Mum diagnosed with triple negative breast cancer stage 4

Hi there, 

My mum has been diagnosed with triple negative breast cancer, stage 4 which has mestasized to her liver. Our heads are spinning, that she's gone straight to stage 4 with no previous cancer. They are going straight to chemo in a few weeks, but mum has basically been given two choices, to take part in a clinical study or standard chemo path. We're all so confused as which route to take as we were expecting a clear treatment path rather than options. Does anyone have any experience or advice, even words of reassurance that I can pass on to her. She's 72 and doesn't feel strong enough to manage the more agressive clinics study, but clearly is confused which path to take. Thanks Jo x

Parents
  • Hello I am sorry to hear about your mum.I was diagnosed with breast cancer stage 4 mets in my lumgs,kidney a liver.That was in May 2019.I was offered a clinical trial immunotherapy but because it was only 1 stage of trial it was more about testing the safety of the new drug than to help me.So i refused to be guinea pig and from August 2019 i am on weekly chemo and I am having breaks when I request aprox every 3 months 4 weeks off.I had a CT scan this week and my liver and kidney are clear the only.cancer is in my.lungs but even there the.nodules are still shrinking.

     

    She needs to talk to her team about pros and cons to take part in the trial.Some.people helped some got worse.

     

    Denise

  • Hi Denise,

    Thanks for your reply and sorry to hear about your diagnosis too. That's all really useful thank you I think there's an element of that with this study - my mum would have a 33% chance of being on a placebo - in which case she'd be having agressive treatment every week with little break indefinitely when it could be for no extra benefit. 
    Having spoke to her just now she's going down the standard treatment route so she's happier to have made a decision now. It's all so overwhelming. Sending you best wishes for your treatment and great to hear about the positive results it's had xx

Reply
  • Hi Denise,

    Thanks for your reply and sorry to hear about your diagnosis too. That's all really useful thank you I think there's an element of that with this study - my mum would have a 33% chance of being on a placebo - in which case she'd be having agressive treatment every week with little break indefinitely when it could be for no extra benefit. 
    Having spoke to her just now she's going down the standard treatment route so she's happier to have made a decision now. It's all so overwhelming. Sending you best wishes for your treatment and great to hear about the positive results it's had xx

Children
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