Hi Rosie - i hope your doing okay? It's literally the worst feeling in the world to find this kind of stuff out about ourselves isnt it? Im sorry your going through this, its a very very scary place to be the not knowing. Do you know what your next steps are? You aren't alone xx

Hi thank you soo much for your very kind thoughts 

I'm petrified..

crying most  of the time !

my husband is recovering from open heart surgery 

which was a big shock .. for us as he was very fit and healthy 

Now I'm faced with this shock scare ..

I'm convinced I've got ovarian Ca 

im waiting on the CA 125 result 

going privately next week to see gynaecologist 

for consultation and scan ..

The pain is dreadful keeps me awake at night mostly on my right 

side groin area my back feels as if I'm in labor

MRI showed it up .... as a cystic swelling !!

my heart goes out to everyone in this position 

Fear of the unknown  is overwhelming me 

RJx

Hi Rosie

So sorry yo hear you are going through this - the waiting is definitely the worst.

Anna

Its a really unpleasant, scary place to and there is literally nothing anyone can say to reassure you , I am in the same position as you but i am 30 and pre menopausal. I wish i could give you some reassurance and a hug! Is he up to date with what your going through? What an incredibly stressful time for you both.

i went for a private gyn appointment a few months ago and had a scan there. It was the best thing i ever did, even though my treatment is nhs it definitely helped in terms of speeding things up xx

Hi Rosie    l had complex ovarian cysts removed just before Christmas l am over 65 and they were found unexpectedly during a colonoscopy l had left sided abdominal pain. They were 6 cm and 4 cm l saw gynaecology oncology ect had ultrasounds MRI scan and had surgery 8 weeks later. They took over 4 hours removing extensive adhesions it took me a while to get back to normal but the multiple biopsies were benign  

l hope you have a similar outcome try to relax not easy , l know take care 

Susie 

Thank you 

Im

hoping the scan will show it's not cancer 

if that's possible ..?

I think the cyst and ovary will have to be removed 

due to my age and post menopausal 

it's not required anymore !

What treatment are you waiting for !?

I hope you don't have to wait too long x

Hi 

Thank you ..

I'm at my wits end ... 

im having terrible pain on my right side & back pain 

Along with the sharp pain is terrible .

im confused as to why I'm having pain on my right 

side .. when this 5cm cystic swelling is on my left ovary !

im having terrible digestive problems and bowel problems 

my stomach at the moment feels it's going to burst 

and urinary incontient 

My symptoms have been going on a long time 

but doctors said I had IBS plus wear and tear on my SI joints 

I'm not good at all ..  crying soo much and thinking what can I do 

RJxx

For me its such a long story, and it has honestly been one of the most difficult years of my life. I put a post on the other night as im at my wits end as well but i dont wsnt to overshadow your own concerns about yourself but feel free to have a wee read.
 

I had a 15 cm dermoid cyst but spent 5 months not knowing if i had cancer or not so i ended up paying for private scan as my symptoms went away after surgery then came back all of sudden after a few weeks. Im more of a mess now physically and mentally than i was 6 months ago and im absolutely worried ill and lost a stone since surgery.

im so sorry your going through this. Im not sure if you would find this helpful but i like to find out as much as i can whereas my husband couldn't even look at my scan pictures of the new lesion. The royal college of obstetrics and gynaecologists have a lot of information on treatment and investigations for pre and post menopausal women with ovarian masses so it may help to look or it may not? Depends on your personality type really! I would stick to RCOG guidelines and target ovarian camcer charity information as they are reliable. RCOG guidelines are literally what the doctors use to inform their decisions about your treatment.

When is your scan? I think they are certainly able to tell you if there are concerning features for sure. 
 

have you got someone to go with you? I left mine very upset and it was helpful to have my husband with me. Also BUG YOUR GP TO WITHIN AN INCH OF YOUR LIFE. Do not apologise or not mention things. Annoy them, make them listen and not fob you off. Be an advocate for your own health - i have learned this the hard way the last few months and its drianing but it must be done xxx

Hi 

Sorry late reply .. but I've been so emotional and stressed 

crying most days ..only ever thinking the worse outcome 

With the symptoms I have ... 

im not sleeping well either 

GP is useless .. I've only recently moved house and had to change GP .. if I had of known I would never of moved house!!

well I would of kept within the boundaries ...which I thought I had

They were brilliant and I had bern with them all my life 

Well I persuaded them to do the blood test 

CA125 .... which has come back normal ..,

I don't know if that helps my anxiety  

I see gynaecologist on Monday the 8th 

He will do the Transvaginal scan them ..

what happens about the cyst ‍♀️
I don't know ... 

I feel 5 cm is quite big and the pain I'm having 

is terrible all my symptoms are related to cyst 

?if it's cancer ..

Hopefully he will remove it .. my anxiety 

would let me settle knowing it there 

I can't keep up with the symptoms they are getting worse .

How are you getting on with the doctors 

do you feel any better 

you certainly have had a terrible time 

did you have a CA125 test ?