New, lonely member

Hi there, anyone really

I was diagnosed with triple negative a week ago. To compound this I've been told to self isolate at home until my mastectomy on 7th April as my husband is a key worker. It's jolly difficult self isolating at home....but at least I don't have children to consider, which would make life seem impossible.

Life feels lonely and very dark at the moment and I feel selfish for thinking this as it could be so much worse.

  • Hello. 

    Just saw your post and just wanted to say how I remember being diagnosed with breast cancer in October 2019. It hit me like a bolt out of the blue. Me??? Surely it’s a mistake!? But no it IS me and it’s no mistake. 

    I felt like running away. Felt so sad and out of it. Convinced death was very close. That life and good things had suddenly run dry. Anxiety at a very deep level and above all a deep seated loneliness. Despite having a great husband who is massively supportive I felt completely on my own with this cancer. I still do at times despite my treatment having gone very well and my prospects are good. 

    Getting through the treatment can be tricky but for me it went pretty well. All the time I looked at it as one more day done. One more day closer to health. It helped. 

    I have found it difficult to cry but when I have it’s helped. We need a release valve opened somewhere. Be kind to yourself, in fact be self indulgent at times!  Why not? It’s a tough hand to be dealt. A bit of self love/care never goes amiss!! Don’t forget that.

    i send you warm and positive vibes  Go carefully and take care of YOU. You are important . You are entitled to feel low mood sometimes  or angry or anyway you like. Rage against the cancer!! You will get there  

    Big love,

    Kebbs x 

     

     

  • Offline in reply to kebb

    Hi Kebb

    thank you so much for your reply. I felt so selfish but at least I now know that it's a reaction someone else has had. So far I have minuscule moments when I forget, and then the big c barrels into my consciousness and I go back into my bubble. I will try to just breath deeply and focus on one day at a time rather than feeling everything is so far in the future, or in my really darkest moments not there at all.

    once again thank you, thank you, thank you .

  • Hi there ...

    Just wanted to welcome you to the club we wish we didn't need,  but so glad it's there .. 

    I joined nearly 3 years ago, when diagnosed with a grade three breast cancer... found another 5 on their journey too ... and trust me, we all felt as you do right now .. we held each other other up through high 5 good times .. and holding someone's hand through the tough .. 

    The scariest time is where you are now ... but you've got it even tougher with this carona isolation too .. but that's where this chat page is invaluable .. we need people to answer others as well as being helped too .. there will be lots now stuck at home, who look here for a vertual friend like I did ... 

    Where's those others I joined with, most have gone back to their life post cancer... and pop on occasionally.. but all those are still standing ... breast cancer is a scary rollercoaster ride... but hold on tight .. wer all on that same ride with you ... 

    And yes get those feelings out .. I isolated for a couple of days, crying and cussing .. but then found a vertual pair of boxing gloves and jumped in the cancer ring , ready for fighting back ... 

    Sending you a vertual hug... Chrissie xx

  • Offline in reply to 3rs

    Hi,

    its no problem. Everyone with a cancer diagnosis feels numb and alone. It’s normal and natural. Never see it as you bring ‘selfish’. You ARE allowed to shout and scream. Do whatever  you need. 

    You will get to a better place but give yourself a break...It IS hard and we all struggle at times. Newly diagnosed is the hardest place to be. As another person who replied says it’s even harder and more complex now with Covid-19. Who needs it?!

    I did want to reassure you though that as your treatment progress’s that does normally help. It’s one more day towards ridding ourselves of this vile disease. One more step forward.

    Be prepared for friends/relatives who can’t manage your angst/pain. Mostly I found mates who were up to it. But some weren’t. I honestly didn’t want to hear “you will be fine. They can do so much these days”. Yes they can, but try that from my perspective. Not quite so easy!! 

    If you want to ‘befriend’ me on this site please do. It’s a journey we didn’t want, but there’s a lot of us on it. 

    Eat well and go well  

    Kebbs x 

     

     

  • Hello,

                it would not be hard in thinking that 3rs does not stand for rest,relax and repose under your current situation,and its perfectly normal to all us that have made more than a passing aqquaintance with the big C,to have guilty feelings.If you cannot focus on just you at this time,when can you? , you find you will reevalute your life,and will move along from these feelings once you have managed to pull everything thats up in the air back to order in your mind.

                                                                                                                              Good luck with your future treatment and everything starts to brighten up for you once more,

                                                                                                                 David

    ,

  • Hi there,

    It's so shocking, being diagnosed with cancer....extra bad timing at the moment, everything's so weird right now.

    We each have our own particular and very personal journey with the Dreaded C, and having lived with it for a few months now, it seems we're constantly faced with big decisions about surgery and treatment that are just not that straightforward.

    There is absolutely masses of support out there, so make good use of it and you will find your own way through. The NHS staff I've encountered have been amazing and I have felt well cared for throughout.

    Wishing you love and healing on your journey,

    Sarah x

  • Hi 3rs

    The other lovely people on here have covered off the cancer side of things and connected feelings.  My advice is more practical in terms of the fact that you can take moves to alleviate the boredom.

    I am lucky that I'm not easily bored (lucky I guess?)-worth bearing in mind!

    To reduce those boredom feelings you can call your nearest & dearest who I am sure would love to hear from you, get an update on you and your call may well eat into their boredom.  You can still go out for exercise (obviously keeping a 2 mtr distance from others) and say hello/strike up small conversation/pat dogs whilst on a walk for example.  Use this as an opportunity to hone a new skill, I have some cushions that need covering that I will no doubt find the time to attack now (only been putting it off for 6 months so far!).  I find it really comforting to get more connected to nature, get out and really notice the trees & birds, it may not help the boredom but will take your mind off it.

    I am trying not to watch too much TV (am far too busy achieving very little anyway!) as that can often not be too helpful or healthy but maybe getting engrossed in a good book will help??  There are lots of ways to connect with others on line too, more are developing hour-by-hour.

    Good luck and have a look at what others are doing (there's quite a lot of content on the BBC).

    Sam X

  • Don't believe Yorkshire Defector - she will never finish those cushions, :)

    You will find you can spend a lot of quite valuable time reading some of the threads on here. There are lovely people who are on the other side of the mountain who gave me encouragement with their experiences.  
    You might even find new friiends, Sam, (Yorkshire Defector) is definitely on my list of people whom I consider friends, probably because we share a Northern sense of humour as well as our diagnoses and we only met on here.

    As others have said before me, you are at the scariest part of the journey right now, and it will get better. My thread, Hello from a New member of the Family, traces the last six months of Sam's, and my journeys along with others, from more or less start to the present. You are most welcome to have a read and drop into the little group if you wish. 
     

    Don't be lonely, but stay safe!

    Christine x

  • Hi 

    I'm newly diagnosed too ..last Wednesday. I'm up n down as I'm sure lots of us are....have lots of support and company but at times feel like I'm going it alone.... Not because those around me are making it that way ...it's just the way I sometimes feel.... Like I want the protect them from it all.... 

     

    Not very helpful sorry but here if you'd like to chat xx

  • In the same boat - but not triple neg. Diagnosed Tues this week booked in for mastectomy 6 April. More scared of getting virus while in the hospital! My mum had the same cancer and op at a very similar age and she's still here at almost 87 so I'm cautiously hopeful long term. Just a bit of a lump in the throat about the next three weeks. Not a great time to be taking weeks off when the fate of the company I work for is at stake...