Scared Ovarian Diagnosis

Hi, I'm new here and petrified. I haven't had a cancer diagnosis yet so you may think I shouldn't be hear but I'm petrified. I've had bloating for about 4 weeks and after routing blood test an elevated CA125 of over 300. I'm so swollen round my middle and now think it could be ascites not bloating and I feel so stupid and worried that might be a sign I have more advanced cancer. I've got an appt on Monday morning with a gynaecologist. I have a 5 year old and can't even think about what this may mean. Anyone who has been through this or has any advice welcome. Thank you x

  • Sorry I didn't reply, mine started with constipation then my period stopped and I started getting swelling in my abdomen (that all happened about the same time) x

  • Hi everyone,

    As I thought, no information at the scan, I was just told that my doctor would have the results in 7-10 days. So begins another wait.

    I hope you're all managing to stay positive.

    JM

  • Nightmare waiting, fingers crossed all is ok xx

  • Hi, 

    I rang on the 1st Apr chasing biopsy/ct/mri results and was told they weren't all in yet.

    Called again on the 5th and results were all in and was with the consultant for review. My daughter was 18 on the 6th so luckily that has kept me busy and we are away this weekend so hoping that when I get home tonight there will be a letter waiting for me

  • I've chased my biopsy today, it's still not in but consultant has said she will chase the lab. Not sure how much more waiting I can take and worried the fluid in my andromeda will build again. I hope your daughter had a lovely birthday tink, sounds like a great distraction. Fingers crossed for the best results.  X

  • Thanks AcW123

    I received a letter today with my appointment to see a gynaecologist oncology consultant on 6th May. This basically confirms what I was thinking already. 

    Anyway his secretary has called this afternoon to say a space has become free tomorrow morning at 9.30am so I'm off to see him tomorrow morning x

  • Hi Tink,

    Fingers crossed for the best possible outcome tomorrow xx

  • Yes fingers crossed for the best possible outcome and thank goodness for the cancellation. So many people have said to me that knowing what is wrong and having a plan is actually a relief. Thinking of you and wishing you luck for tomorrow xx

  • Thank you. 

    Well it wasn't the best outcome and I agree knowing seems much better then not!

    My biopsy from the womb came back as pre cancerous but due to tumours on the ovaries the consultant explained it was more than likely cancerous and was pushing on my pelvic wall and other organs. 

    I'm booked for a full hysterectomy, bowl disection on 25th may with the possibility of gallbladder, appendix and lymph node removal amongst other things to also be removed. No actual cancer part or stage can be diagnosed until after the op.

    The consultant will do it all himself with a team and has said it is major surgery and may need a stoma bag fitted.

    As scary as it all seems I feel better knowing them not.

    Bring on the 25th x

  • Oh Tink!

    You must be in a pickle, not knowing quite what to feel or think, and what a massive amount of news to take in.  From everything I've read, needle aspiration to take tissue for biopsy is no longer offered in order to reduce the risk of cancerous cells seeding along the path of the needle and going on to develop cancer in other tissues in the future, so not being tested until they actually operated on now seems to be the normal now.

    My oldest daughter has MS and is now in a wheelchair permanently.  She had a stoma fitted last year and it certainly wasn't as bad as any of us imagined and she has adapted really well.  I know it's not the same situation but I hope it helps.

    I've also read that a stoma may just be a temporary measure, do you know if that's the case?

    How are you feeling?  Do you have support available? Please know that we're thinking of you xx

    JM