Reassurance for triple negative breast cancer

Hi everyone

Just needing some guidance and reassurance!
Diagnosed with triple negative breast cancer this week.

Need to wait until Monday now to meet the team and hear the plan of action! Getting myself paranoid I know triple negative is more aggressive and I just want to be safe and get started!

I get the odd weird nerve tingle in my shoulder or chest and convinced it's spreading! 

I've not had MRI yet but ultrasound and mammogram looked fine for no spread so that's keeping me going!

I honestly feel I obviously got unlucky it's breast cancer but triple negative makes me feel it's so much worse and I keep thinking it's a death sentence and I'm terrified! 
 

xxx

Parents
  • Hi There 

    I don't have triple negative by was diagnosed recently with hormone positive - HER2 negative. 
     

    Just wanted to say re the shoulder and chest tingling feelings. Ever since I was diagnosed I've had those feelings too! I was convinced it was spreading by the minute once I knew I had it. I spoke to my cancer nurse about it. She said that it's really common! She said that it's recognised as being something a great number of cancer patients experience post diagnosis but that it's not something to worry about! I'm holding on to that! 
     

    I don't know if that helps atall or not :). Just thought I'd share. Wishing you all the best with your treatment - it's diagnosed. It's gonna be sorted. It's just a blip. That's my outlook. 
     

    Lots of love. Sarah xx 

  • Thank you Sarah! 
    That means a lot, I know no cancer is good but mines is more difficult to treat but I guess you have to hope it's caught early and they said it will be fine. 
    I was going to call my nurse tomorrow as freaking myself out!

    The pain only really comes when I'm stressed and thinking about it but day to day if I'm busy I can't feel anything so you are right it's probably in my head! 
     

    I hope everything is going well for you and wishing you speedy recovery 

    xxx

Reply
  • Thank you Sarah! 
    That means a lot, I know no cancer is good but mines is more difficult to treat but I guess you have to hope it's caught early and they said it will be fine. 
    I was going to call my nurse tomorrow as freaking myself out!

    The pain only really comes when I'm stressed and thinking about it but day to day if I'm busy I can't feel anything so you are right it's probably in my head! 
     

    I hope everything is going well for you and wishing you speedy recovery 

    xxx

Children
  • Hi

    Thank you :) 

    I totally get that. My tingles were/are so similar! I have put them down to anxiety. Like a sort of panic attack feeling. My arm and chest tingles, goes tight etc. I was so worried. Which of course made it worse! 
     

    I understand what you mean re triple negative being more worrying. Absolutely. However, like you say, they've said it will be fine. I've been lead to believe that the people treating us don't mince their words and if they tell us it's ok, it's ok to believe them. I asked my consultant if he was definitely telling me the truth! And he said yes! Absolutely. This is what you have. It's treatable and this is how we're going to do it! 
     

    Take care xxx