Recently diagnosed with lobular breast cancer

Hi,

I've just recently been diagnosed with lobular breast cancer. I wondered if anyone else found that they were very tired before they even started treatment?  I have been extremely tired for about the last year but the cancer Nurse said you only get tired from cancer in the later stages. Just wondered what other people's experience of this was?

Also, the Nurse told me the cancer was staged and graded after the surgeon removed the lump but I thought it was done before that.

Any help/ feedback would be much appreciated.

Dee x

Parents
  • Hi Dee,

    I am so glad you have raised this. I found myself hardly able to do anything in the months before my diagnosis because I was so tired. I can distinctly remember sitting in my chair wondering if I should go to the doctor, wondering if I was becoming anaemic. When I did receive my diagnosis it became clear that I had been cooking up my own lobular cancer. Maybe it is just that kind of breast cancer that causes it. I have just seen Kebb 157's first post in reply. I haven't read your whole thread yet because I was so excited to see my own thoughts being published like this, I wanted to reply straight away.

    My cancer was 4cm. Grade 2, with one sentinel node appearing to have cancer to the surgeon, but it came back negative from the lab. I wasn't told that until after my second (not really necessary) surgery.
    I had a mastectomy, followed by the lymph node clearance although they were free of any cancer cells. ( I'm not bitter or anything ) I had no chemo or rads, just hormone therapy for the next few years. I am in my 70's and was very glad not to have them.  Recovery was a lot easier than expected.

    Now, 18 months on I am getting very tired again, but I am reliably informed (by my daughter)  this is because of the boredom of lockdown and pain meds I take for my arthritis!  Cancer wise I have only had telephone follow up appointments except for my annual mammogram on the remaining boob. but I seem to be tolerating the hormone blocker quite well, give or take the odd hot flush and I suffered worse side effects from my COVID-19 jab! ( If you haven't had yours yet, don't worry they only lasted 12 hours)

    I will read the rest of your thread now.  Good luck with your treatment, I hope you are as lucky as me!

    Christine x 

     


     

  • Hi Christine,

    Interesting to hear about your experience of tiredness too. I was so tired all the time last year and so concerned about it I mentioned it to my Doctor but she laughed it off and said "I'm tired all the time too" 

    I'm sorry you've been through what you have but glad you are making a great recovery.

    Take care 

    Dee

Reply
  • Hi Christine,

    Interesting to hear about your experience of tiredness too. I was so tired all the time last year and so concerned about it I mentioned it to my Doctor but she laughed it off and said "I'm tired all the time too" 

    I'm sorry you've been through what you have but glad you are making a great recovery.

    Take care 

    Dee

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