Morning I was diagnosed with stage 3 advance prostate cancer with a psa of 120 I had prosap hormonal injections and radiotherapy my psa dropped to .6 after a year it went up to 1.2 and was doubling up every 4 weeks and my psa went up to 6 the oncologist has prescribed zitaga and persodene I was at the hospital last week and my psa has come down to 4 they are not concerned so I just feel I am getting the best treatment and what will be will be from all the scans it has not spread I know there is no cure and they can only do the best for me

David

Hi David. I take it you have a medical reason why they can't remove your prostate if as you said it hasn't spread.. 

Billy 

The cancer has broken through the prostate wall and it never came up to remove the prostate so they must have had some reason for not giving that option I have had numerous scans so many I have lost count so I presume it has not spread I have full confidence in the oncologist 

The tables I get I think is only available in scotland and I suppose each oncologist treat it differently it was prescribed by the professor sorry hit wrong button as I have replied in capital letters 

David 

Hi Billy, 

Just thought I'd share a little update we got today. Blood test results show his PSA has now dropped to normal levels from 132.3. So that shows that hormone therapy has had an effect. Chemo starts on the 18th so fingers crossed. 
 

I watched Bill Turnbull's documentary on Channel 4 called 'Staying Alive' about his life with advanced prostate cancer. It was super helpful and heartwarming. Have you seen it? It's on 4oD in case you want to check it out :)

How are you doing? 

Hi qwerty glad hormone therapy is working means cemotherapy can do a better job.. Didn't see that program I'll have a look thanks. Glad it was helpful to you. 

I'm same as usual, thanks just plodding on.

Really glad it's working well bet your relived. 

Billy xx 

Thank you so much Billy. I know this is all going to be a long process but I think celebrating the small wins makes a difference. 
There was a man on the documentary who was diagnosed with advanced prostate cancer back in 2015 and has written a lot about the lifestyle changes he's made. In case you want to read about that also :) thecancerjourneyman.co.uk/.../

I'm glad you're doing ok. Keep me updated also if you like :) am here for you. 
 

thank you for your kind words xx

Hi Billy, I hope you don't mind me reaching out again. First of all, how have you been and how is your treatment going? 
My uncle has started to deteriorate over the last couple of months. It's spread to his lymph nodes and he's had to have a catheter and has terrible swelling in his legs (for which he is now getting radiotherapy). He should hopefully start chemo for a second time in two weeks. Hes been in a lot of pain and can't sit as the cancer has spread to his back passage. it's been very difficult to see him suddenly display such physical symptoms. 
I wanted to ask you please (if you don't mind sharing)  as I know you have it in your lymph nodes - have you ever been through something similar (the swelling and the pain)? I'm just so worried seeing him struggle to walk and his legs and ankles swollen. It's the first time we've seen him really show some physical effect from his disease. 
It seems like other people have metastatic cancer but seem able to live very normal lives with just hormone therapy. It feels like his cancer is particularly aggressive...it's been hard seeing him like this. 
anyway, I hope you and your wife are both doing well. Thank you for reading this.  

Morning qwerty.  ,.   So sorry about your uncles pains And swelling . I've not had any bad pains or swelling so im afraid I won't be much help with that sorry again 

i do have some pains but can manage with painkiller . almost two years ago my PSA went up to 68 in three months and they put me on stronger hormone therapy (Enzalutamide tablets),its what men have for sex change . luckily it worked but really knocked me for 6 and BP dropped low so no energy and tired all the time .dose is now dropped so im feeling alot better , apart from treatment has made my teeth bad had top lot out.

i really hope your uncle soon gets chemotherapy and it does a good job, and he doesn't have many side effects .

But thinking of him and wishing him good luck  .

Been in lately as cold out be glad when warmer weather, Brenda is as good as can be likes to go out back and lay in gazebo with radio and watch birds feeding  .

Thinking of you hope you are keeping well .

Billy X

Morning qwerty.  ,.   So sorry about your uncles pains And swelling . I've not had any bad pains or swelling so im afraid I won't be much help with that sorry again 

i do have some pains but can manage with painkiller . almost two years ago my PSA went up to 68 in three months and they put me on stronger hormone therapy (Enzalutamide tablets),its what men have for sex change . luckily it worked but really knocked me for 6 and BP dropped low so no energy and tired all the time .dose is now dropped so im feeling alot better , apart from treatment has made my teeth bad had top lot out.

i really hope your uncle soon gets chemotherapy and it does a good job, and he doesn't have many side effects .

But thinking of him and wishing him good luck  .

Been in lately as cold out be glad when warmer weather, Brenda is as good as can be likes to go out back and lay in gazebo with radio and watch birds feeding  .

Thinking of you hope you are keeping well .

Billy X

Thank you for your reply Billy. It's so nice to hear that you're doing well and so is Brenda. Thank you for being willing to share and your kind words. I'll be praying for you and my Uncle. Thank you x