Hello [@Hollibob]‍ , I had a surgical biopsy on the same day as you and I had a letter inviting me to come in about my results on the 21st, I think they just send out a letter automatically after taking the biopsy and fit patients in one after another, there's no way the letter could have got here this quickly otherwise. I genuinely don't think the letter has any indication of what the results are as I doubt they've even looked at them yet.

Sorry it's still a waiting game, it's horrid isn't it, I just want answers! I've got a house move to keep me distracted in the meantime and an MRI to worry about, hopefully you can find ways to keep busy too and in the meantime am happy to chat and wait with you until we know more!

Thank you for your reply.

I was thinking that the appointments must just get automatically booked in. They assured me they would call me to go in in 2 weeks so hopefully we get earlier dates.

Yes the waiting is horrible!  The consultant said even if results are benign its not the kind of lump you would leave so I know it's got to come out. Just the thought that it's there is driving me insane I just want it out.

Sorry to hear you have the additional worry of an MRI and stress of moving although I understand that this is probably a good distraction at the moment. 

Hi @K86 thank you for checking in on me :-)

I am having a better day today, yesterday was emotional but today I'm stronger. Guess it will be up and down for the next few months now.

I think it's just the lack of control at the moment, not knowing which route we are going means I can't put plans in place. I'm holding off telling my parents and children until I know whether it's surgery or chemo first as I want a plan before I drop it on them.

I have an amazing husband and a rock of a sister so I am very supported. I've also told my best friend this morning which has also helped because again I felt I was in control (never realised how much of a control freak I am lol)

How are you doing? Any news on biopsy results? When did you have the biopsy?

X

You're doing amazing id be exactly the same I always like to get things straight in my head a bit. Really hope you know soon the plan.

Always here if need to offload or chat can give you my what app or Instagram if a help.

Must be such a shock. How old are your children? 

I have one son 14. I had biopsy done week ago last Friday. Definitely trying to be prepared either way. How did you come across your lump?

Really hope you know a bit more soon you got this xx 

I have 2 boys aged 15 and 11, they are not going to like talking about mom's book! Lol

I noticed the skin had changed on my left breast and a slight bump in March this year, however my right breast had a bloody discharge from the nipple so they only scanned that one as they said they only scan the symptomatic one! So annoyed now. I had a duct removal from the right breast in April but the bump in my left seemed to get bigger, I wasn't sure if it was getting bigger or if it was because I was getting smaller owing to the fact I joined slimming world in May and have lost quite a bit. Anyway thought I'd go again and get it checked... glad I did now but do wonder how long it's been there.

Hope you get your results soon and that it's good news, keep me updated. The waiting is torture. My breast care nurse gave me good advice to only focus on the here and now. You've ticked off things already in terms of going to GP, getting the biopsy etc

I'm focusing on work today as feel I've let it slip the last few days, then the weekend will be busy with homelife.  I just hope the results are ready this Wednesday and I don't have to wait another week!

Definitely such good advice I thought that on the biopsy Kelt thinking just go with what's happening as not keen on needles  

I'm 36 mine is in the left only about 15 mm think they said sort of where my heart is and mainly feel it in the shower or sat up sometimes tender.

Hope work goes ok and keep me updated take it easy thinking of you xx 

So my HER2 results have been confirmed as negative, now waiting for appointment to see the surgeon to discuss the operation.

I am in agony with low back pain so of course I have convinced myself it's related to the breast cancer :-( just want to get in a full body scanner right now!

Told my parents at the weekend which I can honestly say was just as hard as being told myself all over again.

I am finding mornings the worst as I'm waking up at 4am and it's the first thing I think of. Soon as hubby goes to work I feel overwhelmed with emotion but have to keep it in for the kids. I know as soon as they go to school I'll be crying on my way to work(I just don't want to go right now) 

Feel like I'm weak and angry that I'm just not getting a grip! Just want it out now please!

Sorry for venting just feel like this is a safe space as I tell family I'm fine and life must carry on as normal! I'm such a fraud :-(

You're bound to feel such a mix of emotions such a lot to take in sending you a big big cuddle Do the her2 results mean if it's a hormone type one? Sorry as I'm a bit new to it all. Still waiting on my results.

Yes can image any aches and pains must feel so scary fingers crossed for MRI scan

You are definitely not weak normal to feel sad angry scared. Here anytime to write away keep me updated.

Thinking of you xx 

Hi holibob 

I was to her2 - found out in June it's gone now just waiting on if chemo is required bedn yold chemo no chemo chemo no chemo so im in a tizz waiting .

take it each day at a time on diagnosis I was a mess but as time goes on it gets much easier you do and will get your head around it , I can't listen to the Harry styles song as it was lol don't think I ever will again .

can you talk a little time off work to get your mind round it babe , you will get through it fighting breast cancer is not how it was years ago when you start telling people you will be suprised they are like my aunty my Nan had that 20 years ago ect it's just a bump in the road for us we soon be back to normal big hugs x

Hi @K86

[@K86]‍  her2 is a protein on the surface of cancer cells. Some have higher than normal levels which helps them grow. If my HER2 came back positive I would require chemotherapy first. As its come back negative I can go for surgery without Chemo (if anything is found in my lymph nodes then we will discuss chemotherapy again)

How are you getting on? I've now got an appointment to see my surgeon on Monday to discuss the procedure. The waiting for news is the hardest part so I completely understand how anxious you must be feeling. No amount of 'try to keep busy' and 'not think about it' advice worked for me. It was constantly on my mind.

Hi @laraj​

@laraj​ thanks for your message. Glad to hear you are doing well although I can imagine that the coming or going around chemotherapy is frustrating.  I think people thought I was worried about having chemo when I was anxious about the waiting but in actual fact I was fine about having it (obviously I was worried about impact on my family) but I was nore anxious about sitting round waiting when I just want it out now.

Got an appointment on Monday with the surgeon to discuss the procedure, it'll be lumpectomy, lymph nodes and some kind of manipulation of tissue to 'fill the void' (his words!) As its 3cm I imagine it's going to leave a dent!

I'm doing better today because I have an appointment.  Hope they can give me a surgery date but not going to get my hopes up. They've said it'll be in around 4 weeks so the wait continues. 

How long will you have to wait before they confirm if chemo is happening? How did you find recovering from surgery? 

X

So pleased you got result least can move forward hope Monday goes ok to you have any idea what they are going to say with surgery?

I feel quite anxious today my biopsy was two weeks ago on Friday so trying keep waiting.

Did you get your results on a phone call did you say. 

Big hug to you you're doing amazing it's all so much to take in. What area are you from xx 

So pleased you got result least can move forward hope Monday goes ok to you have any idea what they are going to say with surgery?

I feel quite anxious today my biopsy was two weeks ago on Friday so trying keep waiting.

Did you get your results on a phone call did you say. 

Big hug to you you're doing amazing it's all so much to take in. What area are you from xx 

@k86

@k86​​​​​​​ I'm guessing he will talk me through the procedure itself. It'll be lumpectomy, removal of some lymph nodes and some tissue manipulation as there will be a big space where lump is (its currently 3cm). I've got loads of questions written down too. My notebook has now become my cancer book!!

Do you have a number for the clinic you could call, I had a letter literally days after with an appointment date but they called me to bring my appointment forward. See if you can give them a call it may help even if they tell you results aren't back yet at least you know? With bank holiday and postal strikes recently would be worth just checking nothing has gone missing in the post 

I'm birmingham, what about u?

I'm wimborne Dorset be thinking of you Monday what times your appointment.

That's a good idea I might ring it Friday then thats two weeks. 

Did they say much to you on the time of scan and biopsy?

How are you feeling in general xx big big hugs to you x

Thank you

When you say dud they say how much? Do you mean did they tell me how big? If so, I received a letter summarising my appointment , so ultrasound, mammogram biopsy and there it said 30mm

I'm ok in general, I'm knackered but put that down to the mental stress of it all. Want to get the date through so I can start planning what we will need. If we're looking at 4 weeks it may be when the kids are on half term which could be a blessing as less of a strain getting them up and to school. Saying that I do have support if needed, people really want to help which I'm very fortunate but I just need to let them and stop being a control freak! Haha

I'd be exactly the same always like to have everything written on calendar lol yeah in a way no school runs could be a good thing. How's your partner coping too.

Sorry might on the scan did they say much of what they thought at the time. 

Bet you will be so relieved when Monday is out the way is anyone going with you xxx

My husband is coping OK, he doesn't like to say Cancer but I don't think anyone does. It's a big word! 

When I had the scan he straight away asked if he could do a mammogram which worried me as I thought it'd be a scan and off on my way. 

Once the mammogram was done he just said he wasn't happy with it as it was irregular in shape and had some calcification so wanted to do biopsy. Told me to keep an open mind. I was just frustrated that I had been referred back in March for my other breast (turned out to be blocked duct) and I asked them if they scan both as I was concerned about a bump and skin change but they said no they'd only scan the symptomatic one :-(

Did you get any feedback whilst you were there?

Aww that must've been so hard. They didn't get too much away on ultrasound the lady said as I'm 36 good sign and the lump is quite round.

My husband's the same he's been so supportive sat in waiting room on biopsy and I kept saying why don't you get a cup of tea and he said no I'd rather wait   how are you coping with operation coming up can't lie in quite nervous of needles so keep worrying of being in hospitals etc xxx 

That sounds positive! I'm 38 (39 in a few weeks) felt odd them saying I was young but I guess in terms of this we are very young.

Surgery doesn't phase me really, I had an op in April this year on my other breast to remove the duct. I've also had gall bladder removed and 2 c-sections so it's just another scar! Haha probably shouldn't be so flippant but it's got to come out so I'm ready for it. 

Keep yourself in the here and now and focus on getting your result first. Cross any bridges in terms of hospitals when you need to. Do you have things that pass the time? Jig saw puzzles, box sets, crafts etc? It won't take your mind off it fully but if it makes time go quicker that helps.

Let me know how it goes when you call on Friday or if you hear anything before.

Always here to chat. We have got this!!! X

You too thank you yes trying keep busy with coursework helping and I'm a carer. 

My last operatin was 14 years ago c section with my son and was emergency c section so think maybe hospitals make me a bit nervous even get a bit scared of being put to sleep lol.

Always here keep me updated xx

Hi @K86​​​​​​

[@K86]‍ 

How are you doing? Did you get hold of clinic? Hoping you've got appointment date.

X

Hey thanks for your message still nothing tried a number for hospital couldn't get through and trued my doctor they only said should get a letter from the hospital think Monday gonna try hospital again. 

How are you doing? Xxx