Hello Dee,

just to say I had felt tired for about a year before my diagnosis of lobular breast cancer too. (In October 2019)

The nurse told me exactly the same as you were told that tiredness wouldn't have been about the breast cancer. I am convinced it was though!! I am not half as tired nowadays which is nearly a year after my treatment was completed!  
 

My cancer was graded prior to the op but actually it was bigger than expected in the end, but it didn't make any difference to my treatment.  I had a breast reduction to remove the tumour and then 15 sessions of radiotherapy.  Completed this in February 2020. Really feeling very well and strong now!! It's a massive journey but you will get there. This site is brilliant!  
 

My advice (though you haven't asked for it!!!) is to use the breast care nurses at the clinic to talk to if you have any worries. They are SO helpful and kind at a time when you really need such support. 
 

I wish you well. Take care of yourself. 
Kebbs 

Thank you very much Kebbs, it's a lot to take in and still feels very surreal.

I'm waiting on a date for my MRI and we'll take it from there. 

Can I also ask, if you work how long were you off your work for? I'm a carer and I'm actually off just now anyway with a shoulder injury - I can't imagine going back before my MRI as I'm all over the place at times!

So glad to hear you are doing so well.

Best wishes

Dee

Thank you very much Kebbs, it's a lot to take in and still feels very surreal.

I'm waiting on a date for my MRI and we'll take it from there. 

Can I also ask, if you work how long were you off your work for? I'm a carer and I'm actually off just now anyway with a shoulder injury - I can't imagine going back before my MRI as I'm all over the place at times!

So glad to hear you are doing so well.

Best wishes

Dee

Hi Dee,

yes, I was working at the time of diagnosis but only part time. I was 67 and considering retirement anyway so I decided to stop working altogether before my op. I was sad to leave in many ways but equally wanted all my energy to get well. So I was in a fortunate position really. Have to say though had I continued work I would have taken 6 months off I imagine given my treatment was completed in 5 months. 

I think it's great you are having an MRI before surgery by the way as that will make the exact situation absolutely clear. 

Yes you will be at sixes and sevens at the moment. It's a lot to take in. I used to go to one appointment and then the next in a complete fog. Half the time not really taking in what was being said!! 

From my own experience I can say the fog lifts eventually. It's gradual after quite a few tears and low days abd then suddenly there's a light that comes on. The light came on when I realised that there IS hope, there IS excellent treatment available and the oncologists know their stuff!!  All is NOT lost. Truly Dee so much goes into cancer treatment. I know we are living in scary times just now quite apart from cancer but you will be in good hands. 
 

On a personal note I kind of (almost) resented people telling me to be 'strong' and to 'fight' because it wasn't their battle and  it wasn't their fear. It was all mine. I didn't see it in those terms anyway. I saw it as a challenge to get well. To care for me. To listen to what might help. Exercise/good food and being as calm as possible. Love myself. Easy to say I know but it's all helped me get to this fine day where I feel really well and 'mended'. 
 

I wish you well Dee. Your post reminded me so much of me 18 months ago. It's such a huge hit. You will come back though!! 
Go easy. 
Kebbs x 
 

Hi Kebbs,

Thanks so much for the informative reply. Most of the time I am very positive and "know" I'm going to get better - but as you will know the doubt then creeps in. I will feel so much better after I've had my MRI and know for sure what I'm actually facing. I'm 51 and I've been told it's a small lump and it looks as though it's contained but I was also told it's a "sneaky type of cancer and good at hiding" 

Roll on MRI day

Glad to hear you are doing so well.

Thanks again and take care 

Dee