I didnt book it as ive had my appoitment come through but not till the 26th November its still a long wait 20 days it would of taken from the referal. The private scan was a lot of money which i was going to do for the consultant and the ultrasound but then if a biopsy is needed it was £750 just for 1 single biopsy :( 

Hi N92,

It certainly mounts up very quickly, when the different tests are included. You also have the problem of having another wait to get back into the NHS system, if you need any further treatment. Now that you have your NHS appointment, you could phone again and say that you are willing to take a cancellation, if any come up. In the meantime, you can start a countdown to your appointment at last.

Kind regards,

Jolamine xx

Thank you so much. You are of course going to think the worse, because I had a lump too I was convinced it had to be something bad, all the reading up on google made me feel so much worse. Monday will soon come round and I really hope your mind will be at ease x

Thank you so much for your kind message Jolamine xx

I think its because its coming up IBC and its the worse one and i feel i have every single symptom. I dont think i can feel a lump in there, just my nipple and areola thats gone weird aswell like its pulling. Just need monday to come and pray pray pray its all ok :( 

I'm really sorry to hear that Jolamine  it sounds very worrying ,I hope you get the scan through very soon so they can find out what's going on ,hopefully its nothing major connected to your past breast cancer x

Hi Jenny,

Thank you. I'm sincerely hoping that it's not too.  How are you keeping these days?

Regards,

Jolamine xx

Hi I'm ok I think except the symptoms I had last year which lead to me having a Colonoscopy and Hysteroscopy have returned despite getting the all clear a year ago so I'm keeping an eye on that I've just received another Fit test in the post so we'll see how that goes , but there's so many people on here with the same symptoms as myself and worried about having to have a Colonoscopy and then waiting for results its good to be able to calm people and reassure them with experience you had yourself , I know how I was when I first heard I could have Ovarian cancer I was so glad to find this site ,like many others reading Google posts I had myself in an early grave and it stays with you despite being told nothing worrying was found ,Its good to be there for others x

Hi Jenny,

I'm so sorry to hear that your symptoms are back again and still giving you cause for concern.  I'm glad to hear that you are about to do another fit test - don't be afraid to seek further investigation if your symptoms continue.

It is great to have you here supporting all of those with the same symptoms and helping to calm them with the benefit of your experience. Like you, I have found this site to be of tremendous support to me in the past and this is why I try to support others as best as I can.

I agree that Google would have you in a 6" box with the slightest injury, but it is only natural that this is our first port of call.

Please let us know how your fit test goes - I'm keeping my fingers crossed for you.

Kind regards,

Jolamine xx

Hi Jolamine and thanks for your concern I will let you know how it goes x

Hi N92,

How did you get on at the breast clinic today?

Kind regards,

Jolamine xx

Hi Jolamine.

Soo.. He wouldnt even ultrasound me, he felt all around and could see i was swollen by my arm and it was tight (no swollen lymph nodes) he pressed all around my boob an it was sore till he pressed right at the bottom of my boob an it was soooo sore, he said i have done a muscle underneath. I cried to him saying what if its IBC cuz that doesnt show lumps an he said your breast are both normal, he was absolutely adamant i have done a muscle which sill radiate to under the breast. I said why is my nipple doing retracting, he said becus of muscles underneath. 
I have some relief but its still in the back of mind i really just need to try and trust him. He was a top consultant, but i just hope hes correct in what he was saying. But he was looking me right in the eyes and saying both breast are normal!

Hi Jolamine.

Soo.. He wouldnt even ultrasound me, he felt all around and could see i was swollen by my arm and it was tight (no swollen lymph nodes) he pressed all around my boob an it was sore till he pressed right at the bottom of my boob an it was soooo sore, he said i have done a muscle underneath. I cried to him saying what if its IBC cuz that doesnt show lumps an he said your breast are both normal, he was absolutely adamant i have done a muscle which sill radiate to under the breast. I said why is my nipple doing retracting, he said becus of muscles underneath. 
I have some relief but its still in the back of mind i really just need to try and trust him. He was a top consultant, but i just hope hes correct in what he was saying. But he was looking me right in the eyes and saying both breast are normal!

Hi N92,

It is always difficult to believe a consultant, when no further tests have been carried out and you have already diagnosed yourself with something serious. Most consultants can tell by the feel of our breasts, whether there is cancer there, or not. If they suspect it, the will then carry out tests to confirm this. I am in a similar position after my visit to the breast clinic last week. The consultant refused to do an ultrasound, because she couldn't find a lump and assured me that all was fine.

I guess that we really have to take the consultants' word and place our trust in their expertise. However, if your symptoms persist and you are not reassured, you are always entitled to a second opinion.

Kind regards,

Jolamine xx

It really is. I made him come back behind the curtain and check again which he did but he was really serious with me. I will give it till after xmas and hopefully it gets better if not i’d like another check xx

Hi N92,

Monitor your symptoms for a few months and if you are still not happy, seek a second opinion.

Jolamine xx

I will. I did say to him when i use a heatbad it helps but when i lift my arm i have feel a pulling inside but he couldnt feel anything abnormal. Its so hard to explain. I had chest pains about 6 weeks ago and that went, then i had the burning pain and now i have which he says is muscle pain which is why hes saying it muscle because how its changed. Im not sure why my nipple is so sensitive though but he said it is all linked even though breast have no muscles its tissue, muscle’s are underneath. 
if it doesnt improve by xmas i will go back to the doctors.

not sure how i would of done it but i did have a chest infection about 4 weeks ago x

It's always easy to pull a muscle, by lifting something, which we often do without thinking of the consequences. I expect that this could also be a legacy from your chest infection too. Here's hoping that it settles down soon and you'll have no need for any further worry.

Kind regards,

Jolamine xx

Is it dangerous to leave it a few months and monitor symptoms? I only ask as I’ve had mine for almost 2 months now and the doctor obviously told me it’s nothing to worry about but I’m not convinced :( . Luckily I don’t really have the aching pain anymore, but the affected breast has grown alot so I’m still worried. I was also thinking of waiting until Christmas before going back, but worried I might be leaving it a bit long 

Hi if you're constantly worried about what might have been missed because you feel something isn't right its not going to go away ,I was just wondering if you could get a private appointment even if its just to get peace of mind ,I'm just thinking its what I would do if I wanted to be certain because I'd be like you forever wondering what if ,I hope you get sorted whatever route you take x

It's impossible to say - I am not a doctor, but I suspect that even a doctor, would struggle with this question. You might be better waiting to see if your pain stays away, or your bust gets smaller again.

Kind regards,

Jolamine xx

I think im going to call my docs in the morning. I just dont feel right with the breast clinic the other day he said they was fine (no lumps) but i did say i couldnt feel a lump, its the way my one nipple has gone and my areola and he said it was fine but it really isnt, its so much different to the other. My chest feels swollen to and all around my armpit x

HI,

That is totally up to you. You know your own body better than anyone else. Do you think that you might feel more reassured if you saw another consultant? If so, make sure to ask for this.

Please let us know how you get on.

Kind regards,

Jolamine xx