im here xxx

  • Hi Rambleon.  I think this whole journey is a rollercoaster. I haven't cried much during this journey but yesterday I had a full on meltdown whilst having my PICC line inserted before my first EC chemo. They couldn't get it in until the 4th attempt. I was in full panic mode! 

    As a result I felt shocking yesterday. Today isn't so bad. 

    What did you decide in terms of chemo? Did you speak to the oncologist? 

    I was on tamoxifen between diagnosis smd surgery about a month and a half all in all. I didn't find it at all bad. The only side effect was being dehydrated. It actually stopped the night sweats I had been getting before hand. Hope that helps. Xx

  • Oh bless you, Im sending you a massive hug right now.
    Is the PICC line insertion sore? How many chemo sessions are you having? 

    ive decided to go for it, Im now waiting on meeting with the oncologist to see what they feel the next best steps are. Im scared but it felt like had I not gone for it Id be feeling like I should have and not felt like I did all I could. I am hoping Il be one of the 4months of chemo ones but I’ll go with what they feel is best. 
    It really is such a rollercoaster isnt it, on the good days I feel brave and on the bad I almost feel like a scared kid. I have a sensitivity to hormones so although Im praying I get along with tamoxifen okay Im also a bit nervous about  it. Xxx