Hi A

I have the same as you but grade 3 & in lymph nodes, they've said the same to me. Chemo 1st to shrink it down as much as possible. Im sure they won't operate until its safe to do so.

I start my chemo a week on monday for 2 days.

I feel the same as you, its frightening even more because of the situation with the virus. There's so many people in the same situation

I think you just need to keep yourself as safe as possible (shielded) whilst you're having treatment, i was told this at my last appointment on Thursday.

If there's anything else i can help you with or just a chat, please let me know.

Take care

Karen xx

Hi Karen,

Thank you so much for your response. While I truly wouldn't wish this on anyone,  it is super  helpful to chat to someone dealing with the same issues.

I was told at breast clinic will start at end of May... , Op in September,  have you been given  a time frame for treatments and operation?  Are you shielding already?   Did they do more tests at Oncologist? 

Sorry for bombarding you with questions, have so many racing througts.. ,even been trying some  natural healing  methods but I think I nearly gave myself a heart attack.... so decided, sound and sensible advice is best.

Please don't feel obligated to answer all the questions   Any tips or advice will certainly be gratefully received, but not expected... please don't feel you have to.   I really hope your treatment goes well Karen!! 

 If at any time I can help you in any way or you just want to chat, am here for you too.   Take care and stay safe. 

Kind wishes

Angela x

Hi Angela

I had blood test & bp done on thursday when i saw oncologist, she was very informative.  On monday i have to have an ecg & a liver screen later in week & another scan. At the moment shes talking about starting chemo on the following monday for two days, (mon & tues) hopefully this doesn't change.

They've not given me a date for surgery yet, but have said 6 lots of chemo which will take place every three weeks, the oncologist has given me a list of the chemo treatments I'll be having as well.

At the end of chemo they ll re scan me to see how much the lump & lymph nodes have shrunk ( a lot im hoping) . Then the decision will be made about the op.

I'm only going out for appointments & the odd walk when its less busy, apart from that i stay home.

It's no problem at all answering your questions, im the same & i think any support & advice helps so much, I'd rather speak to someone thats been or going through it than try to find the answers elsewhere 

Please dont hesitate to message me anytime, I'll keep you up to date with how things progress.

Hopefully they start your treatment soon, i think sitting & waiting makes you feel so much worse, too much time to think.

You take care of yourself

Karen x

Hi Karen, 

Thank you so much, for your openness about what's been going on with your treatment, it is helpful to know what to expect. 

I hope it goes really well and all to plan and there is no delays.   I woild like to hear how you are getting on, if and when you feel like it.  I am not sure if there is a message system, or how to use it ... I guess on here is still good. 

Will be thinking of you on Monday 11,  sending positive thoughts . 

Warm wishes 

Angela x

Hi Karen 

I hope you don't mind my message to your response. I have just finished my 2nd round of EC chemo after I was diagnosed with pretty much the same as you. I wondered if you have finished your chemo now and have had your surgery? Is the survey difficult to recover from? And have you been put on the hormone therapy? 
thanks so much for your advice 

emma x 

Hi Karen 

I hope you don't mind my message to your response. I have just finished my 2nd round of EC chemo after I was diagnosed with pretty much the same as you. I wondered if you have finished your chemo now and have had your surgery? Is the survey difficult to recover from? And have you been put on the hormone therapy? 
thanks so much for your advice 

emma x