Cin3

Hello ladies

Im going around in circles in my head, and came to this forum to see if anyone can shed any light 

The other week i attended hospital for a smear test on the back of a 111 call I made for some symptoms I've been getting , such as pelvic pain, lower back ache ,hip pain and some shooting pains in what seems My vagina 

I was asked to go to for a colposcopy , at the colposcopy the nurse examined me ,put some solution that I can only explain as a vinegar solution on and had a look in my cervix , a smear was taken only and no biopsys as far as I'm aware. 

A few weeks have gone past and I received my results earlier last week , my smear has shown 

High grade dyskaryosis cin3 and have been asked to go for a loop procedure,

For the last however many days , because I have a very severe anxiety disorder I've convinced myself that I have cancer of the cervix.

I've spoken to  two doctors, macmillan nurse and the hospital themselves who took my smear test and they are all telling me I do not have cancer ,  I understand my severe anxiety is playing havoc , but everywhere I look on Google and forums I'm getting increasingly more scared because some women are reporting having CIN3 and after the leep procedure they are waiting on results again

I'm at a total loss what to think , and have never been so confused in my life , can anybody please explain to me what exactly is going on.

 

  • Hi anxiousemma

    CIN3 is not cancer , but is an abnormality of the cervical cells which needs to be removed, which is done by the loop procedure. The solution put on your cervix during the colposcopy is to identify these areas of abnormal cells.

    The cells which are removed are sent for analysis to confirm that these cells are definitely CIN3 and have all been successfully removed, so yes, you need to wait for results again after the procedure is done. It is possible that some ladies may have to have the procedure repeated if all the cells haven’t been removed. 

    I appreciate that your anxiety is making you think you may have cervical cancer, but I would be reassured by the doctors telling you that you don’t. It is never a good idea to use google in these situations as the information there may not apply to you and will likely fuel your anxiety further. 

    Hopefully you will have your appointment for treatment soon, and everything will turn out well. x

  • Hello 

    Minska 

    Thankyou for your reply you put my mind at rest this morning 

    I'm due to be having this procedure within the next 3 weeks as today I've received my surgery appointment and has been put through as urgent , which again has rang my alarm bells with anxiety 

    However I am confused because I've now been told I won't be having a loop excision and il be having a cone biopsy.

    Is this the Same procedure or is this somthing different ?

    Having mixed information from all these letters at the moment  I really wish I was more educated on this as the letters don't explain anything much atall

     

     

  • Hi Emma

    Try to look on this as positive-you won’t have to wait long for your procedure.

    The cone biopsy is not the same as the loop excision. It removes a cone shaped portion of the cervix, so more than the loop and it can remove tissue higher up in the cervical canal. 

    I don’t know why there is so little information and explanation given to women about these procedures. as it just increases everyone’s anxiety levels. x

  • Hi , I recently had a lletz treatment on the 6th January for cin3 and have just received the results (2weeks later) and it's sending my anxiety into overdrive.  It states cin3 which have mostly been removed.  Does that mean there wasn't clear margins or didn't they get them all. Literally want to cry with the uncertainty. Have telephoned for clarification. 

    The letter states I will have to go back in six months not to the GP. Anxious 6 months ahead. 

     

    Have you had yours yet? 

  • Hi emma

     

    i have had a very similar experience, I had a smear in November which came back positive and high grade dyskarosis. I had a colposcopy and the dr said it looked to him like invasive cancer. 
    i was and have been in bits waiting for my biopsy results to come back which said cin3 and as I had the lletz I have to go back in 6 months. It's a relieve to be told that it's not invasive cancer but it's still worrying and I hate all the waiting. 
    i hope everything goes ok for you and when you have your 6 month check I hope all is ok for you too. I'm anxiously waiting for mine xx

  • Hi 

    Em sim 

    The waiting is horrendous it really is and i sympathise with you a million percent , I'm also with you in spirit through this time as I'm going through exactly the same thing as you myself.

    Please keep in mind that you have been told its NOT invasive cancer , this means you don't have cancer 

    Your procedure may have to be done a few times in order to get rid of these bad cells

    Ive read a cone biopsy is more effective than a lletz because it takes more of a portion of tissue that contains this cin3 , but please don't this information as truth I'm just a average person who constantly googles since this diagnosis to which My mental heath is off the scale.

    Can I ask if you have any symptoms with this cin3 if you have any , so we can compare perhaps?

    My story has been very quick and everything's been marked as urgent I absolutely can relate to your feelings 

    Life seems to be on hold,  you will get through this and I absolutely wish you light at the end of it all 

  • Hi

     

    yes absolutely it is just a constant in the back off your mind all the time it's the what ifs and what if they were wrong etc.

    i actually didn't have any bleeding as I have the implant and I haven't had a period since I got it. 
    i used to be on the mini pill which didn't agree with me so I chose the implant.

    sex can sometimes be uncomfortable but I just put that down too having two children with complications and both vaginal births. 
    i will absolutely support you too I'm always here if anyone ever wants to have a rant.! 
    i have back pain but I have had that since I had an epidural it's never been right

    how about you? Xxx

  • Hi

     

    good thank you been off work today so we have spent the day with the kids and cooking lol helps take your mind off things for a bit. You? Xx

  • That's good to hear , I'm pleased your doing things that take your mind of it ,being around your kids will definitely help 

    I'm on Facebook if you want to connect it's totally up to you , I've tried to find a way to private message on this forum but I cannot work it out. Lol