Very high FIT test result

Hello all,

I'm a 50+ man and got the result of my second FIT test yesterday. To be honest am feeling a bit freaked out - actually majorly freaked out. Reason for the test was that I've had intermittent mild abdominal pain for about 6 months. I assumed it was a muscular problem when clearly it wasn't.

The result of the first test was over 900 and the second around 1000. So there's little doubt there's blood in the samples (even though none was visible). My GP has made an urgent referral to the colorectal clinic at the hospital. It's hard not to google things like this when you're in shock (have tried to only read stuff from reputable sources), and I understand that there are a number of things that can be causing blood in the stool: ulcers, polyps, hemorrhoids as well as cancer. Though looking through different forums, I've not seen anyone report figures like this and things feel pretty bleak today.

Not really sure why I'm writing this, as I realise nothing new will be known until I get the referral/have colonoscopy. Maybe it's just to know that other people are going through the same thing, or even just understand what I'm talking about. Thanks for reading :)

B

Parents
  • In case it helps anyone: have had colonoscopy and two sigmoidoscopy (feels similar) and about 10 polyps removed since the high FIT test. None of the polyps have been cancerous.
    So just to say that a high fit test result doesn’t always mean the worst. Take care

  • So grateful to come across this note and appreciate your sharing it. I've just had a positive FIT test of over 400. Been Googling far too much and got myself in a bit of a state. 
    I have a colonoscopy booked for Sunday 30th and you're all right. The waiting and thinking is horrific for both me and my husband. 
    Good and reassuring to hear lots of you get positive outcomes. 

  • Ahhh gosh so sorry to hear about your diagnoses.  You are so right.  I am praying for you.  I know you are going to beat this!!! I am trying to live my life normally.  I have an 9 year old son who I just live for. I will let you know how the colonoscopy goes.  I am on the waiting list and it could take up to 4 months before it's done xxx

  • Because my trst was high i was referred for a 2 week colonoscopy, if you are on a waiting list which could take up to 4 months I would  imagine your trst result was marginally up which as many say could be polyps etc. I know that feels like a long wait, but they must be of the opinion it is low enough to be ok.

    Just keep an eye on yourself in the meantime & if you notice anything different in you bowel habits or darker stool/ visible blood go back to your doctor rather than wait the 4 months. 

    I am fighting this with all I have, my children are older but have 4 grandchildren, youngest is 1 on 1st chemo day. I have to fight for all of  them, my husband, parents, sisters & myself. Daily Snapchat from all my little bug carriers are going to help me focus my mind though my chemo  so I can see them properly when my immunity is back up xxx

  • Best of luck with fighting this wretched disease. 

  • I just received a call from the hospital in Glasgow and they said the next available appointment is 7th November.  I am very glad the appointment has been scheduled and can get it over and done with and sorted if anything needs sorted.  Thinking of you and please keep us updated on how you are doing through your treatment xxx

  • Hope your appointment on 7th Nov goes okay and results come through quickly. 

    I had ct colongraph on 20th October and waiting for results is hard. I feel fine and sense things will be okay but need to know either way.

    Its good have a forum like this to discuss feelings with  people experiencing the same thing. I have just joined so not sure what you have been going through but pray the outcome is positive. 

  • Hi Shaz, I hope your sppoint.ent has gone ok today, please do updaye me when you are able to xxx

    I have had my first chemo infusion today. All has gone ok today other than me having a little panic atta k when I was leaving the hospital. I think some cold air caught my breath & then I panicked at the thought of going home with my husband, not having any medics around. Still i am ok & being waited on.

    Take care xxx

  • I can’t believe this post is still going, I posted about my husband over 2 years ago, he was ok had 6 polyps removed. He’s still doing well. Now it’s my turn waiting for a colonoscopy under the 2ww, scared but not as bad as I was 14 years ago today when I was diagnosed with bladder cancer, I came through that and if need be will do again. Good luck to you all xxx

  • You too, hope all goes well with you colonoscopy xxx

  • Hello Flower. My appointment went well. I am so glad it's over. They found diverticulitis and mild inflammation, which they took samples to biopsy. They said it looks like microscopic colitis. The colonoscopy was a wee bit uncomfortable but took deep it was ok. I was actually crying to one of the nurses as they took me into the ward. They made me feel at ease. The NHS staff  in Glasgow are soooo amazing. I am so glad that your first chemo infusion went ok. You will definitely get through this. You have a fighting spirit, and I will be on this chat here to cheer you on!! Xxx

  • Have you had your results yet? 

Reply Children
  • Not really,  I had phone call to say letter been sent but a week later and still not received it? But was told something suspicious showed up on scan and now need a colonoscopy.  Booked in for Monday 17th November.  So its an anxious waiting time. Hoping its something that can be sorted without too much fuss 

  • Thinking of you for 17th. Shall has had good news, so hoping you will do too. Try to relax as much as possible  xx

  • Thinking of you for the 17th November. It is an anxious wait. The advice and the comfort I got from this chat helped me through the process. People on here are just so understanding and compassionate and have their own stories to tell. Let us know how you get on on the 17th Nov xx

  • Thank you for caring. I will report back after my colonoscopy on the 17th

  • Just received a phone call I have my colonoscopy on 16 November at Scunthorpe (anyone been there) just waiting for a phone call to pick up the drink thingy from Grimsby, was hoping the colonoscopy would be nearer home but hey I’ll go with that. Good luck to us all xxx

  • Yes wishing you all the very best. I feel a little more optimistic now because spoke to nurse today (still not received letter) and ct scan picked up thickening of transverse and sigmoid colon which could be caused by a number of conditions which are treatable. 

    Good luck with colonoscopy prep. Yuk

  • How are you feeling after colonoscopy today.  Been thinking about you. 

    I am on horrendous prep, not nice

  • Hi and thanks for thinking of me, I found the prep to be ok-ish not as bad as I thought,  In the fridge for an hour drinking  through a straw 4 slurps of it then a mouth full of Lucazade worked well for me. Apart from 6am one, prep was ok but then I drank the water too fast so I could get back in bed and brought the whole lot back up, even so the bowel was clean BUT I never want that again, it took ages and so so painful but think that’s just me as the lady who went in after me was ok and back out before too long so don’t worry about that. One polyp took off it wasn’t cancer so now it’s over I’m sat at home very happy. 
    Will you let me know how you get on and I’m sending you all the best, take care it’ll all be over very soon xx

  • Colonoscopy didn't happen.  I followed all the diet restrictions prior and took the disgusting solution as directed but bowel not cleared enough! I was disappointed because I had geared myself up for procedure and then made to feel it was my fault.  

    Now they want me to take a laxative for 5 days with a restricted diet, then the awful prep solution again!

    Really don't want to do it. Also, nurse at colonoscopy centre said it looks like I have diverticulitis and one small polyp??.  Hearing this is good but only makes me not want to go through it all again. 

    It really is dragging out now and I feel if it was serious then I would be experiencing more symptoms by now.

  • My colonoscopy this morning didn't happen.  Even though I  followed the diet and drank the awful prep solution as instructed,  my bowel wasn't prepared enough for colonoscopy to go ahead. I had geared myself up for this morning procedure,  so feel very down hearted.

    Now they want me to take a laxative for 5 days, follow a restricted diet and then take the prep solution again!!

    I just don't want to do it, especially after a nurse this morning told me its looking like diverticulitis.??   I really don't want to go through it all again.