I’ve just had a similar experience and I am 1 week post opp for removal of a borderline ovarian tumour but still waiting on the biopsy coming through …

Started with bloating and slight cramping and put it down to maybe a food intolerance visited a doctor who organised a lot of tests the last one was the ultrasound which picked up a cyst on my right ovary then was sent for a mri which then picked up a tumour instead … after that I got fast tracked down the two week path and from consultations to signing forms it was out with 2 months they suspected a 8cm mass however came out as a 13 cm mass … please try not worry which I know is very hard as I went through many emotions .. I’m just glad it’s out now and hoping the results don’t take long xx 

Thanks for the reply! I hope you make a speedy recovery from your surgery. I hope your results come back soon and they are good, I’ll be thinking of you.

Do you mind me asking what sort of surgery you had (key hole or open) and what they took (just the tumour, tumour and ovary or additional things like lymph nodes)? How are you finding recovery so far? 

I had a call from the GP Monday and am seeing the gynae this Tuesday, I am so pleased with the quick response. I realise I will probably be having an MRI at some point (I’m not sure if this will be on Tuesday as I only received a text with time and location of appointment). 

Unlike you, I had virtually no symptoms other than the three days of bad cramping after a period this past month. The only reason the GP sent me for an ultrasound is because I mentioned I had always had heavy and painful periods and he suspected endometriosis. He was surprised that they found such a cyst when the results came back. Now I think back, I can’t help feeling like the fact I have heavy, painful periods masked any symptoms of the cyst. I am just glad we have found it because the GP could have very easily just put it down to my periods and not ordered the test.

Unless my cyst is very obviously an endometrioma, I think I’ll be in the same position as you and won’t know until it comes out. I have accepted this is a likely scenario and that I may well lose an ovary. When you haven’t had any children yet that is a scary prospect but me and partner have accepted this may happen.

Thank you for reaching out, sending hugs x

I hope your appointment gets things moving for you next week. I've had my results back from MRI and it's severe endometriosis that is impacting my bowel as well. Very relieved that it isn't cancer but possibly facing a hysterectomy as they asked if my family is complete. Fortunately I'm in a position at 40 to answer that with a confident yes. Next step consultant and then hopefully on the list for surgery before I'm back in A&E again! X

Thankyou … I ended up having lapascopic and open so got 5 lovely cuts on my stomach … I’ve had two children so they reopened my c section and then went through my stomach … I ended up having one ovary the tumour and a fallapion tube took out … recovery is not going to bad tbh the first few days I literally could not move or sit up but each day it’s getting slightly easier … when you have your discussion with the surgeon they will ask about your future and kids and there aim is to take as little at first depending on the mri … because I’m only 36 he didn’t want me to go through menopause yet … but if my biopsy results come back bad then they may have to take more xx 

Hi Quinn24,

Sorry to hear you are in this position. Thought I'd reach out as I am in a similar position to you - I have been diagnosed with a 14cm complex cyst on my right ovary. Mine too is multioculated and part of it contains blood. However, my CA125 is normal. They are not sure at the moment whether it is cancerous or not so I am currently waiting for surgery, hopefully in the next couple of weeks. I have also got a thickened womb lining so also having that investigated in the same surgery. 

Hope your appointment goes ok - when I had mine, my MRI was 2 days later so hopefully the wait won't be too long for you if that is what you need. 

x 

Hi Dannii16

Hope your recovery is going well. It sounds like our situations are similar - I am waiting for surgery to remove my 14cm cyst and ovary/tube. I've been told they are going to try keyhole but they may well have to swap to open. 

I hope you don't mind me asking - how did you find the surgery? Were you told before hand it could end up being either? How long were you in hospital for? 

x

Hi Dannii16

Hope your recovery is going well. It sounds like our situations are similar - I am waiting for surgery to remove my 14cm cyst and ovary/tube. I've been told they are going to try keyhole but they may well have to swap to open. 

I hope you don't mind me asking - how did you find the surgery? Were you told before hand it could end up being either? How long were you in hospital for? 

x

Hi yes does sound very similar and no course I don’t mind sharing ….

when I had my consultation and signed forms for consent the surgeon recommended open surgery as they were really not sure what they were dealing with and didn’t want to chance keyhole Incase it burst which could spread cancer cells around my body so we agreed open which was gunna be a cut from my belly button down  … however on the day of the surgery he came round to see me and said he had been sat the night before looking at my images and thought it could be easier to do keyhole and then bring it out through my c section saving me a big scar down my stomach but still had to sign consent that it may change wen I’m under…

I was under for about 3 and half hours and don’t know anything till I woke up in recovery … I spent a night in hospital and was discharged the following night I’ve managed pain just with paracetamol and everyday is getting slightly easier xx