Tonsil Cancer - Whirlwind Week

Hi All 

Firstly Hats Off to the NHS in Wales, they have been super amazing since my diagnosis on New Years Eve. Thank you all 

The title of the post is Whirlwind Week and this is why:

New Years Eve I have a phone call from ENT confirming tonsil cancer.  Very apologetic confirmed over the phone.  Wants me in for a biopsy.   Later the same day I get calls from ward team and covid test centre booking appointments.

Monday 4th January i have a covid test at 9.30am. Results back same day, negative for Covid19.  On route to test centre call from pre assessment team asking me to go in straight after my covid test for my biopsy pre assessment.   Forgot to mention biopsy booked for 7th January. 

Tuesday 5th January have an ultrasound at 9.30am and an MRI ar 11.00am.  The ultrasound was an external ultrasound of my neck. They decided to take two needle biopsies of lymph nodes which took some doing as the nodes were so solid they couldn't get needle in... Thank goodness for local anesthetic :)

From ultrasound they decided to send me for a 3d scan of my jaw.  This was done primarily in case I need any teeth removed pre radiotherapy treatment.  Apparently radiotherapy can cause your back teeth to crumble.  Don't panic not everyone has this done.  i believe it totally depends on size, position of tumour and the amount of radiotherapy you need.

After the jaw scan I went straight for my MRI.  Think I  had two 10 minute sessions,  the second 10 with dye injected into my blood.  I had also had this done for a CT scan on 18th December.

Wednesday 6th January day off.  Which I used to eat as many nice things as possible :)

Thursday 7th January 07.30am its minus 4 degrees c and I'm back at the hospital with my overnight bag ready for another biopsy, I was told to expect to be in hospital overnight.  Due to covid we have to wait at the entrance.  Just 3 of us, asked lots of covid related questions and temperature checked before being escorted to the clean ward.

The ENT surgeon comes to see me to explain the procedure.  Remember everyone is different.   So for me they are going to remove the good tonsil and send it for tests.  What? Not the bad tonsil?  The reason for this is because when you have cancer in one tonsil it is pretty much a done deal that you will get itin the other.   Also by leaving the cancerous tonsil in it allows for more treatment options.  If they cut it out there will only be one treatment path.

During the tonsillectomy they also took biopsies of my bad tonsil and my tongue.   After the op ENT told me that it would take about 7 days for the results so they expect to be calling my Wife and I in a week on Wednesday. 

I was allowed to go home as long as I had eaten something, drunk something and had a pee.  I was home by 7pm the same day.

Sunday 10th January its 6am and I am sat in bed writing this post.  Next to me is a glass of water which I sip all night, my 6am pills and a lip balm.  My bottom lip took a battering during surgery and is very swollen and sore.   The cancerous side of my throat and shoulder is still painful and the right side is even more painful from the tonsillectomy.  Even my lymph nodes seem to be complaining  :)

But you know what, I don't feel sorry for myself,  I don't feel sad.  I'm going to lose weight, but hey I'm 5ft 6inch and 13 and a half stone (male) i could do with shedding a few pounds ;) 

I know this is just the start of a long hard journey,  but I'm ready... bring it on I say!

  • Hi Elona

    How do you get on with vaccines hope there wasn't any nasty side effects and you managed to have a good weekend, was work ok it must be hard when you feel so ill with the medication your taking make sure you get plenty of rest when you get home

    Take care

    Allison xx

  • Hi Judy

    Spoke to gp surgery and they asked if I'd had a letter about having third jab and booster so they are doing that to vulnerable people, I havnt had one so just booked booster, spoke to Macmillan nurse and they discussed me at mdt meeting and they don't know whether I still have residual disease going on Monday to see doctor I asked my options if it is and she said immunotherapy which is not a cure just prolongs so a bit scared now , trying not to over think it and stay positive

    Take care

    Allison xx

  • Oh Alli, I'm so sorry to read thisI I really hope they're wrong, did they say how they were going to clarify this?  It seems strange given that your MRI was clear.  Could it possibly still be radiotherapy changes?  
    you'll probably get a letter eventually, I spoke to my husbands GP and because he's already had his booster they say he will be called for the 4th dose in 6 months time.

    I will be thinking about you on Monday, everything will be crossed, good luck
     

    love Judy x

  • Hi Alli

    I really hope your k and the residual is just lymphadenopathy left over not actual cancer. keep positive we are routing for you. sending positive vibes and virtual hug xx

    This week has not been easy so far but am coping am hurting a bit today otheriwse ok thanks prednisolone makes me a little emotional sometimes but have halved dose now so should settle down. still taking all anti sickness etc 25 tabs each morning lol. 

    I wasnt aware there is 4 vaccinations? i had the booster and so did the other half as we are vulnerable too and immunosuppressed but had not heard about four vaccines will have to look that up. arms were a little stiff and sore to touch otherwise no side effects hubby was more of a baby!! hehe. 

    take care 

    hope your ok JUdy x

     

  • Hi Elona

    I am good, thank you, very relieved that hubbys treatment has been successful but if I'm totally honest there's just a tiny worry that sits in the back of my mind and prods me every now and again asking if the cancer will return! but I imagine everyone who has been through this has the same fears!


    25 tablets a day, WOW, that's a lot of meds to keep on top of, how are you feeling? Those steroids really are a *** for messing you up aren't they, did you manage to return to work in the end?

    What's happening in the world of the mini mafia, are they still around?

    Judy xx

     

     

  • Hi judy,

    Lovely to hear from you and glad you are ok. Try not to worry about whethert something will come back enjoy the moment of cancer free. 

    Am getting used to the regime now of the tablets took time because the TB tablets have to be on an empty stomach then your not allowed to eat for half an hour then the steroids and other gastro tablets and pain klillers are to have with food so i have to work out breakfast and tablets lol. I managed to go back to work this week finally has not been easy and tiring but at least i can pay the bills!!! i can honestly say i am also glad it is the weekend lol. 

    Mini mafia have been little so and sos recently i discovered a mound in the veggie patch under my butter nut squash and they decided to try and push up the primulas in the front garden they said it was no fun not being allowed to play with the hedgehogs in the car port or the dog so they had to find alternative entrances !!! the poor rose by the car port alsmost did not have any soil by its roots this had to be rectified quickly. the mini mafias builders had been busy with their highways lol shame they dont know a no entrance or exit sign. :) 

    keep in touch x

     

  • Hi Judy

    Hope you and hubby are well, had appt yesterday and doctor thinks that its ulcerated scar tissue but to be on the safe side I'm going for day surgery next Wednesday to have cameras and biopsy he didn't seem to worried though so feel a lot better now

    Take care

    Allison xx

  • That's fantastic Alli, obviously something you could do without but at least not what you feared.  
    I thought about you several times yesterday but didn't want to ask just in case it was bad news and you needed time to process everything.

    I'll keep everything crossed for next week but I'm sure you will be fine, hopefully you can get a final positive conclusion in time for a great xmas.

    Good luck

    Judy xx

  • Brilliant Alli all the best for next wednesday and fingers crossed but looking positinve and thats brilliant. 

    take care x

  • Hi Elona

    I'm really relieved the doctor didn't seem to worried he said I may have something called oestoradionecrosis they will check when they do cameras, hope your ok and managed to have a good weekend the medication your on sounds like a nightmare 25 tablets I struggle swallowing a couple of paracetamol and to feel sick all the time is awful hope it eases soon, can we have some more mini mafia please I've missed reading about them 

    Look after yourself

    Allison xx