Newbie…unsure/in denial?

Hi all,

First post so would really appreciate your thoughts. I've got a results appointment this Friday after waiting nearly 3 weeks since visiting the 'one stop shop' and this week is dragging as you can imagine. 

In short, went to GP after finding a lump in my left boob and was seen in the breast clinic 3 days later (so lucky I know to be seen so quickly). Not long into the ultrasound the consultant said he thought  the lump was suspicious, and later said the mammogram done that day confirmed the same. They did biopsies of the lump and lymph node...and put a metal clip marker in...and I'm currently awaiting the results.
He told me on the same day they would look to do a reduction though at this stage not clear whether chemo would be done before or after. 

So...I would be so grateful for your insight into what questions I should be asking on Friday. As you can probably tell this is all completely new and unfamiliar territory. This time a fortnight ago I was planning my return to work after a year on maternity leave, and of course this is all now up in the air. I have a baby girl who has just had her first birthday. 
 

Also (perhaps I'm in a bit of denial!), what are the chances the biopsy could come back clear? That is, can false positives happen whereby the ultrasounds and mammograms show something suspicious that actually turns out to be benign? I have no first degree relatives with BC and am 33. 
 

Thanks for taking the time to read this! Xx

  • Hiya, this sounds very similar to what happened to me when I went to the clinic although they didn't put a clip in until it was confirmed as cancer. I had grade 3 cancer, tumour was 5.2cms and HER2 positive with one possible affected node. I started chemotherapy end of July and I'm about to have 4th EC, before moving onto targeted chemotherapy. My tumour has had a complete response to treatment and shrunk to a very small size. They usually do chemotherapy first to shrink it before surgery. 
    let me know how you get on with your results on Friday. It's a big worry waiting and to be honest that's one of the worst bits. 
    all the best. S

  • Hi Blujo88

    Didn't want to skip by your post without replying , hope you're ok xx

    I had a similar initial experience to you being referred to the one stop clinic after finding a lump in my right breast. Had just returned to work after mat leave with my second boy. 

    Was a complete shock needing uss mammogram and biopsy at the clinic- wasn't very well prepared and actually fainted when there with it all! 

    The team there wouldn't give anything away to me with regards to what they thought the lump was - kept saying I had to wait for biopsy results. I read lots on here about all sorts of things and there were lots of ladies who's lumps weren't cancer. 

    The waiting for results is horrendous.

    I hope Friday comes round quickly for you.

    There is so much support on here for whatever the lump turns out to be. Main thing is thst you found it, didn't ignore it and got the wheels in motion quickly  

    All the best, sending love xx

  • Hi thanks so much for replying. 
    I think its likely it will be malignant though I've been doing my best to look for evidence/examples suggesting otherwise during this dreaded wait! By the sounds of it similar to your situation one node could be affected...will see what they say on Friday.
    That's great the tumour has had a complete response. Will they be doing surgery further down the line? Thank you and I wish you the very best for the next lot of treatment x 

  • Hi and thanks so much for your kind words. Will feel much better come Friday, even if it is malignant. I think it's the not knowing and not having a plan which I'm finding hard. 

    That sounds so similar to my appointments where the default answer after seeing the 'suspicious' scans was that we need to wait for the biopsy. It's fair enough as these things obviously take time but I think a part of me thought if I ask them enough times they might be able to give me a definitive answer to shut me up haha. 
     

    Thank you, and I agree this place is so supportive. 
    Will update with what they say in my results appointment. 
    All the best for now xx

  • Morning, 

    Definitely waiting not knowing the results is very difficult. If the biopsy does confirm cancer there's then more scans they need to do which again means waiting in limbo. I found that the hardest time.

    Brace yourself for the worse sounds like that's what they're preparing you for - especially if they've said there's lymph node involvement.

     

    I'll be thinking of you - always here if you want to chat xx

  • Hi bluejo 

    I hope all goes well on Friday , my first appointment was mammogram biopsy ultrasound , then the 2ww wait killed me to find out . Once I knew I could plan and get my mind around it , try not to worry as you may be well ok take care best wishes xxx 
     

     

  • My wife went through the same during her initial appointment. Got told the same as you.

    The breast specialist's words were, "do not go expecting it to be anything other than malignant".

    The simple truth is, a biopsy is the only 100% answer. Experience, scans etc can only tell them so much, but the brutal truth is they are rarely wrong. It does happen, as there are stories the internet over, but those people are in a small minority.

    Use this time to at least try and wrap your head around what will get said at the next appointment so you're not having to pick yourself up twice from the floor after being told the news. All that said, there is still a slither of hope and nothing is currently nailed on, and someone has to be in that small minority of people, so why not you? But don't go pinning all your hopes on it.

  • Yes my plan is lumpetomy & the one node out with surrounding nodes (but not all)  - all being well after chemo finishes around December. 

    Keep in touch after you find out on Friday & if it is what you suspect I can help with pointers for getting through side effects of chemo. 

    Got everything crossed for you. 

    Sx

  • Hi and thank you. That's helpful and like you say I've been trying to use the past few days to better understand the situation and what treatment could look like if it does come back a cancer. 
     

    Im not sure how to tag you all individually to say thank you being a newbie (I'm sure I'll get the hang of it!) though I really appreciate your replies, and would be grateful for any tips and insights for the next steps depending on how Friday goes. Will update again soon, thanks again xx

  • Evening all. Just to update following my appointment on Friday. I’ve been diagnosed with invasive ductal carcinoma - grade 3, HER2 positive, Estrogen positive and progesterone negative. Lymph nodes came back clear which I’m obviously so relieved about. 

    Been referred to a fertility specialist to look at preservation and thereafter will do 6 cycles of chemo, with Herceptin and Perjeta. Will then have breast conservation surgery, radiotherapy and hormone therapy. Awaiting appointment with oncologist now to find out more about the chemo side of things though have been informed this could take a few weeks. 

    Feels very surreal and almost feels like I’m talking about another person and not myself if that makes sense. 

    Thanks for your kind words and support whilst I was waiting for the biopsy results, was helpful and I’m feeling ok now there is some kind of plan.