hi I'm so sorry for your diagnosis, I'm unsure why you have been told that because your er pos that you will need chemo, you will be given tamoxifen or something similar to block your hormones from helping your cancer grow,more than likely you will be offered chemo as a result of your high grade cancer whilst taking tamoxifen for 5-10 years in a tablet form dependent on your age and or menopause status, I'm er and pr pos 8/8 for both and will be given some form of suppression or ovarian surgery dependant on which one take i hope this helps you and good luck hun x

Hi charliebabex

Thanks for you reply. Sorry a bit confusing, my fault. It's not because I'm ER positive, its because the score is 8/8 which means the test result is likely to come back as high risk of recurrence, that's why my oncologist thinks I'll need chemo plus the fact it is a grade 3 like you said. I definitely need radiotherapy plus the tamoxifen, but that won't start until the Oncotype results confirm or rule out chemo. I've had lumpectomy and 4 lymph nodes taken. Clear margins and clear lymph nodes xx 

I really need to take someone with me to these appointments because I can't remember everything!! I am 46 and not menopausal. Still having regular periods. 
 

I think I just need to be patient, something I'm not very good at!!

xxx

ah I see though I havent been told this myself as mine is also 8/8 aswell I wonder if each consultant does things slightly different to the other. yes if your able to take someone with you I would as its confusing enough and we never remember everything they're telling us lol I'm 32 but there is question wethor my her2 is pos as it keeps coming borderline so I'm having to await for re-testing on this again before I can have my treatment plan it's so stressful all this waiting around x

Oh fingers crossed for HER2 to come back negative. The waiting and testing is a pain in the backside. I feel like I've had this for a year not a month!! Keep me informed on how you get on and fingers crossed xx

thank you I get all my results wednesday so hopfully it's good news,the wait is definitely the worst I'm the same as you I only found out at the beginning of January had my surgery the 7th of feb and now sat here clock watching. I think what's bugging me the most is all my test results contradict each other, I've got idc and dcis at the side of it,my her2 has come back twice as borderline which is strange because normally the fish is either a pos or neg, my ki67 is high which would suggest a more aggressive growing cancer but yet initially they said they thought it was slow growing so I'm more confused after my results than I was on finding out that it was cancer. but that absolute worst isnt that I've got cancer it's that i dont no wethor its gona come back in the future it's so scary x 

Do you know what my lovely, you're right. It's not just the fact we have cancer or the waiting around or even the treatment plan. It's the fact that lurking in the background is the thought, once treatment is over that it may come back! It's almost like I'm scared when treatment stops (once it gets started of course ) because it's something physically fighting the cancer almost like a safety blanket protecting me! Very scary xxx

I couldnt of worded it any different myself I'm sure once we start our treatment we will be counting the days for it to end and then once it does it's the unknown what a scary world weve entered xx

Absolutely xxx Here if you need to chat xx

Hi

I had one. They thought it would be high, but it turned out to be 11, which is low. I dodged chemo and radiotherapy, but the medication is killing my joints.

Hi Magsie

Thank you for your reply. I'm glad to here you didn't need chemo. I've already been told I definitely need radiotherapy and then Tamoxifen for 5 years.  Do you mind me asking how old you were when you had the test? I'm 46 xx