2 Week Referral for Ovarian Cyst

I have just been diagnosed with a decent sized cyst on my right ovary (6.4cm largest diameter). It was described as multi- locular , thick walled and haemorrhagic and my GP has put me on a 2 week urgent referral. In his words, he isn’t overly concerned that it is anything sinister but that the gynae wait times in my area are nearly 12 months for routine referrals. He said that given the size he’s confident it’ll need to come out and the sooner the better.

In terms of symptoms, all I had was really bad cramping for 3 days just after my period. I have always had heavy, painful periods (which has been the case since I was 13 so nothing new) so no changes there. He suspected endometriosis and only sent me for the scan to be thorough, I am glad he did. The cyst seems to be an incidental finding to the pain, as if the pain was from the cyst it would have most likely have twisted or burst which isn’t the case as the pain resolved. 

I am panicking a little now, I am only 26 and this has come as a shock. I work in an industry that is allied to medicine so I know what an urgent referral means. He has referred me for a CA125 test, but I know this isn’t confirmatory. I know that a haemorrhagic cyst in someone with heavy periods is most likely to be an endometrioma but I can’t help worrying. Has anyone had any similar experiences to this? I think I just want to write my thoughts down.

Parents
  • I'm going through almost exactly the same and have a 6cm blood filled cyst on my left ovary. I've been in hospital twice because of the pain and recently had a ca125 test which is raised and an MRI last week that I'm waiting on results of. I think the two week pathway is likely to be longer but at least I'm on it and not on the 12 month routine gynae list.

    Similarly to you one of the drs I have seen in hospital doesn't think it is cancer but until someone says 100% that it's not it's hard not to worry. 

  • I’m sorry that you’re going through the same thing, it’s awful not knowing. If I hadn’t of had the random cramping I wouldn’t have even known I had a cyst so I’m glad it was found. I realise I’ll be waiting for a while to find out exactly what it is. I am a bit upset at the fact that if they do remove the cyst and they still think it’s suspicious they may have to take the ovary with it. I do want children and have been with my partner for a long time but it’s not really something we wanted to think about now. I hope you get the answers you need, have you had your appointment with gynae yet?

Reply
  • I’m sorry that you’re going through the same thing, it’s awful not knowing. If I hadn’t of had the random cramping I wouldn’t have even known I had a cyst so I’m glad it was found. I realise I’ll be waiting for a while to find out exactly what it is. I am a bit upset at the fact that if they do remove the cyst and they still think it’s suspicious they may have to take the ovary with it. I do want children and have been with my partner for a long time but it’s not really something we wanted to think about now. I hope you get the answers you need, have you had your appointment with gynae yet?

Children
  • Not yet. I'm hoping to get an appointment through soon so that I can find out my MRI results which should help give a clearer picture. I could just do with a plan of action really then I at least know what I'm dealing with.

    Sorry that you've got the additional worry of what impact it might have on you having children as well. That must add an extra layer to it all for you too.

  • I hope you get an appointment soon. At least you have had the MRI so they should have a lot of information to come up with a plan at the appointment. I am still waiting for my referral to come through, I’m not sure whether it’ll be an MRI first or see the consultant.