Waiting on breast biopsy results - heads a mess

Hello everyone.

Ive never really posted on anything like this before but I just feel so lost and scared right now I thought Id see if there is anyone else out there feeling the same. 
Im 36, beautiful son and hubby. Couple of weeks ago was doing my fake tan, noticed just the slightest of dips in my left breast (bottom outer corner). I was due on my cycle so left it a few days encase it was something related and when it didnt go I made an appointment with my GP. They couldn't feel anything but made a referral to the breast clinic based on asymmetrical breasts. 
So I head to the clinic, consultant has a feel and agrees on the dip and can feel a lump underneath it. This then leads them to book me in as urgent for the following day but for a biopsy, mammograms and so on. So I have the mammograms done, they take multiple images. Wait again to head into the consultation room with 2 student nurses, the consultant, a Ultrasound tech and a nurse. They start talking about the lump and identify another one but at this point Im a bit numb and not really taking it all in. I have the biopsies done and then the consultant speaks to me, here is where Im upset at myself as I cant remember the exact wording (my head was and is a mess) but something along the lines of “Concerned” or “Suspecting” malignancy. It was all so fast though. I had titanium chips popped in over the two lumps tested then sent back out for another mammogram to confirm their placement and booking me in for an MRI. During the last mammogram I felt so stupid, I was almost literally frozen as every muscle was so tense and I just couldn't stop trembling. The poor technician was trying to get me to relax but I just couldn’t 
I feel so lost, so scared and to be honest completely blindsided and I don't know if Im just being a big baby or if this is a normal reaction to it all. Has anyone experienced something similar and its come back as benign? Im praying it comes back benign but their reaction and way they are speaking has made me feel like they already know it’s cancer. Then I spiral thinking oh god what if its spread already? And the littlest pain anywhere is making me so paranoid.
Im so grateful to my GP and hospital for moving so quickly, the other half just feels terrified. 
Sorry for the long rambly post and thank you for reading, I just feel like Im free falling right now x

Parents
  • Hi Rambleon88

    I'm so sorry you are in the boat.  Waiting for the biopsy result was the worst part of my whole journey. The fear of the unknown is the worst.  Once I had my treatment plan set out I felt better due to something happening. I'm 39 and have 2 young girls. I was diagnosed on 19 April with a 44mm Grade 1 ER/PR positive tumor. I had surgery on 26th June and I have my post op pathology results appt next Monday to determine my next treatment steps.  

    My advice is to try and keep things normal and try and keep your mind occupied until you get your results. X

  • Thank you so much lovely. Its the weirdest feeling, the not knowing is tearing me up but Im terrified of the answers. 
    I have a 10 year old little boy. Im so sorry to ask and please ignore me if too personal but how old are your little ones? Have you told them? 
    The thought of telling my son just breaks my heart.

    Thank you lovely. Ive started watching movies in the evening cuddled up with my husband and son. I never used to watch many films but Im beyond appreciating the escapism whilst still being close with my family x

  • Hi Rambleon, no I really don't mind. They have just recently turned 7 and 5 and are both girls.   I didn't tell them anything until a few days before my surgery. They just knew I was having a lot of appointments but didn't know anymore than that before that time.  I didn't want to worry them and I didn't have answers before that either.  They've been helping me with chores following the surgery to earn pocket money which they've enjoyed. 

    There are useful websites in how to tell children of different ages. Your boy will have more understanding than my girls did. 

    I found having a plan helped massively as I had an idea of what I was facing. I could then focus on the next step. X

Reply
  • Hi Rambleon, no I really don't mind. They have just recently turned 7 and 5 and are both girls.   I didn't tell them anything until a few days before my surgery. They just knew I was having a lot of appointments but didn't know anymore than that before that time.  I didn't want to worry them and I didn't have answers before that either.  They've been helping me with chores following the surgery to earn pocket money which they've enjoyed. 

    There are useful websites in how to tell children of different ages. Your boy will have more understanding than my girls did. 

    I found having a plan helped massively as I had an idea of what I was facing. I could then focus on the next step. X

Children
  • Thank you so much for sharing that. 
    yes having a plan and knowing what the next steps are is so important.

    I really struggled yesterday, my husband was away all day on site and my son was out all day with family and my gosh I just found yesterday so so difficult. Like all of the anxiety Im getting in the morning lasted all day. 
    I called my clinic and its looking like my biopsy results could be as long as 12th August away depending on when information gets back to my consultant. I don't know how to cope waiting in limbo that long. X

  • Apparently there is a shorter of pathologists in our Trust. And it's really not acceptable to keep people in this limbo with the waits. It's horrid. All you can do is to try and distract yourself. I was told on Friday my post op results weren't back yet but they hoped they would be back in time for this week's MDT(which I understand is today).  If not I assume my appt on Monday will be pushed back because they won't give the results without the MDT having discussed them. I'm not sure I'll be able to keep my cool if that happens. It'll have been nearly 6 weeks after my op on Monday.  X