Hello I am sorry to hear about your mum.I was diagnosed with breast cancer stage 4 mets in my lumgs,kidney a liver.That was in May 2019.I was offered a clinical trial immunotherapy but because it was only 1 stage of trial it was more about testing the safety of the new drug than to help me.So i refused to be guinea pig and from August 2019 i am on weekly chemo and I am having breaks when I request aprox every 3 months 4 weeks off.I had a CT scan this week and my liver and kidney are clear the only.cancer is in my.lungs but even there the.nodules are still shrinking.

She needs to talk to her team about pros and cons to take part in the trial.Some.people helped some got worse.

Denise

Hi Denise,

Thanks for your reply and sorry to hear about your diagnosis too. That's all really useful thank you I think there's an element of that with this study - my mum would have a 33% chance of being on a placebo - in which case she'd be having agressive treatment every week with little break indefinitely when it could be for no extra benefit. 
Having spoke to her just now she's going down the standard treatment route so she's happier to have made a decision now. It's all so overwhelming. Sending you best wishes for your treatment and great to hear about the positive results it's had xx

Hi Denise,

I am so sorry to hear about your Mum's diagnosis. This must have come as A terrible shock to both of you, but she is luckky to have you there to support her. I hope that you can both take some hope from Joclaire's story. For all that this is not a diagnosis that anyone wants, good outcomes still exist, so please try and hang on to some positivity.

There is always someone here for you both. Please keep us updated on your mum's journey.

Kind regards,

Jolamine xx

Hi Jolamine, 

Thank you so much for your kind words, they are really appreciated. It is all a massive shock and we're still in a day at a time mode. 

Jo xx

Hi Joclaire,

I am glad to hear that your mum had decided on her treatment path. This should make you both feel better in yourselves. You will probably find that it is easier to get through this by treating life day by day. Don't look at the bigger picture, as it is too much for anyone to cope with. It is likely to be a difficult path for your mum going through chemo, but keep in touch with her care team if you are concerned about anything.

When are you due to see the consultant again? I do hope that treatment starts soon and that your mum can cope with it.

I am always here if I can do anything to help.

Kind regards,

Jolamine xx

Hi Jolamine,

Yes it's definitely helped her feel a bit more in control now she's made the decision. It is absolutely too much to comprehend at the moment. Hopefully she will hear this week about her chemo start date, the sooner the better really as she is starting to feel unwell she thinks as a result of the cancer. 
 

Thank you xx

Hi Joclaire,

Your mum will probably feel a little better in herself once she starts here chemo. Have you been told what to expect your mum to feel like during her chemo? She is likely to feel sick and tired and will need your support even more. She will be prescribed medication for thie nausea, but make sure to tell her care team if what she is given initially doesn't work.

Kind regards,

Jolamine xx

Hi Joclaire,

I am so sorry to hear about your Mum's bone pain and urine infection. Are they still going to go ahead with her chemo tomorrow, despite the urine infection? If her nausea is not being controlled, please let her care team know before she has her next chemo, as there are a number of other drugs which might prove to be more effective.

Kind regards,

Jolamine xx

Yes she's gone ahead with the chemo today. She's not suffering too badly with nausea yet but it's early days I guess. I'll let her know that there are other options available if the nausea becomes a problem xx