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Grade 3 Invasive Ductal Carcinoma

Motherharris
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Hi

I would like to know from you lovely lot if anyone has had Oncotype DX test and your oncologist was expecting it to be high score for recurrence but actually turned out to be low.  
 

I have Grade 3 IDC highly ER positive 8/8 HER2 negative.  My oncologist thinks I will need chemo due to high ER score.  I find out on 6th March.  The hanging around and not knowing what the plan is, is doing my head in.  I know the waiting is frustrating for everyone on here, the thing that's keeping me going is my training for London Marathon but I'm even feeling like I can't be arsed to do that.

 

xxx

Parents
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    Hi

     

    I had one. They thought it would be high, but it turned out to be 11, which is low. I dodged chemo and radiotherapy, but the medication is killing my joints.

  • Offline in reply to Magsie

    Hi again

     

    I started when I was 57/58, and I must say that I was really glad to have had it. I've been on Arimadex and Exemestane since then, and I've been advised to keep going for another 2 to 3 years. That would make it about 8 in all once... maybe... I could stop. No-one really knows, but I wouldn't want to stop if there's any chance that it could return. It was aggressive but I only had one nodule removed as it hadn't spread far. It could have affected more nodules, but the more you have removed, the more problems it creates. I guess it's the not knowing that is so unnerving.

Reply
  • Offline in reply to Magsie

    Hi again

     

    I started when I was 57/58, and I must say that I was really glad to have had it. I've been on Arimadex and Exemestane since then, and I've been advised to keep going for another 2 to 3 years. That would make it about 8 in all once... maybe... I could stop. No-one really knows, but I wouldn't want to stop if there's any chance that it could return. It was aggressive but I only had one nodule removed as it hadn't spread far. It could have affected more nodules, but the more you have removed, the more problems it creates. I guess it's the not knowing that is so unnerving.

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