Possible lymphoma symptoms

Hi everyone,

Almost 4 weeks ago I randomly felt a lump on my neck (left side just above the collarbone). It was the size of an egg and I am almost certain it has only recently grown to that size. My GP arranged an urgent 2-week referral to the ENT department and I had bloods done. She said it might be cancer but it could be other things too.

The blood tests came back normal, although my LDH was slightly low. I have an underactive thyroid and their levels were within range too. Since then, I have felt tired, a little under the weather, nauseous and I can sometimes feel a slight pressure in my throat.

My appointment is on Friday and I'm staying positive but there is a part of me freaking out about this. Other than an underactive thyroid, I'm 39 and very healthy. I eat healthily, I don't smoke, drink and exercise a lot (3-4 times a month). Has anyone else been diagnosed with similar symptoms? I know the one on my neck is obviously a symptom but the others seem too vague and could be anything.

Any help would be greatly appreciated :) 

Parents Reply Children
  • I came on here to reply literally yesterday but didn’t actually post a message. I’m doing really well thank you. How are you doing? So last week I was told I was in remission but they also said my thyroid is still inflamed and there’s a nodule that’s increased in size. They think it’s likely Thyroiditis but they’re going to do tests to make sure it’s not the lymphoma. If it is, it means the cancer in the thyroid was resistant. They were meant to investigate my thyroid after my first PET scan but the radiologist didn’t mention the nodule in the first report so my doctor just assumed it was thyroiditis. It feels like 2 steps forward and then 1 back but it is what it is and I’m staying positive. I hope you’re feeling better and have a positive update.

  • Good! I'm feeling good thankyou, still waiting for my end of treatment pet scan results so no update on that side of things. 

    That's positive news that your in remission! Hoping for you that the swelling and nodule turns out to be nothing! No correct communication with these doctors! Fingers crossed for you! 

  • Hey, how did your end of treatment results go? I hope it was good news.

    It’s been a bit rubbish with this whole thyroid malarkey. Initially they thought it was nothing and the biopsy came back negative. Then they wanted to do another biopsy just to be sure”110%” and that came back indeterminate and they think there’s a chance it could be thyroid cancer. I now have to decide if I want to watch and wait or have an operation to remove half of my thyroid (it’ll be the latter). 2024 is the gift that keeps on giving. I can’t imagine it is cancer as I’m so fit and healthy. Anyway, I really do hope you’re well and I do think to how you’re getting on.

  • Hey, my pet scan showed some inflammation still but they decided in there MDT meeting that it was just general inflammation not cancer, so said I'm in complete remission but to have another pet scan in a few months time to be 100% sure. Back at work and life like nothing happened! 

    Oh no definitely does keep on giving let's hope for a better 2025! And yes your definitely making the right decision in having the half of your thyroid removed there's no point taking the risks after already going through so much! I know same here just goes to show it happens to anybody no matter of life style choice. Do you need to wait long to have it removed? 

    Wishing you the best! Hope you are doing as well as you can be doing!