Prostate Cancer Gleason 9

Hi all, 

My uncle has been diagnosed with high risk, locally advanced prostate cancer. His Gleason score is 9, it is T3b, and his PSA is currently 132. 
In terms of spread, he is M1a - it has spread to lymph nodes and nerves but not to bones or organs. Doctors have recommended chemotherapy and he is currently on hormone therapy. He is 51 years old. 
I just feel very scared and I would really appreciate speaking to someone who has had prostate cancer, especially of a similar score/category. I want to understand how "bad" this is, and if I should be hopeful or not. While I am probably looking for reassurance, I also would like to know the reality of what to expect. 
So many questions run through my mind...does he only have five years, is this terminal, can be ever be in remission? 
 

I would really appreciate the stories of people who have been through this. 
 

thank you so much 

Parents
  • Morning I was diagnosed with stage 3 advance prostate cancer with a psa of 120 I had prosap hormonal injections and radiotherapy my psa dropped to .6 after a year it went up to 1.2 and was doubling up every 4 weeks and my psa went up to 6 the oncologist has prescribed zitaga and persodene I was at the hospital last week and my psa has come down to 4 they are not concerned so I just feel I am getting the best treatment and what will be will be from all the scans it has not spread I know there is no cure and they can only do the best for me

    David

     

  • Hi David. I take it you have a medical reason why they can't remove your prostate if as you said it hasn't spread.. 

    Billy 

  • The cancer has broken through the prostate wall and it never came up to remove the prostate so they must have had some reason for not giving that option I have had numerous scans so many I have lost count so I presume it has not spread I have full confidence in the oncologist 

    The tables I get I think is only available in scotland and I suppose each oncologist treat it differently it was prescribed by the professor sorry hit wrong button as I have replied in capital letters 

    David 

  • Hi Billy, 

    Just thought I'd share a little update we got today. Blood test results show his PSA has now dropped to normal levels from 132.3. So that shows that hormone therapy has had an effect. Chemo starts on the 18th so fingers crossed. 
     

    I watched Bill Turnbull's documentary on Channel 4 called 'Staying Alive' about his life with advanced prostate cancer. It was super helpful and heartwarming. Have you seen it? It's on 4oD in case you want to check it out :)

    How are you doing? 

  • Hi qwerty glad hormone therapy is working means cemotherapy can do a better job.. Didn't see that program I'll have a look thanks. Glad it was helpful to you. 

    I'm same as usual, thanks just plodding on.

    Really glad it's working well bet your relived. 

    Billy xx 

  • Thank you so much Billy. I know this is all going to be a long process but I think celebrating the small wins makes a difference. 
    There was a man on the documentary who was diagnosed with advanced prostate cancer back in 2015 and has written a lot about the lifestyle changes he's made. In case you want to read about that also :) thecancerjourneyman.co.uk/.../

    I'm glad you're doing ok. Keep me updated also if you like :) am here for you. 
     

    thank you for your kind words xx

Reply
  • Thank you so much Billy. I know this is all going to be a long process but I think celebrating the small wins makes a difference. 
    There was a man on the documentary who was diagnosed with advanced prostate cancer back in 2015 and has written a lot about the lifestyle changes he's made. In case you want to read about that also :) thecancerjourneyman.co.uk/.../

    I'm glad you're doing ok. Keep me updated also if you like :) am here for you. 
     

    thank you for your kind words xx

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