Hello Annie and welcome to the forum. 

I'm sorry to hear about everything that you've been dealing with over the past year. It sounds as if it's been a difficult few months since you were referred for the second time and I can understand why you're feeling anxious about the wait for your surgery. 

We've a number of ladies here on the forum who have had different experiences with breast cancer. I know that [@Irene70]‍ was diagnosed with DCIS a few years back and hopefully she, and some of the others, will be along to say Hello! and share their words of support and advice with you soon. 

If you'd like to speak to one of our team of nurses about your situation you're welcome to call them. They are available Monday to Friday 9am to 5pm on 0808 800 4040. 

Keep in touch Annie and let us know how you're getting on. 

Best wishes, 
Jenn
Cancer Chat moderator

Oh Annie it seems you really have been through the mill. I was diagnosed with DCIS in November 2018 as well. Thankfully did not need mastectomy. I had a lumpectomy followed by 15 sessions of radiotherapy.

What is important to remember with DCIS is that it's totally contained in the milk duct, is non invasive. is not life threatening and is totally treatable.

Treatment always seems like forever but time will soon pass. I'm now on a patient led follow up programme which means that they don't contact me but they're just on the end of the phone if I have the slightest concern about anything.

I also have the reassurance of annual mammograms for 5 years.

Keep yourself busy to take your mind off things and before you know it it will all be over.

I wish you all the luck in the world with your treatment. Please let us know how you get on

Irene xx

Dear Irene70

Thank you for your reply.. I am waiting on my results from the lyphm nodes to see if its invasive or not as each time i see the surgeon other checks need to be done as lump was small at first I was told but now alot bigger.. Its just the wait and the unknown to the true outcome. Mamagrams all three have never shown DCIS so for me it was just after a year saying I had cysts I couldn't stand the pain so went back and again mamagram should nothing only the ultrascan hight lighten a problem..

I feel it very helpful to hear of others going through this and very much appreciated your reply 

Hi 

I was told when I had my diaganosis 5 weeks ago that the pain I was experiencing in my left breast was nothing to do with DCIS. Last week I had surgery and go tomorrow for the results of the biopsy.

I am quite stressed as I suffered pain for 18 months before diagnosis and now it seems that pain is one of the symptoms.

Can anyone reassure me? I have read Irene's comments with interest.

Hi Susie

Thanks for the reply.

I had my DCIS surgery  June 2021 and a further biopsy on left lymph nodes. I had the next mammogram in March this year and everything was clear. I am so sorry to hear that you have to have further extreme surgery.

The pain in my breast lasted for a whole year after surgery and it is still tender if I knock it. I was advised to use kin moisturiser every day to keep the skin soft. However, I had no pain prior to surgery and if you have unexplained pain I suggest you get that checked out too.

My diagnosis was due to concerns with severe breast pain which I’ve had for over 2 years and a previous mammogram showed nothing. Now due for a lumpectomy and though the nurses say pain is common and can be psychosomatic it’s really concerning that it wakes me up at night and constantly needing pain relief and not reading much to say this is normal! Op is in 10 days a hope there will be less pain afterwards.