Hi All!

I hope everyone managed to get at least a little bit of respite from the fear and anxiety this weekend.

Vicki - how was the beach hut? Hope that fresh air did the trick for you.

Take care of yourselves xx

I took the kids to the cinema on Saturday, and then had my sons 4th birthday party on Sunday. So I've managed to keep quite well distracted!! 
 

The breast clinic just called, and they've moved my results appointment to 9:40 on Thursday, instead of 11:40. So at least I don't have to worry all morning. It will be school run, then appointment!! Praying for benign results!! Xxx

Oh and sorry, I've realised why you might be confused. So in addition to DCIS I also have confirmed area of invasive. Hence chemo and hormone therapy being first port of call for me most likely. X

Hi Mary 

Thank you - I do feel a sense of relief. Please let me know how you get on next week. The waiting is definitely the worst. But keeping busy helps and I'll probably be back at work by then. 
 

Ah I see Vicky.  Well now you have a plan I'm sure it will help you focus and stay positive.  I've got small invasive confirmed too so it'll be interesting what they tell me next week.  
 

Are you having any samples sent to that lab in America to get it all genetically tested?  Dammit I can't remember what it's called but I do know someone who is having it done.  Not all NHS trusts do it.  It can give a definitive answer as to whether you need chemo or can get away with just radiotherapy apparently.

The plan this weekend is def to eat cake xx
 

Is that your onco or your onch d score? I know someone who had samples sent to the US, so maybe its the same thing.

So, we are in a similar situation. We will kick cancer's butt together! Xx 

Damn right Vicki!  xx

Onchotype test Vicki

x

x

Hi Vicki. 

I think a meltdown following the evening you had is entirely reasonable! I have to say you have such an amazing kick *** attitude and I wish you all the best with your treatment plan!

Go and beat this thing! And you Mary! Such strong women - you can do this!

I'm doing ok thank you. D-day tomorrow so come what may!

Take care all of you awesome ladies xx

Hi PositiveT

I saw your post on another thread saying that you'd been diagnosed with DCIS today. So sorry to hear your news. Just wanted to say that I'm thinking of you.

xx

Hi Bubblesmum. 

Thank you!

Yes diagnosis of DCIS confirmed today. Luckily no invasive found from biopsy.

Having an MRI in the next week or so and then booked in for lumpectomy and bilateral reconstruction on 10th March. I have rather large boobs and they are planning on taking quite a significant area out so consultant said they would even them up so I'm not too wonky!

Feeling OK. Relieved to know what's what and to have a plan in place!

How are you feeling two days post surgery? Hope you're doing OK xx

Hi Bubblesmum. 

Thank you!

Yes diagnosis of DCIS confirmed today. Luckily no invasive found from biopsy.

Having an MRI in the next week or so and then booked in for lumpectomy and bilateral reconstruction on 10th March. I have rather large boobs and they are planning on taking quite a significant area out so consultant said they would even them up so I'm not too wonky!

Feeling OK. Relieved to know what's what and to have a plan in place!

How are you feeling two days post surgery? Hope you're doing OK xx

Hi 

At least you have a plan in place and some positive action taking place. I think the worst bit is waiting for the biopsy results. Once you've got a diagnosis things start to happen and now you have a surgery date you can plan around it. Sounds like you'll end up with a good look!

I feel fine today. Hardly any pain - got dressed and pottered about and sat in the garden in the sun which was lovely. I still feel quite tired but I'm enjoying being cooked for abs drinking a glass of wine. Trust me - the worst bit is before the op not after!

x

Hi, just thought I'd log on to see if any news and I see you have been diagnosed with DCIS. Do you know what grade? I'm really pleased you don't have any invasive, that is great news. I expect you are relieved you know what is what? Xxx

Really glad to hear you are doing well! And yay for a nice glass of wine! 

Thanks Vicki. 

Yes very much a relief that no invasive. Plan is in place so just onwards and upwards from here! The waiting was definitely the worst! 

Apparently it's a mixture of low and intermediate grade so that's positive too.

How are you doing lovely? X

Hi PositiveT

It's good news that they are low and intermediate. Do you know how big they are?

x

That's the one thing I forgot to ask!!

So no idea!!

I will ask next time I see the doctor.

Xx

Hello

I'm OK. Had to have mammogram and then a biopsy of my neck this morning then i saw the consultant andbthe decision has been made to start me on chemotherapy first, so seeing oncologist on Tuesday to find out how often how long what dose I suppose? I'll be having hormone therapy at the same time. I'm definitely going to do the fasting before chemo as I've read positive things about doing that. 

I'm not going to use a cold cap, but I am having a hair replacement system made so I don't have to look at myself bald!! It's the one thing I can control at least hope all of you lovely ladies are doing OK. Xxx

Hi!

Good to hear your treatment plan is coming together and I hope your meeting with the oncologist goes well on Tuesday. I've not heard of hair replacement system but it sounds really positive!

I remember when my mum lost her hair from chemo......she bumped into my then boyfriend on the landing one night (in just her knickers - don't ask me why she was wandering around half naked!! ) and instead of covering her boobs she put her hands over her head!! He was mortified haha!!!

You've got this Vicki! Sending lots of love xx

Oh bless your mum and how funny it was the head that was grabbed instinctively!! 

Thanks my dear. I'm certainly trying to deal with this. Xxx

Evening ladies!

Just thought I'd check in to see how everyone is doing.

Sending hugs x