Scared Ovarian Diagnosis

Hi, I'm new here and petrified. I haven't had a cancer diagnosis yet so you may think I shouldn't be hear but I'm petrified. I've had bloating for about 4 weeks and after routing blood test an elevated CA125 of over 300. I'm so swollen round my middle and now think it could be ascites not bloating and I feel so stupid and worried that might be a sign I have more advanced cancer. I've got an appt on Monday morning with a gynaecologist. I have a 5 year old and can't even think about what this may mean. Anyone who has been through this or has any advice welcome. Thank you x

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  • Hi-I have also just recently been told the devastating news after my blood results came back as high.. I had an mri/ ct scan pretty much straight away where they found a tumour on my left ovary also bowel and adrenal problems.. I'm so sorry.. please don't worry.. I know it's very difficult... and scary... I'm here if you need to chat..xx

  • I saw the consultant yesterday who asked for urgent CT and MRI scan. I am beyond petrified as I keep reading about ascites (I have a swollen tummy and she said she could see fluid around the pelvis). Did you have the swelling? What are your next steps. I've got a two week wait for results and not sure how I will get through it. I'm not sleeping, crying, worrying about other symptoms I seem to have developed. If it was only the high reading I think I would be less concerned but I'm worried the ascites is a sign I have advanced cancer.

  • Hi Lolly,

    welcome to our little thread.  Can I ask roughly where you are geographically? I'm in Northamptonshire. I've got my ct scan tomorrow and the thought of having to wait another three weeks for the results is rather daunting.  How are you coping? Has your GP offered something for pain management? If not, it might be worth reaching out.

    Keep in touch.

  • Hi im in the west of scotland, im on pain medication for back problems so have 30mg codeine, i work with kids and find that to make the pain a little worse, but just want to keep busy, hope all goes well for you tomorrow x

  • Hi Lolly and welcome to the worst club ever the waiting is horrendous, I chased my biopsy results today and just had a reply back from consultant to say she would contact me when she had them. I had some reflexology last night to try and relax me a little, did help with sleep but back to worry again today. It's the last thing you think of before you sleep and the first thing when you wake up...well it is for me. How is everyone else getting on? Tink have you had your results? X

  • Sorry I didn't reply, mine started with constipation then my period stopped and I started getting swelling in my abdomen (that all happened about the same time) x

  • Hi everyone,

    As I thought, no information at the scan, I was just told that my doctor would have the results in 7-10 days. So begins another wait.

    I hope you're all managing to stay positive.

    JM

  • Nightmare waiting, fingers crossed all is ok xx

  • Hi, 

    I rang on the 1st Apr chasing biopsy/ct/mri results and was told they weren't all in yet.

    Called again on the 5th and results were all in and was with the consultant for review. My daughter was 18 on the 6th so luckily that has kept me busy and we are away this weekend so hoping that when I get home tonight there will be a letter waiting for me

  • I've chased my biopsy today, it's still not in but consultant has said she will chase the lab. Not sure how much more waiting I can take and worried the fluid in my andromeda will build again. I hope your daughter had a lovely birthday tink, sounds like a great distraction. Fingers crossed for the best results.  X

  • Thanks AcW123

    I received a letter today with my appointment to see a gynaecologist oncology consultant on 6th May. This basically confirms what I was thinking already. 

    Anyway his secretary has called this afternoon to say a space has become free tomorrow morning at 9.30am so I'm off to see him tomorrow morning x

  • Hi Tink,

    Fingers crossed for the best possible outcome tomorrow xx

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