Waiting on breast biopsy results - heads a mess

Hello everyone.

Ive never really posted on anything like this before but I just feel so lost and scared right now I thought Id see if there is anyone else out there feeling the same. 
Im 36, beautiful son and hubby. Couple of weeks ago was doing my fake tan, noticed just the slightest of dips in my left breast (bottom outer corner). I was due on my cycle so left it a few days encase it was something related and when it didnt go I made an appointment with my GP. They couldn't feel anything but made a referral to the breast clinic based on asymmetrical breasts. 
So I head to the clinic, consultant has a feel and agrees on the dip and can feel a lump underneath it. This then leads them to book me in as urgent for the following day but for a biopsy, mammograms and so on. So I have the mammograms done, they take multiple images. Wait again to head into the consultation room with 2 student nurses, the consultant, a Ultrasound tech and a nurse. They start talking about the lump and identify another one but at this point Im a bit numb and not really taking it all in. I have the biopsies done and then the consultant speaks to me, here is where Im upset at myself as I cant remember the exact wording (my head was and is a mess) but something along the lines of “Concerned” or “Suspecting” malignancy. It was all so fast though. I had titanium chips popped in over the two lumps tested then sent back out for another mammogram to confirm their placement and booking me in for an MRI. During the last mammogram I felt so stupid, I was almost literally frozen as every muscle was so tense and I just couldn't stop trembling. The poor technician was trying to get me to relax but I just couldn’t 
I feel so lost, so scared and to be honest completely blindsided and I don't know if Im just being a big baby or if this is a normal reaction to it all. Has anyone experienced something similar and its come back as benign? Im praying it comes back benign but their reaction and way they are speaking has made me feel like they already know it’s cancer. Then I spiral thinking oh god what if its spread already? And the littlest pain anywhere is making me so paranoid.
Im so grateful to my GP and hospital for moving so quickly, the other half just feels terrified. 
Sorry for the long rambly post and thank you for reading, I just feel like Im free falling right now x

  • My wife was in this situation around 3 years ago, and she just over 2 years out from treatment. They found 2 lumps, one on top of the other. At first they thought it was just the one, just weirdly shaped, but after the mri, it turned out to be 2. She too was told on the day, and was slightly blinded.

    I really can't say this enough, but take someone with you, so you have a second pair of ears. It's amazing the stuff my wife missed, but luckily i was there too, so i picked more stuff up. It was like we were in 2 separate consultations.

    Every niggle you get at this point, you will think the worst. That's more than normal. My wife had put her back out a week prior to her diagnosis, had a sore shoulder, had a horrid cough that i had been nagging her to go see about for months prior and she had awful fatigue running up to all this. From her initial "it looks sinister" diagnosis, to her MRI, i won't lie, i was thinking the worst. After her scans, the cough was allergies, the back was mechanical and the fatigue was stress due to her running around after her elderly parents and holding down a full time job. Yeah, my point, the human body is complex and you can have multiple things going on at once, so try not to fret over the other stuff. Easier said then done, but you'll be tense and stressed, and as such you're more like to get muscle aches during this time with that stress.

  • Thank you so much lovely. Its the weirdest feeling, the not knowing is tearing me up but Im terrified of the answers. 
    I have a 10 year old little boy. Im so sorry to ask and please ignore me if too personal but how old are your little ones? Have you told them? 
    The thought of telling my son just breaks my heart.

    Thank you lovely. Ive started watching movies in the evening cuddled up with my husband and son. I never used to watch many films but Im beyond appreciating the escapism whilst still being close with my family x

  • Thank you so much for this. 
    Its very true, Im so unbelievably tense right now its no wonder everything aches. I keep holding my shoulders really high but cant relax enough to get them to sit normally. Im trying my best to avoid Dr Google but its so bloody hard. The community here is fantastic though, Im so beyond grateful to everyone who has responded. 
    How is your wife feeling these days ProfBaw? Hope she is happy and well!!

    Its the mornings right now Im finding really really difficult as my emotions are everywhere. By tea time I feel more centered and rational but mornings are just awful, has anyone else experienced this? Was there anything that helped? My GP has given diazepam but I dont want to get used to taking it so scared to even start. 

    Big hugs everyone xxxx

  • Hi Rambleon, no I really don't mind. They have just recently turned 7 and 5 and are both girls.   I didn't tell them anything until a few days before my surgery. They just knew I was having a lot of appointments but didn't know anymore than that before that time.  I didn't want to worry them and I didn't have answers before that either.  They've been helping me with chores following the surgery to earn pocket money which they've enjoyed. 

    There are useful websites in how to tell children of different ages. Your boy will have more understanding than my girls did. 

    I found having a plan helped massively as I had an idea of what I was facing. I could then focus on the next step. X

  • Morning lovely, my kids are 27 and 24, daughter lives with me, son moved to his dad's back in January. Both taken it ok, my daughter has been amazing and supportive, she's in Rhodes at the moment on holiday and I'm glad she's gone, to enjoy herself. Mornings feel OK if I've managed a sleep, it's evening I find hard, watching tv and mind starts working overtime. Baby steps as my partner says.. just come off the phone from my key worker at the hospital and she was lovely to talk to.  Feeling bit better in myself at this moment in time, but that could change...I think for now tell your son when you are ready to, everyone is different and there's no right or wrong approach, kids are resilient and will be your strength hun. Xxxx

  • My wife is doing great. Her cancer was classed as highly aggressive and was quite extensive as far as local spread went. But she had a complete response to the treatment, and here we are 2 years out from it and she's still classed as no evidence of disease. Due to her response from the treatment, her reoccurrence percentage is very low. Something like 3%.

    No matter how dire things seem just now, there really is life after a cancer diagnosis. This part of the journey is one of the worst parts as far as mental health goes. The unknown is horrendous. But should your results not be what you're hoping for, and you have all the facts at hand, the mental strain becomes a lot less burdensome. You'll have something else to focus on.

    The physical part aside, my wife found the most difficult part mentally to deal with was the after part. During her diagnosis, her subsequent treatment, she was busy, had medical support and had nurses etc to fall back on. Afterwards, you're just kinda left to get on with it. She found it difficult to trust her body again. She's on Tamoxifen, so she feels she's still doing something. Again, this is something people with cancer and those around them come to understand. Should you get good news, you'll always be more jumpy when finding something. It never really leaves you.

  • Thank you so much for sharing that. 
    yes having a plan and knowing what the next steps are is so important.

    I really struggled yesterday, my husband was away all day on site and my son was out all day with family and my gosh I just found yesterday so so difficult. Like all of the anxiety Im getting in the morning lasted all day. 
    I called my clinic and its looking like my biopsy results could be as long as 12th August away depending on when information gets back to my consultant. I don't know how to cope waiting in limbo that long. X

  • So glad to hear your feeling a bit better. Yes baby steps definitely, its all so much to take in. Thats great news your key worker is lovely.
    Im not going to say anything to my son until I know whats going on. Same with my parents Im not saying anything to them until I know whats happening. Its so strange though I feel so guilty and like Ive done something really wrong. The feeling of guilt and fear is just massive especially in the mornings. 

  • Thats incredible news with your wife!!! 
    oh gosh I can only imagine, going from the speed of appointments, information and treatments to then just be left to it must be very strange. If you dont mind me asking how old was your wife when diagnosed?
    Oh bless her, yes trusting your own body again after everything must be so difficult. 
    I think regardless of the outcome I will always now have a completely new found respect and fear at how fast life can change and such a appreciation for what I have. X

  • Apparently there is a shorter of pathologists in our Trust. And it's really not acceptable to keep people in this limbo with the waits. It's horrid. All you can do is to try and distract yourself. I was told on Friday my post op results weren't back yet but they hoped they would be back in time for this week's MDT(which I understand is today).  If not I assume my appt on Monday will be pushed back because they won't give the results without the MDT having discussed them. I'm not sure I'll be able to keep my cool if that happens. It'll have been nearly 6 weeks after my op on Monday.  X