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CIN3 spread to Vaginal walls

Ellen77
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So having a bit of a meltdown! First smear test came back positive for high risk HPV and severe cell changes. Lots of symptoms to go with it too.

Went in for colposcopy, biopsy with the intention of a LLETZ to be done to remove it the same day. 

Colposcopy dye showed the abnormal cells covered the whole cervix and that it has spread to the vaginal walls surrounding and further down so they decided best to put me under to remove. 

Anxiously awaiting biopsy results but wanted to ask if anyone else had had similar and it not come back from biopsy as cancerous? There isnt much on the internet in terms of CIN spreading like that.

I am awaiting a date for surgery to remove it as they cant do a LLETZ on the walls apparently due to the walls being much thinner than the cervix.

Know I should probably wait for the biopsy result, but mind is running away with trying to understand how it could spread like that without it being more advanced... 

Any advice appreciated ️

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    Hi Ellen

    I've had troublesome smears since my first one at age 25. Like you I had CIN 3 on my cervix and I was diagnosed with HPV. This spread onto the wall of my vagina....this is called VAIN and is graded in the same way (1, 2, 3). I had a general anaesthetic and had this removed as a day case. It came back as VAIN 3 which like CIN 3 is high grade changes but not cancer. Once this was removed my consultant just kept an eye on me and had me back for smears every 6 months.

    Unfortunately last October I was diagnosed with Vulva cancer. It's like it's making its way out of my body lol. So far I've had 2 ops and have just started radiotherapy and chemotherapy.

    I noticed that your post is from a few months ago so hopefully you've had your results. Fingers crossed everything turned out okay for you. I'm here if you want a chat.

    Take care. Xx

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    Hi Ellen

    I've had troublesome smears since my first one at age 25. Like you I had CIN 3 on my cervix and I was diagnosed with HPV. This spread onto the wall of my vagina....this is called VAIN and is graded in the same way (1, 2, 3). I had a general anaesthetic and had this removed as a day case. It came back as VAIN 3 which like CIN 3 is high grade changes but not cancer. Once this was removed my consultant just kept an eye on me and had me back for smears every 6 months.

    Unfortunately last October I was diagnosed with Vulva cancer. It's like it's making its way out of my body lol. So far I've had 2 ops and have just started radiotherapy and chemotherapy.

    I noticed that your post is from a few months ago so hopefully you've had your results. Fingers crossed everything turned out okay for you. I'm here if you want a chat.

    Take care. Xx

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