CIN3 spread to Vaginal walls

So having a bit of a meltdown! First smear test came back positive for high risk HPV and severe cell changes. Lots of symptoms to go with it too.

Went in for colposcopy, biopsy with the intention of a LLETZ to be done to remove it the same day. 

Colposcopy dye showed the abnormal cells covered the whole cervix and that it has spread to the vaginal walls surrounding and further down so they decided best to put me under to remove. 

Anxiously awaiting biopsy results but wanted to ask if anyone else had had similar and it not come back from biopsy as cancerous? There isnt much on the internet in terms of CIN spreading like that.

I am awaiting a date for surgery to remove it as they cant do a LLETZ on the walls apparently due to the walls being much thinner than the cervix.

Know I should probably wait for the biopsy result, but mind is running away with trying to understand how it could spread like that without it being more advanced... 

Any advice appreciated ️

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  • Hi Ellen and welcome to the forum.

    I'm sorry the cell changes couldn't be removed at your colposcopy but fingers crossed it won't be long until an appointment comes through for your surgery.

    It is hard to keep the mind and those nervous thoughts under control when waiting for results but I hope this article on how to cope with waiting for news will help.

    I'm sure some of our members who will offer their support and advice to you soon but our team of cancer nurses are just a phone call away on 0808 800 4040, Monday - Friday between 9a.m - 5p.m if you'd like to talk things through with them as well.

    Kind regards,

    Steph, Cancer Chat Moderator

Reply
  • Hi Ellen and welcome to the forum.

    I'm sorry the cell changes couldn't be removed at your colposcopy but fingers crossed it won't be long until an appointment comes through for your surgery.

    It is hard to keep the mind and those nervous thoughts under control when waiting for results but I hope this article on how to cope with waiting for news will help.

    I'm sure some of our members who will offer their support and advice to you soon but our team of cancer nurses are just a phone call away on 0808 800 4040, Monday - Friday between 9a.m - 5p.m if you'd like to talk things through with them as well.

    Kind regards,

    Steph, Cancer Chat Moderator

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