Very high FIT test result

Hello all,

I'm a 50+ man and got the result of my second FIT test yesterday. To be honest am feeling a bit freaked out - actually majorly freaked out. Reason for the test was that I've had intermittent mild abdominal pain for about 6 months. I assumed it was a muscular problem when clearly it wasn't.

The result of the first test was over 900 and the second around 1000. So there's little doubt there's blood in the samples (even though none was visible). My GP has made an urgent referral to the colorectal clinic at the hospital. It's hard not to google things like this when you're in shock (have tried to only read stuff from reputable sources), and I understand that there are a number of things that can be causing blood in the stool: ulcers, polyps, hemorrhoids as well as cancer. Though looking through different forums, I've not seen anyone report figures like this and things feel pretty bleak today.

Not really sure why I'm writing this, as I realise nothing new will be known until I get the referral/have colonoscopy. Maybe it's just to know that other people are going through the same thing, or even just understand what I'm talking about. Thanks for reading :)

B

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  • In case it helps anyone: have had colonoscopy and two sigmoidoscopy (feels similar) and about 10 polyps removed since the high FIT test. None of the polyps have been cancerous.
    So just to say that a high fit test result doesn’t always mean the worst. Take care

  • So grateful to come across this note and appreciate your sharing it. I've just had a positive FIT test of over 400. Been Googling far too much and got myself in a bit of a state. 
    I have a colonoscopy booked for Sunday 30th and you're all right. The waiting and thinking is horrific for both me and my husband. 
    Good and reassuring to hear lots of you get positive outcomes. 

  • Aww Flower that sounds awful and such a worry for you, As Everton says let’s hope the next ones ok, I have everything crossed for you.

    Also fingers crossed for you Everton and good if you have it done again, keep us informed x

  • Offline in reply to SueCC

    Hello everyone. Just googling after having a call from my GP advising me that there was blood in my fit test. I've gone on to my NHS record and can see that the reading was 39. I had three fit tests in the last year or so and they were all like two or three. This one is suddenly 39. My bowel have been weird for about 2 years... I'm regular as clockwork every morning but some days it can be like a mudslide (sorry for graphic description !) and other  days it can be perfectly normal!.

    I went for a colonoscopy 18 months ago due to the erratic nature of my toilet needs and habits and was diagnosed at that time with a couple of diverticuli and an internal hemorrhoid and a very small polyp just inside my rectum. 

      Was told to keep an eye on it!!!  ... Not sure how I was meant to do that! Anyway, I'd noticed recently that I was quite sore underneath and when I'm wiping there are tiny spots of fresh red blood. So I decided to see my GP last week. I mentioned to her about the polyp that had been spotted at the last colonoscopy and asked if she could examine me ..she did an internal examination but couldn't feel any polyp although I was told there was one there 18 months ago. She suggested a fit test and prescribed some steroid cream for the sore area around my perineum.

    Then as I say I got the phone call this morning to say I've been referred for an urgent colonoscopy... And like the rest of you. And even though I know I shouldn't, I went straight to Google  ... And scared the living s**** out of myself!;)))

    So here I am now waiting for the colonoscopy. I'm trying not to worry based on it being quite a low reading and have had no other nasty symptoms like weight loss, pain, back pain, loss of appetite etc  But I do know that there is always the chance that it will be. My dad passed away of bowel cancer at the age of 71 and I have just turned 60 although I feel 22 still,

    I'm just praying that if it is anything nasty that it is being caught before it's had a chance to spread. 

    My heart goes out to flower.... I pray that they have managed to zap everything with the radio therapy for you and that your chemo goes without too much distress. And for anybody else, waiting for a colonoscopy, good luck to you all, let's keep in touch and pray for each other 

  • Offline in reply to Joysu

    Yes it is a low reading but it’s still a worry isn’t it, you’ve had a colonoscopy not all that long ago so I wouldn’t worry too much. Why wasn’t the polyp taken off when they saw it last time?. Your symptoms are very much like mine ( I also have a pile that often spots of blood when I wipe) Hopefully everything will be fine and if it’s on the 2ww you won’t have long to wait. Good luck xxx

  • No results.  After my ct scan I was referred for colonoscopy. Still no letter regarding findings of ct scan.

    Anyway I  followed prep to the letter, went along to appointment but procedure didn't go ahead because prep hadn't cleared bowel!. I was asked if I suffered with constipation,  told them yes and it was on my hospital records.  Anyway now I have to follow 5 day diet, with daily laxative then prep again!

    I am still waiting to hear when that will happen.  Managed to get through on telephone to hospital,  only to be told its a wait for department to contact me.  Then I  was asked why I went out of my nhs area for colonoscopy.  I was given the appointment because I was urgent referral and no appointment available nearer.

    So that has caused delay because my health authority has to contact other NHS authority to find out???

    Crazy situation!!

    Kind thoughts going out to everyone on this chat site.

  • Offline in reply to SueCC

    Thanks Sue.   The polyp was tiny apparently, not big enough to remove.  And it wasnt there on my colonoscopy 2 years previously.

    My bowels were virtually immaculate in 2021 at my first colonoscopy! Not a thing to mention.  My stools were near on perfect . But the last two years everything has changed...god knows whats going on...!

    And now i have so many problems on the outside too!  Really hope to get to the bottom of it (excuse the pun!) 

  • Still nothing from hospital regarding new appointment for colonoscopy.  I have rang but all I get is "I will find out what's happening and get back to you"

    So much for the urgent referral?

    I am supposed to be meeting consultant on 1st December.  Guessing to discuss results of colonoscopy (that did happen) again I rang and asked whether appointment with consultant will go ahead and told "not sure, will have to find out and get back to you!

    Frustrating 

  • Ahhhh gosh that's so frustrating! Keep pushing them.  Have you been for the Colonoscopy yet?  Are you still waiting for CT results?  It's ridiculous how they are delaying things.  Keep us updated x

  • I haven't been on this chat for a while but was wondering how you were doing.  Sounds like you are going through a really rough time with the chemo. Hoping and praying things will improve when they put you on the lower dose.  They might do that and see how you are and if all fine, maybe put you back up on the initial dose.  Our bodies get such a shock from the chemo and maybe need time to adjust. Thinking of you.  It's my 83 year old mum's turn to go for her colonoscopy.  My dad went a few months ago, and as mentioned earlier in this chat, I went on the 7th November to have mine.  My mum didn't want to go to the doctor. She doesn't like them at all.  She has lost some weight but her appetite has reduced but she still eats cakes, and rolls etc.  My dad persuaded her to go to the doctors which she did a couple of weeks ago.  The doc never mentioned her blood results so assume they are fine but says she will be referred for a colonoscopy.  We are all worried but will get through things with the support of family and the amazing people on this chat.  Keep me updated on how you are doing xx

  • I feel so bad for elderly people having to go through colonoscopies. I had to take my 95-year-old auntie To the doctors recently because she had had problems, and she had to go behind the curtain and be examined by a very young male doctor... I really felt for her.

    Hope everything's okay for your mum. 

    I'm still waiting on my colonoscopy appointment since over a week ago,!;)

  • Absolutely agree.  It's hear breaking to see that they have to go through doctors and colonoscopies etc at an elderly age.  it's more traumatising for them.  Awwww God bless your precious auntie.  Feel for them too.  Thank you. I hope all ok too.  Keep us updated on your progress with your colonoscopy appointment.  It took me a month to get mine from the date my doctor received my FIT result.  Apparently here in Scotland, the Scope department within the NHS is really efficient which I must agree it is, but the rest of  NHS Scotland it a bit of a shambles.  Those were my doctor's words. x

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  • Absolutely agree.  It's hear breaking to see that they have to go through doctors and colonoscopies etc at an elderly age.  it's more traumatising for them.  Awwww God bless your precious auntie.  Feel for them too.  Thank you. I hope all ok too.  Keep us updated on your progress with your colonoscopy appointment.  It took me a month to get mine from the date my doctor received my FIT result.  Apparently here in Scotland, the Scope department within the NHS is really efficient which I must agree it is, but the rest of  NHS Scotland it a bit of a shambles.  Those were my doctor's words. x

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