Hello [@Hollibob]‍ , I had a surgical biopsy on the same day as you and I had a letter inviting me to come in about my results on the 21st, I think they just send out a letter automatically after taking the biopsy and fit patients in one after another, there's no way the letter could have got here this quickly otherwise. I genuinely don't think the letter has any indication of what the results are as I doubt they've even looked at them yet.

Sorry it's still a waiting game, it's horrid isn't it, I just want answers! I've got a house move to keep me distracted in the meantime and an MRI to worry about, hopefully you can find ways to keep busy too and in the meantime am happy to chat and wait with you until we know more!

Thank you for your reply.

I was thinking that the appointments must just get automatically booked in. They assured me they would call me to go in in 2 weeks so hopefully we get earlier dates.

Yes the waiting is horrible!  The consultant said even if results are benign its not the kind of lump you would leave so I know it's got to come out. Just the thought that it's there is driving me insane I just want it out.

Sorry to hear you have the additional worry of an MRI and stress of moving although I understand that this is probably a good distraction at the moment. 

Hi @K86 not a silly question at all, thank you for asking.

Today I'm not doing so good, I think I pinned too much hope on getting my HER2 results today but no phone call which means it will be at least Wednesday next week now. Its totally spun me out of control, had to log off work and go and lie down as I've given myself a headache and I feel like my chest is so tight!

I just want to know how and when we start treatments and surgery, hate the thought it's potentially growing and spreading inside and I'm  just sat here waiting.

Trying so hard to be brave and positive but today I've crumbled which I'm not proud of.

Tomorrow is another day though so I will dust off and go to work and pretend everything is fine 

Xx

The waiting is so hard like you say can imagine you just want to know when everything is. You're doing amazing hope you're hot family friends round you. 

Thinking of you. So so hard waiting on calls and appointments.

I'm still waiting on my biopsy results nothing like what you're going through but I'm trying to be prepared either way it really is the not knowing that's hard.

I'd be the same as you would just want it out etc.

Keep me updated on treatments and when you know about more always here if need to off load.

This site is amazing helps so much reading other people's experiences and advice.

XXX big hugs

Hi just thought see how your feeling xx 

Hi @K86 thank you for checking in on me :-)

I am having a better day today, yesterday was emotional but today I'm stronger. Guess it will be up and down for the next few months now.

I think it's just the lack of control at the moment, not knowing which route we are going means I can't put plans in place. I'm holding off telling my parents and children until I know whether it's surgery or chemo first as I want a plan before I drop it on them.

I have an amazing husband and a rock of a sister so I am very supported. I've also told my best friend this morning which has also helped because again I felt I was in control (never realised how much of a control freak I am lol)

How are you doing? Any news on biopsy results? When did you have the biopsy?

X

You're doing amazing id be exactly the same I always like to get things straight in my head a bit. Really hope you know soon the plan.

Always here if need to offload or chat can give you my what app or Instagram if a help.

Must be such a shock. How old are your children? 

I have one son 14. I had biopsy done week ago last Friday. Definitely trying to be prepared either way. How did you come across your lump?

Really hope you know a bit more soon you got this xx 

I have 2 boys aged 15 and 11, they are not going to like talking about mom's book! Lol

I noticed the skin had changed on my left breast and a slight bump in March this year, however my right breast had a bloody discharge from the nipple so they only scanned that one as they said they only scan the symptomatic one! So annoyed now. I had a duct removal from the right breast in April but the bump in my left seemed to get bigger, I wasn't sure if it was getting bigger or if it was because I was getting smaller owing to the fact I joined slimming world in May and have lost quite a bit. Anyway thought I'd go again and get it checked... glad I did now but do wonder how long it's been there.

Hope you get your results soon and that it's good news, keep me updated. The waiting is torture. My breast care nurse gave me good advice to only focus on the here and now. You've ticked off things already in terms of going to GP, getting the biopsy etc

I'm focusing on work today as feel I've let it slip the last few days, then the weekend will be busy with homelife.  I just hope the results are ready this Wednesday and I don't have to wait another week!

Definitely such good advice I thought that on the biopsy Kelt thinking just go with what's happening as not keen on needles  

I'm 36 mine is in the left only about 15 mm think they said sort of where my heart is and mainly feel it in the shower or sat up sometimes tender.

Hope work goes ok and keep me updated take it easy thinking of you xx 

So my HER2 results have been confirmed as negative, now waiting for appointment to see the surgeon to discuss the operation.

I am in agony with low back pain so of course I have convinced myself it's related to the breast cancer :-( just want to get in a full body scanner right now!

Told my parents at the weekend which I can honestly say was just as hard as being told myself all over again.

I am finding mornings the worst as I'm waking up at 4am and it's the first thing I think of. Soon as hubby goes to work I feel overwhelmed with emotion but have to keep it in for the kids. I know as soon as they go to school I'll be crying on my way to work(I just don't want to go right now) 

Feel like I'm weak and angry that I'm just not getting a grip! Just want it out now please!

Sorry for venting just feel like this is a safe space as I tell family I'm fine and life must carry on as normal! I'm such a fraud :-(

You're bound to feel such a mix of emotions such a lot to take in sending you a big big cuddle Do the her2 results mean if it's a hormone type one? Sorry as I'm a bit new to it all. Still waiting on my results.

Yes can image any aches and pains must feel so scary fingers crossed for MRI scan

You are definitely not weak normal to feel sad angry scared. Here anytime to write away keep me updated.

Thinking of you xx 

Hi holibob 

I was to her2 - found out in June it's gone now just waiting on if chemo is required bedn yold chemo no chemo chemo no chemo so im in a tizz waiting .

take it each day at a time on diagnosis I was a mess but as time goes on it gets much easier you do and will get your head around it , I can't listen to the Harry styles song as it was lol don't think I ever will again .

can you talk a little time off work to get your mind round it babe , you will get through it fighting breast cancer is not how it was years ago when you start telling people you will be suprised they are like my aunty my Nan had that 20 years ago ect it's just a bump in the road for us we soon be back to normal big hugs x

Hi holibob 

I was to her2 - found out in June it's gone now just waiting on if chemo is required bedn yold chemo no chemo chemo no chemo so im in a tizz waiting .

take it each day at a time on diagnosis I was a mess but as time goes on it gets much easier you do and will get your head around it , I can't listen to the Harry styles song as it was lol don't think I ever will again .

can you talk a little time off work to get your mind round it babe , you will get through it fighting breast cancer is not how it was years ago when you start telling people you will be suprised they are like my aunty my Nan had that 20 years ago ect it's just a bump in the road for us we soon be back to normal big hugs x

Hi @laraj​

@laraj​ thanks for your message. Glad to hear you are doing well although I can imagine that the coming or going around chemotherapy is frustrating.  I think people thought I was worried about having chemo when I was anxious about the waiting but in actual fact I was fine about having it (obviously I was worried about impact on my family) but I was nore anxious about sitting round waiting when I just want it out now.

Got an appointment on Monday with the surgeon to discuss the procedure, it'll be lumpectomy, lymph nodes and some kind of manipulation of tissue to 'fill the void' (his words!) As its 3cm I imagine it's going to leave a dent!

I'm doing better today because I have an appointment.  Hope they can give me a surgery date but not going to get my hopes up. They've said it'll be in around 4 weeks so the wait continues. 

How long will you have to wait before they confirm if chemo is happening? How did you find recovering from surgery? 

X

Hi holibob 

glad to here you are doing ok .

the lumpectomy is ok , honestly didn't feel like I had had a operation was out next day for coffee with my friend it's a really easy operation no pain only thing was washing my hair drive me mad cause I had to do it over bath and shower seperate for 2 weeks as you can't get wound wet that was only thing that annoyed me recovery is so quick , but can't drive for 2 weeks also that's the downsides .

you will be fine honestly just drink plenty of water and rest if you need to let everyone spoil you xx

Hi 

[@laraj]‍ 

Thanks for your reply, I had duct removal back in April and that was totally pain free but figured the position and size of the lump this time may be a little more uncomfortable.  So it's good to hear that recovery is going to be good. Can I ask if you had lymph nodes removed? Everything I've read seems to suggest that this is the more painful being under arm.

X

Hi holibob 

I have sent a friend request xx