Waiting on breast biopsy results - heads a mess

Hello everyone.

Ive never really posted on anything like this before but I just feel so lost and scared right now I thought Id see if there is anyone else out there feeling the same. 
Im 36, beautiful son and hubby. Couple of weeks ago was doing my fake tan, noticed just the slightest of dips in my left breast (bottom outer corner). I was due on my cycle so left it a few days encase it was something related and when it didnt go I made an appointment with my GP. They couldn't feel anything but made a referral to the breast clinic based on asymmetrical breasts. 
So I head to the clinic, consultant has a feel and agrees on the dip and can feel a lump underneath it. This then leads them to book me in as urgent for the following day but for a biopsy, mammograms and so on. So I have the mammograms done, they take multiple images. Wait again to head into the consultation room with 2 student nurses, the consultant, a Ultrasound tech and a nurse. They start talking about the lump and identify another one but at this point Im a bit numb and not really taking it all in. I have the biopsies done and then the consultant speaks to me, here is where Im upset at myself as I cant remember the exact wording (my head was and is a mess) but something along the lines of “Concerned” or “Suspecting” malignancy. It was all so fast though. I had titanium chips popped in over the two lumps tested then sent back out for another mammogram to confirm their placement and booking me in for an MRI. During the last mammogram I felt so stupid, I was almost literally frozen as every muscle was so tense and I just couldn't stop trembling. The poor technician was trying to get me to relax but I just couldn’t 
I feel so lost, so scared and to be honest completely blindsided and I don't know if Im just being a big baby or if this is a normal reaction to it all. Has anyone experienced something similar and its come back as benign? Im praying it comes back benign but their reaction and way they are speaking has made me feel like they already know it’s cancer. Then I spiral thinking oh god what if its spread already? And the littlest pain anywhere is making me so paranoid.
Im so grateful to my GP and hospital for moving so quickly, the other half just feels terrified. 
Sorry for the long rambly post and thank you for reading, I just feel like Im free falling right now x

Parents
  • My wife was in this situation around 3 years ago, and she just over 2 years out from treatment. They found 2 lumps, one on top of the other. At first they thought it was just the one, just weirdly shaped, but after the mri, it turned out to be 2. She too was told on the day, and was slightly blinded.

    I really can't say this enough, but take someone with you, so you have a second pair of ears. It's amazing the stuff my wife missed, but luckily i was there too, so i picked more stuff up. It was like we were in 2 separate consultations.

    Every niggle you get at this point, you will think the worst. That's more than normal. My wife had put her back out a week prior to her diagnosis, had a sore shoulder, had a horrid cough that i had been nagging her to go see about for months prior and she had awful fatigue running up to all this. From her initial "it looks sinister" diagnosis, to her MRI, i won't lie, i was thinking the worst. After her scans, the cough was allergies, the back was mechanical and the fatigue was stress due to her running around after her elderly parents and holding down a full time job. Yeah, my point, the human body is complex and you can have multiple things going on at once, so try not to fret over the other stuff. Easier said then done, but you'll be tense and stressed, and as such you're more like to get muscle aches during this time with that stress.

  • Thank you so much for this. 
    Its very true, Im so unbelievably tense right now its no wonder everything aches. I keep holding my shoulders really high but cant relax enough to get them to sit normally. Im trying my best to avoid Dr Google but its so bloody hard. The community here is fantastic though, Im so beyond grateful to everyone who has responded. 
    How is your wife feeling these days ProfBaw? Hope she is happy and well!!

    Its the mornings right now Im finding really really difficult as my emotions are everywhere. By tea time I feel more centered and rational but mornings are just awful, has anyone else experienced this? Was there anything that helped? My GP has given diazepam but I dont want to get used to taking it so scared to even start. 

    Big hugs everyone xxxx

  • Hiya, I've had a good inch taken off my length, it was getting quite long. My lovely hairdresser said no drastic decisions on hair styles, which I'm glad she said that. Good tidy up all round, feel better for having a cut & blow...yeah wait and see what happens hun, don't go into overtime thinking by racing ahead.. friend rang me who's been on holiday to see how I was, I managed a conversation without crying, she was so supportive. I said I couldn't have had that conversation last week, I was so tearful. Xxx

  • Thinking of you  hope this morning goes well x

  • Hope you are OK hun, thinking of you xxx

  • Well thats todays MRI done, just waiting on the CT scan now.

    Im terrified its spread, I just cant get the fear of that out of my mind right now so Im having to just reaffirm what I know to myself. All I know so far is its a provisional Grade 2 IDC with a DICS in the mix, ER 8/8 and PR 8/8 waiting on HER status. Total tumor size is 6cm but thats the two combined, Axilla appeared normal on US. Urgh this is horrible. Im taking diazepam at the moment just to make that uneasy feeling in my stomach stop and to not feel like Im going to have a panic attack.

    How are you lovely? 
    How is everyone here today?
    Hope your all keeping well. 

    Sending big hugs to all xxx

  • Massive hugs hun, been thinking about you all morning. .I'm OK, back in work, for now...no support off boss woman whatsoever, girls in another office have been lovely and a couple of the guys. All I got off boss was 'alright', then straight into work talk...ffs!! When's your CT scan? Got everything crossed for you...did you get an information booklet from breast cancer nurses, that helped me, that's how I got on here. Try and find someone to talk to and do something you like doing. Xxx

  • Thank you! All good news. Only affected margin was the skin (but we knew thatand hence the partial reconstruction). No lymph nodes affected. So no more surgery. They anticipate oncotyping dx result this week to determine whether chemo & radiotherapy or radiotherapy only. X

  • Aww glad it's good news for you, hopefully no chemo xx

  • Im so happy for you that you had good news!! Yes hopefully you wont need chemo and will be on the road to recovery even faster! Xx

  • Your so good being back at work!! Im not even considering it yet to be honest. Such a shame your boss isnt being supportive as it makes such a difference! Mine is in his own weird way. No idea but asked in the MRI department about it today in my local hospital and they are giving it a push for me.

    Has anyone else on here had a CT scan as part of their diagnosis? Im absolutely terrified it means its spread. 

    Hope everyone is keeping well xxx

Reply
  • Your so good being back at work!! Im not even considering it yet to be honest. Such a shame your boss isnt being supportive as it makes such a difference! Mine is in his own weird way. No idea but asked in the MRI department about it today in my local hospital and they are giving it a push for me.

    Has anyone else on here had a CT scan as part of their diagnosis? Im absolutely terrified it means its spread. 

    Hope everyone is keeping well xxx

Children
  • I worked until my op. It kept me sane. If I'm not occupied my brain doesn't stop running overtime. It was better psychologically for me to work. 

    Try and keep busy and positive is my advice.   Xx

  • Regarding boss, I don't want sympathy off her, just sone support and understanding but oh no, straight back into pressure...was yawning my head off by 3pn!!! 5pm and I was off like a rocket haha.   Suppose really it's took my mind off it for a few hours...if you're not in work at the moment just try and fill your day...I had a book to finish, confessions of a 40 something f##k up, it's brilliant and makes you giggle. I bought the sequel yesterday, it's well worth a read....I bought it last year at the airport and hardly bothered with it, I finished it last week, got me through when I was getting irritated and upset at times....hope that scan appointment comes through soon for you....have a nice evening xxx

  • Thats a lot of it, you don't need sympathy just understanding that right now you don't want to be launched back into work at full speed just yet. Definitely will check that book out, Ive been watching a lot more movies than usual lately just as a distraction but its been lovely to be cuddled up with my son and hubby. 
    I was given diazepam to help with the anxiety but scared of how effective and addictive they are so trying my best to only use them when its too intense. I have my CT scan tomorrow so just feeling a bit scared today. 

    hope your all keeping well xxxx

  • Morning lovely, just got to work. Aww good luck with the scan tomorrow. I'm feeling a bit low at the moment just want it all over with if you know what I mean....being in work is helping I suppose but feel I can't be bothered....it's hard, the waiting and everyone around getting on with their own stuff like nothings wrong...frustrating and deep down I'm still absolutely petrified...

  • Its a really difficult time lovely. One second we are all just going through like “whats for tea?” “what shall we do this weekend?” The next we are diagnosed and life for now has really changed. Is there any way you could do altered duties in your work maybe? Just so you have work there as a distraction but not a stressor if that makes sense. Sending massive hugs xx

  • You're exactly right hun, like you say, what's for tea etc etc, normal life, now it's upside down. As for lighter duties, she's so unapproachable hun, Devil Wears Prada, only 10 times worse....!!! Not joking either. Got fab news yesterday as my daughter got offered a job, omg so proud of her.. we needed some good news...I've decided I'm not going to get stressed and what doesn't get done well tough...I'm usually organised and on top of stuff but hey life's too short and we have enough to deal with don't we...be in control of the diazapam hun, they are good, but like you say don't rely on them...hugs right back at you...xx

  • Lol devil wears prada! Its such a shame, before all of this I managed a small team in work and would never dream of being anything other than there for a team member who needed space and support. Thats amazing news with your daughter sending my congratulations!! 
    Definitely with the diazapam, its incredibly effective but I dont want to rely on it and god forbid end up with troubles with that on top! Xx

  • I managed a team of 27 for nearly 27 years, got made redundant back in 2014, never treated my staff badly especially when everything was stacked against them...world of work...ffs lol. I will tell my daughter for you...thank you. 

    What time is your scan tomorrow? Be thinking about you. Xx

  • Sounds like you were a lovely manager, work is work but we are all only human and sometimes the chips are up sometimes they are down and we should all be there for eachother. Thats how I managed my team. 

    my CT is at 9:40. My husband cant make it so dropping my son down my sisters so he can play with his cousins with my brother in law keeping an eye and my sister can come with me. No idea when Il get the results from it as the MDT meeting is every Friday and I have a feeling it will miss tomorrows so really hoping Im not left wondering till the 19th.

    The littles ache and pain is just playing with my mind lately. Im finding it really difficult to live in the moment xxx

  • I hope everything goes well today. The waiting is horrid. I had chest and sternum pain and I was convinced it was I  my lungs already. But honestly it's the stress and anxiety. It does horrible things to our body. Hopefully you will get a quick result and go to MDT. 

    I'm still waiting on the oncotype DX result and it's driving me mad. Literally everything is on hold waiting for that. We are hoping to book a holiday in a couple of weeks but we don't know when the next appt will be so we are waiting for the results before booking it. Apparently chemo planning appts are quicker than radiotherapy ones.  Its dtiving me slightly nuts that one sent from the trust on the sane day as mine was back on Monday but im still waiting :(Xx