Year of pain - now diagnosed with DCIS

Hello

I don't know if anyone has had this happen to them. 

November 2018 was referred to breast clinic as painful breast and felt 3 lumps in right breast.

Had mamagram and ulterscan and after tests came back was reassured as nothing showed on the mamagram and ultrascan showed it was just cysts then was told as painful was a good sign.. I came out delighted. 

But the pain never subsided and by a year on the lumps had felt bigger so back to the doctors which then back to clinic. Was again said it's painful for yiu so that's good as if cancer its painless. I said maybe cysts need to tl drained ect so I was sent for another mamagram.. Was told it was clear again but wanted to do a ultrascan. I was so tender.. Then the doctor was saying ducts look swollen and abnormal also saying abnormal activity within the boob. Had to have a biopsy.

I was then very worried but as clinic day was on Christmas day then boxing day I had to wait longer for my results. My mamagram never showed up anything just like the last one. 

Went back on the 8th Jan and was told I had DCIS but reassured me it was very small. 

Then had to have another biopsy on other breast but after a week wait was told it wasn't cancer.

I was sent for an MRI and results said my DCIS was 6 cm by 1.3 cm so was larger than expected. I had lypm nodes removed now. 

This process this time started on the 22nd December and still don't know whats really happening. 

I have to travel to another hospital to have my mastectomy on right boob and reconstruction as my hospital don't do plastic surgery.. but it won't be I was told till April or May.. Just seems to be forever 

Has anyone had any experience on the above. 

Kind regards 

Annie

 

Parents
  • Hello Annie and welcome to the forum. 

    I'm sorry to hear about everything that you've been dealing with over the past year. It sounds as if it's been a difficult few months since you were referred for the second time and I can understand why you're feeling anxious about the wait for your surgery. 

    We've a number of ladies here on the forum who have had different experiences with breast cancer. I know that [@Irene70]‍ was diagnosed with DCIS a few years back and hopefully she, and some of the others, will be along to say Hello! and share their words of support and advice with you soon. 

    If you'd like to speak to one of our team of nurses about your situation you're welcome to call them. They are available Monday to Friday 9am to 5pm on 0808 800 4040. 

    Keep in touch Annie and let us know how you're getting on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

Reply
  • Hello Annie and welcome to the forum. 

    I'm sorry to hear about everything that you've been dealing with over the past year. It sounds as if it's been a difficult few months since you were referred for the second time and I can understand why you're feeling anxious about the wait for your surgery. 

    We've a number of ladies here on the forum who have had different experiences with breast cancer. I know that [@Irene70]‍ was diagnosed with DCIS a few years back and hopefully she, and some of the others, will be along to say Hello! and share their words of support and advice with you soon. 

    If you'd like to speak to one of our team of nurses about your situation you're welcome to call them. They are available Monday to Friday 9am to 5pm on 0808 800 4040. 

    Keep in touch Annie and let us know how you're getting on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

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