Hi qwerty my prostate Cancer went to lymph nodes, spine, ribs, pelvis and a lung gleason 8 stage 4 psa 1581 T3B  N1 M1B I was diagnosed Feb 2016 straight onto hormone therapy (decapeptyl) then chemotherapy (docetaxel) been fine since kept working, had to retire to look after my disabled wife she needs 24 /7 care she has Alzheimers and parkinsons. Oncologist usto call it uncurable its now called palliative care,. Any questions please ask.???. Billy 

Thank you so much for your reply. I really appreciate it. 
May I ask please if your cancer has spread since your chemo and hormone treatment? Or is it under control? 
 

Also was chemo very difficult and how long did it take for you to recover from it? Is there anything you think family members can do to help?  
 

Thank you so much for helping me during this time. I am really happy to hear that you are doing well and I pray you are long kept in the best of health. I will keep you in my prayers  

Hi qwerty, to start with they said five years, but that's completely wrong. I had 6 sessions of cemotherapy one every three weeks. Grandson took me for the first one with not knowing if i was going to be OK after., i know I'll need more chemo sometime when psa rises again also chemo will help to keep other cancer down. Don't forget I've still got cancer it's just under control i call it my uninvited guest, Glad to help. If i can help anymore don't worry please ask...........

Billy

P.s oncologist reckoned I'd need more chemo before a year was out still not had second sessions yet and very nearly four years have passed. Hope things go well for your uncle. 

Hey billygoat, how are you doing? I just wanted to check in and say thanks again for your comments. They give me hope. How's your health been? 
 

My uncles chemo will start on the 18th March. I'm really praying it's effective. One thing we're quite puzzled about is that everyone kind of says that prostate cancer isn't that bad (that it's one of the "better" cancers) but then at the same time seems very negative (it's not treatable, it's high risk, etc etc). We're not sure what to make of this I guess...like how worried should we be? 
 

thank you again.  

Hi qwerty if your uncle is having cemotherapy it is treatable, but probably like mine not curable. Remember you can live with it.

I'm just getting over a bug, nothing to do with cancer, but my immune system doesn't work properly so i struggle a bit. 

Glad your uncle is finally getting treatment. Hope things go well. 

Lovely to hear from you again was hoping uncle was still OK.

Billy xxx 

Hi Billy, 

it's a pleasure to hear from you again. Yes that is what the docs have said - it's treatable but not curable. 
 

We got some bad news again today. It has spread to the lungs and the lymph nodes around the lungs. I've been reading online and it says the prognosis for this kind of cancer is around 20-30%, which is making me panic and my mum (his sis) is devastated (my grandfather had lung cancer and she was with him throughout that so this hits her even harder). I am not sure what to make of it really. A part of me thinks, we need to love each day, one day at a time. But another part of me really hurts so much and the fear and worry is really very much there. I just really hope he turns out to be like you and five years later is still doing ok. 
 

I am really happy to hear that you are doing ok. It's gotten quite cold so maybe that's why you had a bag -  do make sure to take care of yourself, especially with Coronavirus now on the horizon. I will keep you and your wife in my prayers. Thank you for being someone I can speak to. You have no idea how much that means xxx

Please don't read online it's always gives you the worst prognosis (that's a very big word from me) and it's probably out of date, treatment changes monthly sometimes. Hope treatment works well.

Best wishes. Billy xxx 

Thanks Billy. You think there's still hope right, even though it's spread to lungs? 
 

it's hard to get anything positive out of doctors...they always only give you the worst case scenario.

Hi qwerty don't forget i had it on one lung, it depends on how much, a small amount chemotherapy should get rid easily if i remember right his lungs were clear earlier so it can't have been there long so a good chance to clear it up. Please try to be positive you seem to think worse case every time, 

Hope you are looking after yourself as well. 

Billy xx

P.s from being diagnosed to start treatment i was four months, that includes cancer in the lung. 

Oh ok...it's in both lungs and I think has spread quite a lot. I haven't been able to look at the report yet but been speaking to my sister who has. The earlier scans didn't cover lungs - he only just had the scan that looks at lungs, which is why we didn't see it before. 

thanks for your reassurances. I suppose because this is all so new, it just frightens you and your mind goes to the worst. 
 

thank you - I hope you are taking care of yourself as well and your wife is doing ok xx

Hi were managing OK. Just trying to figure out why they didn't do a full body or at least a torso scan it would have told them everything. Hopefully cemo will still work. Keep positive please.

Please let me know how things are going thinking of you both. 

Billy xx 

They did do a full body one before, but I think this doesn't show on that one until a specific lung one is done? I'm not sure myself, but will ask. 
 

Thanks Billy, I'll keep you updated. Please also keep me updated on your own health. Am also here for you to talk to if you ever need it.

thank you x

They did do a full body one before, but I think this doesn't show on that one until a specific lung one is done? I'm not sure myself, but will ask. 
 

Thanks Billy, I'll keep you updated. Please also keep me updated on your own health. Am also here for you to talk to if you ever need it.

thank you x