Possible lymphoma symptoms

Hi everyone,

Almost 4 weeks ago I randomly felt a lump on my neck (left side just above the collarbone). It was the size of an egg and I am almost certain it has only recently grown to that size. My GP arranged an urgent 2-week referral to the ENT department and I had bloods done. She said it might be cancer but it could be other things too.

The blood tests came back normal, although my LDH was slightly low. I have an underactive thyroid and their levels were within range too. Since then, I have felt tired, a little under the weather, nauseous and I can sometimes feel a slight pressure in my throat.

My appointment is on Friday and I'm staying positive but there is a part of me freaking out about this. Other than an underactive thyroid, I'm 39 and very healthy. I eat healthily, I don't smoke, drink and exercise a lot (3-4 times a month). Has anyone else been diagnosed with similar symptoms? I know the one on my neck is obviously a symptom but the others seem too vague and could be anything.

Any help would be greatly appreciated :) 

  • I think it was because they didn't get the full biopsy results back before telling me the diagnosis and shouldn't have told me a stage untill they had the full picture, unfortunately they did then I didn't find out untill I'd received a letter after having an outpatient appointment with my consultant. My thyroid/lumps in my neck where massively compromising my Airways so I think they where just rushing the diagnosis. 

    Did they take a biopsy of your thyroid? 

    Also try not to panic as they have told me that treatment will be the same if it was stage 2 or 4. If at all you are worried this situation has taught me sometimes you need to "nag" the GP/hospital to get answers. Trust your gut! 

    Thankyou! 

  • Hey  was just wondering how your getting on :) 

  • I came on here to reply literally yesterday but didn’t actually post a message. I’m doing really well thank you. How are you doing? So last week I was told I was in remission but they also said my thyroid is still inflamed and there’s a nodule that’s increased in size. They think it’s likely Thyroiditis but they’re going to do tests to make sure it’s not the lymphoma. If it is, it means the cancer in the thyroid was resistant. They were meant to investigate my thyroid after my first PET scan but the radiologist didn’t mention the nodule in the first report so my doctor just assumed it was thyroiditis. It feels like 2 steps forward and then 1 back but it is what it is and I’m staying positive. I hope you’re feeling better and have a positive update.

  • Good! I'm feeling good thankyou, still waiting for my end of treatment pet scan results so no update on that side of things. 

    That's positive news that your in remission! Hoping for you that the swelling and nodule turns out to be nothing! No correct communication with these doctors! Fingers crossed for you!