I didnt book it as ive had my appoitment come through but not till the 26th November its still a long wait 20 days it would of taken from the referal. The private scan was a lot of money which i was going to do for the consultant and the ultrasound but then if a biopsy is needed it was £750 just for 1 single biopsy :( 

Hi N92,

It certainly mounts up very quickly, when the different tests are included. You also have the problem of having another wait to get back into the NHS system, if you need any further treatment. Now that you have your NHS appointment, you could phone again and say that you are willing to take a cancellation, if any come up. In the meantime, you can start a countdown to your appointment at last.

Kind regards,

Jolamine xx

Glad it was all okay though! You can stop worrying now :) xx

did they mention what it could be at all? x 

Did your nipple/areola go a bit weird though? Mine has really changed gone puffy, and i can feel a tugging feeling in it every time i move which is radiating to my armpit. Did they take any biopsy’s for u? X

So this was at the breast clinic. I had examination she said there was a thickening in the area the GP mentioned so because of that I had an ultrasound, but she said she wasn’t worried and thinks it’s hormonal and breast pain can be a number of reasons not usually linked to cancer. Ultrasound was straight after and I was told it was clear xx

It hasn’t no. But I do feel a pulling when laying at night, burning sensation that goes upto armpit. They didn’t do a biopsy. But even if they do when you go that doesn’t mean anything is definitely wrong. She said the lump that was felt by my gp is a thicker tissue than the other breast and the tenderness is likely hormonal x

My Nipple has gone quite flat and almost got smaller in size. My actual breast though seems to of grown. I don’t feel any tugging though. I do have the burning sensation that starts sort of underneath the breast and moves up into arm pit. I don’t think there is any lumps, it definitely feels different to the other side but no actual lumps that I can feel x 

Thats brilliant. Im So glad all is ok for you :)

My areola and nipple has gone different and it looks like theres an indent in my areola to at the top now. It doesnt sound good with mine tbh, it does seem like something bad is going on. I pray it isnt but the heaviness and the pulling sensation seems to be getting much worse. My apoit has now been changed to monday thank god. Even though i need this apoit im scared what the outcome is going to be. 

Hi Cmck11,

I am delighted to hear that you got the all clear, despite your worries. That must be a fantastic relief for you.

On a dull and dreary day here, that has really made my day!

Kind regards,

Jolamine xx

Hope u are ok Jolamine xx

Hi N92,

I'm not too bad thank you. I was back at the breast clinic on Tuesday, to investigate why I am fitting and collapsing, quite frequently and am now waiting for a CT scan. They've said that I should get one in about 2 weeks, so, like everyone else here, I am patiently waiting and hoping that there's a non- cancer related reason for them.

How are you coping with your wait, now that you have a date?

Kind regards,

Jolamine xx

Oh no really fingers crossed for u all will be ok.

Ermm im still feeling the same tbh, im more scared now to no if its anything bad :( 

pain hasnt eased at all like i was hoping 

Oh no really fingers crossed for u all will be ok.

Ermm im still feeling the same tbh, im more scared now to no if its anything bad :( 

pain hasnt eased at all like i was hoping 

Hi N92,

How did you get on at the breast clinic today?

Kind regards,

Jolamine xx

Hi Jolamine.

Soo.. He wouldnt even ultrasound me, he felt all around and could see i was swollen by my arm and it was tight (no swollen lymph nodes) he pressed all around my boob an it was sore till he pressed right at the bottom of my boob an it was soooo sore, he said i have done a muscle underneath. I cried to him saying what if its IBC cuz that doesnt show lumps an he said your breast are both normal, he was absolutely adamant i have done a muscle which sill radiate to under the breast. I said why is my nipple doing retracting, he said becus of muscles underneath. 
I have some relief but its still in the back of mind i really just need to try and trust him. He was a top consultant, but i just hope hes correct in what he was saying. But he was looking me right in the eyes and saying both breast are normal!

Hi N92,

It is always difficult to believe a consultant, when no further tests have been carried out and you have already diagnosed yourself with something serious. Most consultants can tell by the feel of our breasts, whether there is cancer there, or not. If they suspect it, the will then carry out tests to confirm this. I am in a similar position after my visit to the breast clinic last week. The consultant refused to do an ultrasound, because she couldn't find a lump and assured me that all was fine.

I guess that we really have to take the consultants' word and place our trust in their expertise. However, if your symptoms persist and you are not reassured, you are always entitled to a second opinion.

Kind regards,

Jolamine xx

It really is. I made him come back behind the curtain and check again which he did but he was really serious with me. I will give it till after xmas and hopefully it gets better if not i’d like another check xx

Hi N92,

Monitor your symptoms for a few months and if you are still not happy, seek a second opinion.

Jolamine xx

I will. I did say to him when i use a heatbad it helps but when i lift my arm i have feel a pulling inside but he couldnt feel anything abnormal. Its so hard to explain. I had chest pains about 6 weeks ago and that went, then i had the burning pain and now i have which he says is muscle pain which is why hes saying it muscle because how its changed. Im not sure why my nipple is so sensitive though but he said it is all linked even though breast have no muscles its tissue, muscle’s are underneath. 
if it doesnt improve by xmas i will go back to the doctors.

not sure how i would of done it but i did have a chest infection about 4 weeks ago x

It's always easy to pull a muscle, by lifting something, which we often do without thinking of the consequences. I expect that this could also be a legacy from your chest infection too. Here's hoping that it settles down soon and you'll have no need for any further worry.

Kind regards,

Jolamine xx

Is it dangerous to leave it a few months and monitor symptoms? I only ask as I’ve had mine for almost 2 months now and the doctor obviously told me it’s nothing to worry about but I’m not convinced :( . Luckily I don’t really have the aching pain anymore, but the affected breast has grown alot so I’m still worried. I was also thinking of waiting until Christmas before going back, but worried I might be leaving it a bit long 

Hi if you're constantly worried about what might have been missed because you feel something isn't right its not going to go away ,I was just wondering if you could get a private appointment even if its just to get peace of mind ,I'm just thinking its what I would do if I wanted to be certain because I'd be like you forever wondering what if ,I hope you get sorted whatever route you take x

It's impossible to say - I am not a doctor, but I suspect that even a doctor, would struggle with this question. You might be better waiting to see if your pain stays away, or your bust gets smaller again.

Kind regards,

Jolamine xx