Hi All!

I hope everyone managed to get at least a little bit of respite from the fear and anxiety this weekend.

Vicki - how was the beach hut? Hope that fresh air did the trick for you.

Take care of yourselves xx

I took the kids to the cinema on Saturday, and then had my sons 4th birthday party on Sunday. So I've managed to keep quite well distracted!! 
 

The breast clinic just called, and they've moved my results appointment to 9:40 on Thursday, instead of 11:40. So at least I don't have to worry all morning. It will be school run, then appointment!! Praying for benign results!! Xxx

Damn right Vicki!  xx

Onchotype test Vicki

x

x

Hi Vicki. 

I think a meltdown following the evening you had is entirely reasonable! I have to say you have such an amazing kick *** attitude and I wish you all the best with your treatment plan!

Go and beat this thing! And you Mary! Such strong women - you can do this!

I'm doing ok thank you. D-day tomorrow so come what may!

Take care all of you awesome ladies xx

Hi PositiveT

I saw your post on another thread saying that you'd been diagnosed with DCIS today. So sorry to hear your news. Just wanted to say that I'm thinking of you.

xx

Hi Bubblesmum. 

Thank you!

Yes diagnosis of DCIS confirmed today. Luckily no invasive found from biopsy.

Having an MRI in the next week or so and then booked in for lumpectomy and bilateral reconstruction on 10th March. I have rather large boobs and they are planning on taking quite a significant area out so consultant said they would even them up so I'm not too wonky!

Feeling OK. Relieved to know what's what and to have a plan in place!

How are you feeling two days post surgery? Hope you're doing OK xx

Hi 

At least you have a plan in place and some positive action taking place. I think the worst bit is waiting for the biopsy results. Once you've got a diagnosis things start to happen and now you have a surgery date you can plan around it. Sounds like you'll end up with a good look!

I feel fine today. Hardly any pain - got dressed and pottered about and sat in the garden in the sun which was lovely. I still feel quite tired but I'm enjoying being cooked for abs drinking a glass of wine. Trust me - the worst bit is before the op not after!

x

Hi, just thought I'd log on to see if any news and I see you have been diagnosed with DCIS. Do you know what grade? I'm really pleased you don't have any invasive, that is great news. I expect you are relieved you know what is what? Xxx

Really glad to hear you are doing well! And yay for a nice glass of wine! 

Thanks Vicki. 

Yes very much a relief that no invasive. Plan is in place so just onwards and upwards from here! The waiting was definitely the worst! 

Apparently it's a mixture of low and intermediate grade so that's positive too.

How are you doing lovely? X

Thanks Vicki. 

Yes very much a relief that no invasive. Plan is in place so just onwards and upwards from here! The waiting was definitely the worst! 

Apparently it's a mixture of low and intermediate grade so that's positive too.

How are you doing lovely? X

Hi PositiveT

It's good news that they are low and intermediate. Do you know how big they are?

x

That's the one thing I forgot to ask!!

So no idea!!

I will ask next time I see the doctor.

Xx

Hello

I'm OK. Had to have mammogram and then a biopsy of my neck this morning then i saw the consultant andbthe decision has been made to start me on chemotherapy first, so seeing oncologist on Tuesday to find out how often how long what dose I suppose? I'll be having hormone therapy at the same time. I'm definitely going to do the fasting before chemo as I've read positive things about doing that. 

I'm not going to use a cold cap, but I am having a hair replacement system made so I don't have to look at myself bald!! It's the one thing I can control at least hope all of you lovely ladies are doing OK. Xxx

Hi!

Good to hear your treatment plan is coming together and I hope your meeting with the oncologist goes well on Tuesday. I've not heard of hair replacement system but it sounds really positive!

I remember when my mum lost her hair from chemo......she bumped into my then boyfriend on the landing one night (in just her knickers - don't ask me why she was wandering around half naked!! ) and instead of covering her boobs she put her hands over her head!! He was mortified haha!!!

You've got this Vicki! Sending lots of love xx

Oh bless your mum and how funny it was the head that was grabbed instinctively!! 

Thanks my dear. I'm certainly trying to deal with this. Xxx

Evening ladies!

Just thought I'd check in to see how everyone is doing.

Sending hugs x

Hello

How are you doing? So my update is that I saw my oncologist yesterday and start chemo on Tuesday. I also had the results of my neck biopsy tonight and it's negative thank goodness!! I cried with relief. So it's only in my left boob and the invasive nodules are both less than a cm. I'm triple positive so hope to respond well to chemo and hormone therapy. My chemo qill be every two weeks for 8 weeks and then I'll be checked and then move on to a different chemo drug once weekly for 12 weeks. 5 months in total. 

Xxx

Hi Vicki, 

So good to hear from you and so pleased that the neck biopsy was negative. And triple positive is great news too. Wishing you all the best for your first chemo. You've got this!

I'm doing fine. Still waiting for MRI date but expecting it to be next week then assuming all as expected will be having my surgery 10th March. Fingers crossed.

It's my birthday next Thursday so hoping I will be able to have lunch with my mum and sis rather than in an MRI but we shall see!!!

Thank you for your update! Sending lots of love xx

Hope everyone is doing well.  
I had the results of my second biopsy yesterday and thankfully it was DCIS low grade and no invasive so that's reassuring I suppose.  It would have been better if they were benign but I kind of knew they wouldn't be!

They are sending all my pictures for a second opinion as I'm so anxious about something else being missed.  Once they hear back they will schedule surgery.

I've decided on a mastectomy as my 2 areas of calcs were wide apart and she said they could be "talking to each other".  I want to be super safe.  Surprised to hear that as long as no lymph node spread not even radiotherapy needed, just tamoxifen.

Worries how it will look but I don't fancy a reconstruction.  A relative had one and she said she looked like someone had attacked her with a machete!  Awful scarring.  I'm happy to be flat and tidier!

Anyone else had it done??   

Hi Mary, 

It's good news that the DCIS is low grade. I also had to have masectomy, as I think I told you before. It's a hard and very personal choice whether to have a reconstruction or not. I just wanted to say that my reconstructed breast is very well done with minimal scarring and certainly doesn't look like I have been hit with a machete. If you wanted to, you could ask to be seen by a plastic surgeon to discuss reconstruction options before ruling it out. They can show you photos of how they generally look. 

Good luck making your decision, I just told myself that I have to live with my choice and I wanted to be sure it was the best one for me before I finalised it. 

Virtual hugs Mickey xx ️