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Had results today from biopsy on tonsil and now know its cancer, its all been really quick what with scans and hospital visits so not really had time to think about it now it's just starting to sink in but I'm pretty positive, I'm told its spread to a lymph node has anyone else had this 

HiAli

I am sorry to hear your diagnosis, but the first thing I would say is there is always hope. Al my friend here has the same and is currently undergoing all the treatment. He is having a six week course of radiotherapy and chemotherapy over most of the week meaning daily trips. The first thing they have to do is make sure you have no teeth that will get corroded by treatment so need removing first,. They then measure you for the mask this apparently is quite comfortable. They then arrrange the neginnings of the treatment. It will not be easy so you will need a good support system around you - family, macmillans, friends especially when you have down days. Some people loose taste buds during treatment some can find swallowing hard but if you look back on our talks there are mouth exeercises to do. 

Find all the exciting food things you love that are highly flacoured and stock up you will need to keep your weight up and need things that are exciting to make you smile. 

good luck i am here is you want to talk. 

stay strong x

Hi Alli

im sorry to hear you're still having problems, when is your next appt?  Your MRI was only 8 weeks ago and it was clear so although we all know only to well it's really hard, try not to worry too much.  
As I said previously my husbands PET scan showed suspicious activity and he had to have an EBUS which is basically a scope which goes down the throat to the lungs and takes a biopsy, fortunately these were found to just be reactive nodes but it was a very worrying time.  
I'll keep everything crossed for you, please keep in touch.

thinking of you, take care x

Judy

Hi Judy

I know its never ending my appt has been brought forward the 10th November with oncologist and i have appt with ent to so hopefully it's good news and I can stop worrying all the time

Take care 

Allison xx

Hi Alli

So sorry you are still having problems let hope it is little and nothing just time taking because you had really bad lymphadma. fingers crossed let me know how you get on, will be thinking of you. 

thankfully anit emtics are helping stop me being sick and starting to eat again so thats good. the nausea is however an on going thing. Nurses hope once I get over the two months initial treatment and start the next lot i should not be so bad. 

Belvedine is doing really well bless her and the four babies are too they are nearly ready to go but am unsure whether to release or not at moment as they are still inexpereinced and young. 

keep faith girlie you can pull through this xx

Hi Elona

The medication your on sounds awful I really hope it gets easier soon, are you still having to work as well. I bet its easy to get attached to the baby hedgehogs I'd want to keep them lol so glad belvedines doing well. I'm trying not to worry I was so relieved after the mri, just taking each day at a time and trying to do lots of nice things with family and seeing friends which has been lovely

Take care of yourself

Allison xx

Hi Aliison

I think you are being amazingly brave and glad your able to keep yourself occupied as we have said many times the waiting is the worst. fingers crosed. 

have been off work but due to no money have to go back monday. dreading it. 

going to try and have some fun if possible thibnzs weekend but vaccines tomorrow booster covid and flu then dekivery  o we shall see. 

there is apparently a diet called inflammation diet - maybe somethging worth you looking at?? keep thinking of looking at too is supposed to help with our conditions. 

try to enjoy yourself this weekend xx

Hi Alli

Hubby has had a letter this morning from Oncology stating that because he has recently had chemo/radiotherapy for cancer he needs to have an extra third covid vaccination followed by his booster! 
He's already had his booster jab so we are a bit confused Lol, I'm going to ring them on Monday for clarification but just wondered if you had been given this information? 
 

Thanks

Hi Judy

No have not heard anything I had my second jab 21st of June so thought I would call gp tomorrow about booster, will let you know what they say  sounds hope its just the one lol

Have a good weekend

Allison xx

Morning Elona

Hope your having a good weekend its hard to be enthusiastic when you feel sick all the time hope it wears off soon, is there any benefits you could get so you could stay off until your better. I don't feel very brave but I'm still smiling just lol 

Allison xx

Hi Elona

How do you get on with vaccines hope there wasn't any nasty side effects and you managed to have a good weekend, was work ok it must be hard when you feel so ill with the medication your taking make sure you get plenty of rest when you get home

Take care

Allison xx

Hi Judy

Spoke to gp surgery and they asked if I'd had a letter about having third jab and booster so they are doing that to vulnerable people, I havnt had one so just booked booster, spoke to Macmillan nurse and they discussed me at mdt meeting and they don't know whether I still have residual disease going on Monday to see doctor I asked my options if it is and she said immunotherapy which is not a cure just prolongs so a bit scared now , trying not to over think it and stay positive

Take care

Allison xx

Hi Judy

Spoke to gp surgery and they asked if I'd had a letter about having third jab and booster so they are doing that to vulnerable people, I havnt had one so just booked booster, spoke to Macmillan nurse and they discussed me at mdt meeting and they don't know whether I still have residual disease going on Monday to see doctor I asked my options if it is and she said immunotherapy which is not a cure just prolongs so a bit scared now , trying not to over think it and stay positive

Take care

Allison xx

Oh Alli, I'm so sorry to read thisI I really hope they're wrong, did they say how they were going to clarify this?  It seems strange given that your MRI was clear.  Could it possibly still be radiotherapy changes?  
you'll probably get a letter eventually, I spoke to my husbands GP and because he's already had his booster they say he will be called for the 4th dose in 6 months time.

I will be thinking about you on Monday, everything will be crossed, good luck
 

love Judy x

Hi Alli

I really hope your k and the residual is just lymphadenopathy left over not actual cancer. keep positive we are routing for you. sending positive vibes and virtual hug xx

This week has not been easy so far but am coping am hurting a bit today otheriwse ok thanks prednisolone makes me a little emotional sometimes but have halved dose now so should settle down. still taking all anti sickness etc 25 tabs each morning lol. 

I wasnt aware there is 4 vaccinations? i had the booster and so did the other half as we are vulnerable too and immunosuppressed but had not heard about four vaccines will have to look that up. arms were a little stiff and sore to touch otherwise no side effects hubby was more of a baby!! hehe. 

take care 

hope your ok JUdy x

Hi Elona

I am good, thank you, very relieved that hubbys treatment has been successful but if I'm totally honest there's just a tiny worry that sits in the back of my mind and prods me every now and again asking if the cancer will return! but I imagine everyone who has been through this has the same fears!

25 tablets a day, WOW, that's a lot of meds to keep on top of, how are you feeling? Those steroids really are a *** for messing you up aren't they, did you manage to return to work in the end?

What's happening in the world of the mini mafia, are they still around?

Judy xx

Hi judy,

Lovely to hear from you and glad you are ok. Try not to worry about whethert something will come back enjoy the moment of cancer free. 

Am getting used to the regime now of the tablets took time because the TB tablets have to be on an empty stomach then your not allowed to eat for half an hour then the steroids and other gastro tablets and pain klillers are to have with food so i have to work out breakfast and tablets lol. I managed to go back to work this week finally has not been easy and tiring but at least i can pay the bills!!! i can honestly say i am also glad it is the weekend lol. 

Mini mafia have been little so and sos recently i discovered a mound in the veggie patch under my butter nut squash and they decided to try and push up the primulas in the front garden they said it was no fun not being allowed to play with the hedgehogs in the car port or the dog so they had to find alternative entrances !!! the poor rose by the car port alsmost did not have any soil by its roots this had to be rectified quickly. the mini mafias builders had been busy with their highways lol shame they dont know a no entrance or exit sign. :) 

keep in touch x

Hi Judy

Hope you and hubby are well, had appt yesterday and doctor thinks that its ulcerated scar tissue but to be on the safe side I'm going for day surgery next Wednesday to have cameras and biopsy he didn't seem to worried though so feel a lot better now

Take care

Allison xx

That's fantastic Alli, obviously something you could do without but at least not what you feared.  
I thought about you several times yesterday but didn't want to ask just in case it was bad news and you needed time to process everything.

I'll keep everything crossed for next week but I'm sure you will be fine, hopefully you can get a final positive conclusion in time for a great xmas.

Good luck

Judy xx

Brilliant Alli all the best for next wednesday and fingers crossed but looking positinve and thats brilliant. 

take care x

Hi Elona

I'm really relieved the doctor didn't seem to worried he said I may have something called oestoradionecrosis they will check when they do cameras, hope your ok and managed to have a good weekend the medication your on sounds like a nightmare 25 tablets I struggle swallowing a couple of paracetamol and to feel sick all the time is awful hope it eases soon, can we have some more mini mafia please I've missed reading about them 

Look after yourself

Allison xx

oh of coourse I thought people had become fed up with the mini mafia so stopped writing. i had wreitten to give people something different to read to try a diversion as you say but didnt think it had been wanted. 

Alli i am so glad you are ok and hope this new diagnosis is not too bad and they can do something about it. 

have just been for my monthly blood test and check up. have not heard anything today so presume that must mean the bloods are back to ok. my urates were very high and that was causing my sickness feeling they can cause all sorts of illnesses like gout apparently but are ovbiously a side effects of tablets. my liver was slightly up and vitamin D very low so have had to get myself some multivitaminsl They have extended my steroinds and anti sickness tablets and have more bloods in another month. 

the mini mafia builders have been secretely beavering away in the garden - they made the most of the butter nut squash by building and extension to the hotel underneath and pushing up the veggie patch in this back area only problem is they decided to build a subway under a pavement slab and this is slowly subsiding so they are working on a way of strengthening the sides before they get norticed and the pavement is adjusted. thisa new subway is a delightful way for the hotel guests to visit the country field and take the air as people say when they visit the sea side!! The hotelier is thrilled with the progress now the builders are actually working rather than sitting on their bums! and is thinking of the money he should be raking in especially when the advert comes out in the Home and country magazine advertisement pages. - lovely country resort not far from sea side boosting pleasent views, plenty of free fresh vegetables,  biscuits and running water. Pond to play in and humans to annoy. 

Little miss is getting on ok with her boyfriend they have had a few tiffs but puppy love never runs smoothly and she gets a little jealous when he tries to smooth talk other girls - he has told her he is too young to settle down yet but likes having her on his arm. She wants more after all girls do come into season pretty quickly and her hormones are ticking!! but for the timne being she is prepared to wait. 

the families are getting ready for the Christmas perade - I know a little early but you have to remember it takes time to get these things ready; they have to gather all sorts of colourful waste to make their perade with and they like to steal a little to decorate their nests with too - a little colour always makes them house proud and they like to compete with each other. this parade is not going to have a king or queen since it is a christmas thing so they are going to have santa, elves, and christmas bnnies instead of reindeers. old man rattus the senior memeber of the clan is always santa and he takes his job very very seriously so he has started practicing his ho ho ho. The mums are making their christmas puddings and mince pies and the elvf outfits for the littel ones because there is a competition for the best costume and they have to go find clittery things they can stitch on. crisp packets are glossy and can be used, tin foil is useful for making structures and frmes for girls tutu type skirts, or cutting out elf shaped ears. Angie won last year she stole a piece of someones curtain by biting it of to the disgust of the owners who i hear freaked out when she say bite marks ! and make it into a very posh outfir. date for parade is 11th December so they have plenty of time. 

take care of yourself xx

Hi Elona

Thank you for the latest on the mini mafia you are so talented I think you could write a book, it made me smile especially the Christmas parade and the bunnys instead of reindeer lol I read it to my partner Gary when he came round and he thought it was brilliant, it was perfect timing as I've felt a bit rubbish today I finally finished the enenemas on Sunday and the flare of ulcerative colitis has come back have been up and down to the loo like a yoyo, will have to phone ibd nurse on Monday back on steroids methinks. Has the sickness wore off at all I don't know how you do it working and looking after the hedgehogs have the babies and belvedine been set free now or are they still with you

Enjoy the rest of your weekend

Allison xx