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Had results today from biopsy on tonsil and now know its cancer, its all been really quick what with scans and hospital visits so not really had time to think about it now it's just starting to sink in but I'm pretty positive, I'm told its spread to a lymph node has anyone else had this 

HiAli

I am sorry to hear your diagnosis, but the first thing I would say is there is always hope. Al my friend here has the same and is currently undergoing all the treatment. He is having a six week course of radiotherapy and chemotherapy over most of the week meaning daily trips. The first thing they have to do is make sure you have no teeth that will get corroded by treatment so need removing first,. They then measure you for the mask this apparently is quite comfortable. They then arrrange the neginnings of the treatment. It will not be easy so you will need a good support system around you - family, macmillans, friends especially when you have down days. Some people loose taste buds during treatment some can find swallowing hard but if you look back on our talks there are mouth exeercises to do. 

Find all the exciting food things you love that are highly flacoured and stock up you will need to keep your weight up and need things that are exciting to make you smile. 

good luck i am here is you want to talk. 

stay strong x

Hi Aliison

I think you are being amazingly brave and glad your able to keep yourself occupied as we have said many times the waiting is the worst. fingers crosed. 

have been off work but due to no money have to go back monday. dreading it. 

going to try and have some fun if possible thibnzs weekend but vaccines tomorrow booster covid and flu then dekivery  o we shall see. 

there is apparently a diet called inflammation diet - maybe somethging worth you looking at?? keep thinking of looking at too is supposed to help with our conditions. 

try to enjoy yourself this weekend xx

Hi Alli

Hubby has had a letter this morning from Oncology stating that because he has recently had chemo/radiotherapy for cancer he needs to have an extra third covid vaccination followed by his booster! 
He's already had his booster jab so we are a bit confused Lol, I'm going to ring them on Monday for clarification but just wondered if you had been given this information? 
 

Thanks

Hi Judy

No have not heard anything I had my second jab 21st of June so thought I would call gp tomorrow about booster, will let you know what they say  sounds hope its just the one lol

Have a good weekend

Allison xx

Morning Elona

Hope your having a good weekend its hard to be enthusiastic when you feel sick all the time hope it wears off soon, is there any benefits you could get so you could stay off until your better. I don't feel very brave but I'm still smiling just lol 

Allison xx

Hi Elona

How do you get on with vaccines hope there wasn't any nasty side effects and you managed to have a good weekend, was work ok it must be hard when you feel so ill with the medication your taking make sure you get plenty of rest when you get home

Take care

Allison xx

Hi Judy

Spoke to gp surgery and they asked if I'd had a letter about having third jab and booster so they are doing that to vulnerable people, I havnt had one so just booked booster, spoke to Macmillan nurse and they discussed me at mdt meeting and they don't know whether I still have residual disease going on Monday to see doctor I asked my options if it is and she said immunotherapy which is not a cure just prolongs so a bit scared now , trying not to over think it and stay positive

Take care

Allison xx

Oh Alli, I'm so sorry to read thisI I really hope they're wrong, did they say how they were going to clarify this?  It seems strange given that your MRI was clear.  Could it possibly still be radiotherapy changes?  
you'll probably get a letter eventually, I spoke to my husbands GP and because he's already had his booster they say he will be called for the 4th dose in 6 months time.

I will be thinking about you on Monday, everything will be crossed, good luck
 

love Judy x

Hi Alli

I really hope your k and the residual is just lymphadenopathy left over not actual cancer. keep positive we are routing for you. sending positive vibes and virtual hug xx

This week has not been easy so far but am coping am hurting a bit today otheriwse ok thanks prednisolone makes me a little emotional sometimes but have halved dose now so should settle down. still taking all anti sickness etc 25 tabs each morning lol. 

I wasnt aware there is 4 vaccinations? i had the booster and so did the other half as we are vulnerable too and immunosuppressed but had not heard about four vaccines will have to look that up. arms were a little stiff and sore to touch otherwise no side effects hubby was more of a baby!! hehe. 

take care 

hope your ok JUdy x

Hi Elona

I am good, thank you, very relieved that hubbys treatment has been successful but if I'm totally honest there's just a tiny worry that sits in the back of my mind and prods me every now and again asking if the cancer will return! but I imagine everyone who has been through this has the same fears!

25 tablets a day, WOW, that's a lot of meds to keep on top of, how are you feeling? Those steroids really are a *** for messing you up aren't they, did you manage to return to work in the end?

What's happening in the world of the mini mafia, are they still around?

Judy xx

Hi judy,

Lovely to hear from you and glad you are ok. Try not to worry about whethert something will come back enjoy the moment of cancer free. 

Am getting used to the regime now of the tablets took time because the TB tablets have to be on an empty stomach then your not allowed to eat for half an hour then the steroids and other gastro tablets and pain klillers are to have with food so i have to work out breakfast and tablets lol. I managed to go back to work this week finally has not been easy and tiring but at least i can pay the bills!!! i can honestly say i am also glad it is the weekend lol. 

Mini mafia have been little so and sos recently i discovered a mound in the veggie patch under my butter nut squash and they decided to try and push up the primulas in the front garden they said it was no fun not being allowed to play with the hedgehogs in the car port or the dog so they had to find alternative entrances !!! the poor rose by the car port alsmost did not have any soil by its roots this had to be rectified quickly. the mini mafias builders had been busy with their highways lol shame they dont know a no entrance or exit sign. :) 

keep in touch x

Hi judy,

Lovely to hear from you and glad you are ok. Try not to worry about whethert something will come back enjoy the moment of cancer free. 

Am getting used to the regime now of the tablets took time because the TB tablets have to be on an empty stomach then your not allowed to eat for half an hour then the steroids and other gastro tablets and pain klillers are to have with food so i have to work out breakfast and tablets lol. I managed to go back to work this week finally has not been easy and tiring but at least i can pay the bills!!! i can honestly say i am also glad it is the weekend lol. 

Mini mafia have been little so and sos recently i discovered a mound in the veggie patch under my butter nut squash and they decided to try and push up the primulas in the front garden they said it was no fun not being allowed to play with the hedgehogs in the car port or the dog so they had to find alternative entrances !!! the poor rose by the car port alsmost did not have any soil by its roots this had to be rectified quickly. the mini mafias builders had been busy with their highways lol shame they dont know a no entrance or exit sign. :) 

keep in touch x

Morning

Hope you are feeling ok and the medication side effects have settled, how are the hedgehogs doing I bet there all grown up and have been set free now. Just wanted to wish you a very happy Christmas I hope you haven't been to stressed getting ready for it I'm sure you will be cooking up a storm on Christmas day, try not to overdo things 

Take care Allison xxx