Hello from a new member of the family

Today I joined the army of people sitting around different waiting areas, carrying my belongings and my "gown" as we went through the various tests to find out if we had breast cancer. Some were, like me, totally new to the routine, others were at various stages in the journey and one lady was given the great news that she was still clear of her cancer five years since her treatment ended. 

I already suspected that my symptoms of strange lump, pain and puckering were caused by the big C, so I wasn't surprised when the lovely consultant showed me the first ultra sound scan with its big black area where there should have been breast tissue, saying it was pretty definitely cancer, and proceeded to tell me what would happen next. 

What did happen over the next two hours was quite unpleasant and painful and I now have a 12 day wait to find out exactly what we are looking at regarding type of cancer and treatment. Strangely enough I have no feelings of fear for the future, although twenty years ago I had a scare that saw me fearful and tearful, now I'm an old dear I'm just cheesed off that I will have quite a lot more unpleasantness to face. I'm one of those boring people who don't often get ill, so when I do I'm the patient from hell, or so my daughter tells me. I admit to being grumpy if I'm ill for more than two days. 

I have read a lot of the posts, here, during my wait to go for the tests, feeling like an outsider looking in, but now I'm in, too!   I suspect future posts from me will be less upbeat, but I would like to record my experiences here, and to share others' experiences, too.

Parents
  • Hi

    i had a similar visit 5 days ago, except I've never been through this before, I'm still waiting on CT as my lymph nodes were also affected 

    I don't know how I'm meant to feel, I just feel like I need all the results now and the wait is excruciating 

    I have a 3 week wait for CT due to coronavirus although I am on an emergency cancellation list

    i would welcome any advice at all on how best to deal with this, I'm 43 and have 3 young children 

    xxx

  • Hi AMil,

    I am sorry to hear you are joining the club no one wants to join!! I think my advice would be to always try and remain positive. Medicine has moved on so much that breast cancer has a really high survival rate - in the 90%'s. Talk to people - friends/family or even us. I found that people who had been through/were going through BC had a better understanding of what I was going through but my friends and family were still amazing. Try and keep busy, between appointments. Waiting for scans/results is definitely one of the hardest parts!!! 
    Remember, this is just a 'blip' The 3 of us all had very different journeys but we were there to talk about it and share worries and advice. Happy to do the same for you.

    Caroline

  • Hi Sam,

    congratulations on being back at work. I think it is a good milestone, even though you are cream crackered at the end of the day. 
    We had a similar wildlife adventure this week. My daughter's house looks out onto a fishing lake with lots of different water birds. We were delighted to see that the Muscovy ducks had managed to keep half their ducklings. Some years they lose them all to the foxes and pike. We met a neighbour who is big into rescuing, one year she took a clutch of ducklings and reared them to adulthood in her garden pond. She was looking for "Gully" a seagull that apparently had a broken wing. My daughter looked down at the grass edging the lake and said "I think you"ve found him" there was this little gull all curled up, and I think he was breathing his last, but this lady grabbed him and carried him off in her arms to who knows where. We haven't seen her since to ask about him but I don't think it will be good news.

     

    Welcome to the world of telephone consultations, let us know how you go on. I hope you get your DIEP, done. It looks very unpromising for the immediate future COVID  wise, so you might have to wait a bit longer. I hope not, though. 
     

    I have had a busy week, the first for many months. Last Friday I went for the mammogram, as previously reported, then on Monday my son arrived back from caring for his in-laws in Ireland. He told me he would probably go home and self isolate before coming up to see me, depending on how much interaction he had with others on the ferry. Anyway, he hardly saw anyone on board so made the detour to come North before going back down South. It was lovely just spending a couple of hours with him. Then on Tuesday, my niece, who lives as far South as possible, on the Kent coast, came to see me. She and her husband were staying at a holiday cottage just up the motorway from me so they brought their gorgeous dogs, a whippet and a lurched, and we had a lovely time catching up. 
    Today I went to the Lympho clinic and everything is going well. I just need to carry on the drainage exercises. 
    When I got home I had a couple of missed calls from a withheld number- the hospital with my mammogram results. Apparently that area of dead fat they found last year has shown up as calcification so they want to do a biopsy to check it out oh joy!  While I was writing this my phone rang again with my appointment for next Monday at 11 am. No messing about there. I don't have any reason to think it is anything serious. Last year I had been frighteningly fatigued for a couple of months before my diagnosis and this year I've been a roofer, a lumberjack and a removals person in the last few weeks. My daughter needed to move a big metal tambour unit from her porch to her garage. Unfortunately the garage is about ten feet higher than and twenty yards away from the porch up a series of steps. We managed! I think I'm going to write a new CV offering my services as a general handy woman!

    Keep well, both of you! 
     

    Christine xxx

     

     

  • Hi ladies!

    So mammogram was today. I was worried to be fair, more because my "back flap" boob still hurts so I was worried about it being squashed. They were very good and did stop when I said it hurt. I found it pulled on my back scar too. Just got to wait now - 2/4 weeks for the results.  I'm not too worried about the results though. 
    I met up with my 'cancer buddy'  for a cuppa as her mammogram was a couple of hours after mine. We met at the 'non stop' breast cancer clinic last June and were diagnosed on the same day. 
    Then this afternoon I went and had a tattoo!! I will have to see if I can put a pic on!!
    Christine, what a bummer re having to go back for a biopsy. Fingers crossed all is fine! 
    Sam, you sound like you are mucking along, getting back to the normality of work!  I have everything crossed that your op will go ahead as planned. All this Covid increase isn't really anything we haven't been expecting but such a pain in the ***. 
    I actually like staying in than going out nowadays!! 
    We pick up our new puppy on Sunday! I'm expecting the hard work to come and have booked to work from home next week! My sleep is pretty crap now I'm taking my tamoxifen again, so I'm such getting up for a puppy will be a doddle :laugh: 

    Make sure you both stay in touch - let's get through this first milestone without any major hiccups!! 
    Love to you both.

    Caroline

  • Hey Caroline,

    Ouch! I forgot you would have to put your "bad" boob through mammogram as well as the remaining "good" one. I only had dangly DD to squeeze so no pain there.

    I love the tattoo! Where is it? I can't tell from the photo.

    You will have to put a photo of your puppy on here so we can drool. The one thing I did manage to train Archie to do was to go to the toilet outside. It involved l o n g stretches of time during the first week, in the garden saying "Weewee Archie" followed by extravagant amounts of praise when he did his duty. He cottoned on to what I wanted him to do after only a few days, in fact, I still have nearly a full pack of the one pack of puppy pads I bought, we had so few accidents. Any other attempts at training failed because Faith kept interfering, she wanted to be his boss, not me.

    I am sure all will be ok when I have the biopsy, I'm just not looking forward to the event itself. The nurse said I will have to go into the mammogram machine again before getting an injection of local anaesthetic and then they'll do the biopsy. I read later that calcification only shows up on a mammogram, not on ultrasound so they have to put me in again to see where the chalk is,weird!  That's how she described it.  Still, the fact that they have got me in so quickly shows they are still working that end of the job properly, even if they are failing on the normal follow ups. It would be too ironic, if, after all the fuss I made about getting both breasts removed, last year and being refused,they had to do it anyway! I don't think so, though.

    i know how you feel about staying in, after being sociable with my visitors, this week, my daughter suggested the two of us went to the pub for tea the next day. Then that night I saw that our local Covid infection rate had doubled in a week and we were now in the top fifty for cases, we decided to stay in!  So it came as no surprise when it was announced today that we were included with the rest of Lancashire now for more restrictions.  I'm so glad I got my visitors this week!

    I'll let you know how I go on with the biopsy. You must let us know when you get your mammogram results, and you, Sam, must let us know how you go on with your DIEP plans and what your oncologist has to say.
     It's been a funny old year with one thing and another, 2019 and breast cancer has sort of faded into insignificance compared to 2020 and the pandemic! Who would have thought it?

    Take care, stay safe,

    lots of love

     

    Christine xxx

     

  • Hi Christine,

     

    The tattoo is on my right inter arm. Oh and just to make you chuckle - I was doing a good deed last week and went to pick a friend up, for a birthday meal and got caught speeding!!! 
    Caroline xx

  • Hi Caroline,

    So many people I know have been caught speeding, we have come to the conclusion there is a money making drive on, to compensate for the lack of people driving ( and speeding) during lockdown. 

    I did chuckle! Horrible person that I am. :)

     

    C xxx

  • Hello ladies,

    Just to let you know all good here.  Had my follow up meeting, by phone and it was OK, mainly as had low expectations thanks to yours and others experience.  I gave the nurse a list of actions at the end of the call and she's done OK so far. I was back at hospital today to have lumps and bumps around armpit checked, I had to laugh when she declared that I needed an ultrasound as one wasn't clear scar tissue, turns out, as I suspected, all fine.

    I now, post falling off bike!, have lymphodema so am being fitted for a sexy compression garment.  I find its got better after I looked for lymphodema massage on you tube (sounds like what you do Christine?), not sure why the nurse didn't suggest this....

     

    So Caroline you're turning into a right outlaw, speeding and a tattoo!  Like it (on both fronts).  And agreed they are generally money making machines rather than increasing road safety but, as Christine will no doubt testify, the courses are actually, and surprisingly very good. So enjoy!

    I'm surprised they mammo'd your recon boob, presumably there's still some breast tissue in there?  As they removed all mine I'll only ever have mammo on RHS.  Good you're taking the drugs again, pants they affect your sleep, I am so lucky that I can sleep well.  How's the naughty puppy getting on then?  What's he eaten so far that he wasn't meant to?

     

    Christine - what news of the biopsy?  I think I might have had calcification in the LHS that was removed via wide local excision...a breeze vs mx.

    I see that a lot of the north is on lockdown, was lucky got up there a couple of weekend ago to see my Pa, who is recovering well.  Also went to the Yorkshire Sculptue Park, never been before, I heartily recommend it, interesting pieces in a lovely setting. Am lucky that my Father is in the better behaved North Yorks!

    It sounds so lovely where you are with ducks and all, do hope that gull is OK, hate the thought of any animal in pain.

    What skills have you added to your extensive repertoire since metal manoeuvrings?

     

    I was due to have a bone scan to check no spread pre DIEP on Friday but en route to hospital got a call to say they'd messed up and it would be in Nov!  Surprised? Sadly no, so we're now on for 2nd Nov...I have a banging CD at the ready!  I remember last time I had MRI the best 'music' they had was big band type stuff...not really my taste..

    Tomorrow is first full (9-5) work day!  What a milestone...may need an early night after spreadsheet overload tomorrow.  That said I think I managed to kill my new work laptop earlier so may be having a nap whilst I wait for IT (lack of) support...

     

    Anyway, what's really important is that (cue drum roll), just to show some doubting Thomas's wrong, I have actually completed a cushion cover!! Yep, you read correctly, its been over a year in the planning but finally I overcame the procrastination and cracked on. Just to make life challenging it was a wedge pillow thing that will come in handy post DIEP so normal cushions will now be a breeze! If you don't look closely it looks quite good.  Not bad for what used to be a roman blind.  I'll see if I can add a picture.

     

    Glad you're both doing well and remain lurgi free!

     

    X

  • Hi girls, 

    Sam, I hope you have survived your full day at work, are you working from home?

    Sorry about the mixup about your bone scan. It's little things like that which cause stress even when you weren't stressed before. I hate MRI scan music, too. 
    Now I've pretended to be a kind, caring old dear, I'm going to show my true colours and say "What??? I am stunned beyond belief to hear you have completed a cushion cover!!!"  Just shows what can be done with determination,  Just kidding, I knew you could do it. 
    Alas we have had no update on "Gully" we do not expect good news. The ducklings are still doing ok, though, which is really pleasing. 
    My biopsies were the delightful experience you can imagine. I don't think they actually got a sample of the calcification because after ten or more attempts with that horrible punch thing that felt as though he was stapling my boob to the mammogram machine, while I was pinned under it, the doc stopped it as I'd been through enough, his words.  They were all saying how brave I was as he kept trying and trying. I asked did people usually cry, and was told they usually scream!   My daughter's neighbour said she had only had one and she passed out and wet herself! My daughter says she now knows where she got her toughness from.  As I said, the outcome of the efforts could be nothing as the doc said I'll probably just be advised to have another mammogram in twelve months. I'll let you know if I hear anything different. 
    I'm sorry you've got lymphoedema, my exercises were given to me by the nurses at the lymphoedema clinic and I was referred by the physiotherapist at the hospital. I don't think the breast nurses know much about it. I find things that you would expect to be part and parcel of the breast cancer nursing agenda are often dealt with by a totally different department and ne'er the twain shall meet! 
     My knees have been playing up again, recently, so I phoned the GP to see if I could get another injection. He said he was happy to do it as arthritis is always worse in the Winter but I would have to sign a consent form because there is a risk that steroid injections can lead to a more severe illness should I contract Covid 19. I signed the form and I go for the jabs tomorrow, then I shall just have to be extra careful about my social distancing. I was quite surprised that I hadn't heard this before. 
    Caroline, I love your tattooI. I sometimes think I would like a small one, somewhere discreet but I would never have the courage. I never had my ears pierced in case it hurt and don't even mention micro blading my eyebrows!!! I am a right wimp for someone as tough as my daughter thinks I am! I hope all is well with you. How is the puppy doing? I hope he's not like Archie with his taste for everything inedible. 
    Stay well, stay safe!

    Christine xxx
     

  • Hi ladies,

     

    Puppy pic in my profile picture! Oh god! I'd forgotten how much work puppies are!! It's full on! I worked from home last week and this week am doing 2 days at home,2 days in the office as in-laws are on puppy duty. He does now sleep through the night until 7/7:30am. Only a few toilet accidents inside - mainly due to us not taking him out on time. But you do need eyes in the back of your head! He hasn't wrecked anything yet - fingers crossed!!! 
    Still no mammogram results. But I'm going on the notion that no news is good news! My RHS - (dodgy rebuilt boob) does still have some breast tissue, across the top, which is why they mammogrammed it.
    Sam, good luck with full time work! I can't manage that in normal circumstances :laugh: So do you now have a lovely arm bandage for your lymphodema? A bit pants re your bone scan. I had a dexa bone scan last year, to assess my bone density but it was done and dusted really quickly. None of the awful MRI music or banging machine. Hopefully it will all be fine too.

    Christine - oh I remember those biopsies!! And have to agree with your daughter that you are really brave while they tried all that many times! I had 3 done at my initial assessment and that was bad enough!! 

    I see my consultant on the 7th and am assuming I will be formally discharged then!! Then it's a case of "get on with it" which I actually don't mind. I don't seem to be feeling as anxious now so am happy to get on with a cancer free life!!

    Caroline xx
     

     

  • Caroline,

    Am loving that puppy...especially like his 'in mourning' black arm band on front paw!  He looks like a wee devil, but a cute one.  Once he's all toilet trained etc you'll be chuffed with your efforts and can reflect on your achievements (as I am with my cushion ones...puppy's, cushions...very similar I think you'll find).  What's his name, for some reason I think he's called Eddie but have no idea why & probably made it up (like I do a lot of things).

     

    Yeah I'll be getting a compression sleeve which I think is for when the arm is active. The bone scan is to check for cancer spread, its different ( so I'm told) to the density one...I'll be having one of those when I finish bisphosphonates in 3 yrs to check there's actually some bone left or something, they 'assume' that the bisphosphonates are doing their job in the meantime (!!).  Fingers crossed & all that.

     

    Good assumption on the mammo front, if there was something amiss, even in this day & age, they'd be on it straight away so in this case no news is good news.  That said I would check in the not too distant future as things can get missed (just to be on the safe side).

     

    So on the 7th that's when you're told you're formally in remission is it?  I remain a tad confused as to whether I am or not, as no-one has ever told me (but I've never asked).  I have an appointment with onc mid Nov and was thinking that would be the discussion then??  Glad you're moving on and anxiety levels are low, its the way we ladies should be but, sadly, not all can achieve.


    So you two have lovely animals as your avatars and I now have a cushion!  Decided after 5 mins of inability to do elsewise to show you my homemade delights this way.  Amazing what you can do with a sewing machine complete with dummyesque instructions and an idiot determined not to waste old curtain material (such a tight northerner!).

    Christine - I had one of those punch biopsies, it was fun, no peeing or crying though, I'm a tough old boot too who thankfully has a high pain threshold.  Good that they tried many times though...!! Your boob must resemble emmental by now.  Well done though.


    Full work day fine...as expected.  Its good to be being productive (work-wise) once again, I will however miss my long morning cycles and trips to the gym whilst its nice & quiet.  That said, and the reason why I'm sending this mid-day I have now managed to break 2 laptops this week so am awaiting IT to sort me out (they're never in a rush). And no stresses at this end...well not until I was discussing the date of my DIEP and figured that the secretary was making an appointment for a Fulham hospital and I was assuming it was the local hospital, where I had my initial consultation...so need another date for that or trips into bl00dy London which I really don't fancy on so many levels.


    Actually, now I've been 'seen' and had it confirmed its lymphodema it seems to be a lot better, think my massaging technique c/o youtube is most excellent...I can see the bones on the top of my hand again.  I seem to be lucky that although I get a fair few side effects they're only temporary.  Still will get a sleeve as it may come back.


    Hope the steroid injection was more pleasant than 10 punch biopsies...you'll leak when you drink at the end of this week I reckon.  And more importantly hope it works and doesn't lead to more side effects (nothings for free re drugs & bodies is it?).


    Have a fabbo rest of week both XX
     

  • Loving the cushion!!! Lovely colours and very trendy looking. 
    Yes! Puppy is called Eddie. The black front leg is a very distinguishing feature!! He looks like he is wearing an arm band or bandage. He's a very quick learner and has already learnt to sit and give you his paw. 
    Do we get told we are ever in remission?? I don't know! I suppose we will be classed as being 'cancer free', which sounds fabulous in itself!! 
    And you'll breeze the DIEP!! Walk in the park :wink:

     

    Here's to hoping you get a quiet afternoon while your lap tops are fixed! I am working from home - in between doing puppy sitting and housework :laugh::laugh:

     

    Have a fab weekend!! 
     

    Caroline xx

Reply
  • Loving the cushion!!! Lovely colours and very trendy looking. 
    Yes! Puppy is called Eddie. The black front leg is a very distinguishing feature!! He looks like he is wearing an arm band or bandage. He's a very quick learner and has already learnt to sit and give you his paw. 
    Do we get told we are ever in remission?? I don't know! I suppose we will be classed as being 'cancer free', which sounds fabulous in itself!! 
    And you'll breeze the DIEP!! Walk in the park :wink:

     

    Here's to hoping you get a quiet afternoon while your lap tops are fixed! I am working from home - in between doing puppy sitting and housework :laugh::laugh:

     

    Have a fab weekend!! 
     

    Caroline xx

Children
  • Hi Girls,

    I think I am going to change my photo from the "heeland coo" to something that relates to my nom de plume, so I'm going to put up a photo of Archie!

    The reason I am actually writing just now is to metaphorically scream!  I've just had a call from my BCN to say they want to do more biopsies because they couldn't get any of the calcifications to test last time!  Aaaaaaagh!! I told her how delighted I was to hear that, in view of the fun I had last time - NOT!

    My sensible head says it's better to be sure than to wait a year, but I'm not looking forward to being stapled to the machine again. Still, he might find a sample straight away, this time and be done in one go.  Ever the optimist!  I am waiting for a call with my appointment now.

    I hope you are not being washed away by the rain. My back garden is looking like Venice with canals instead of paths. 
    Take care, stay safe

     Christine xx

     

     

  • Oh Christine that's pants! I got my mammogram was "satisfactory" letter so that's good but then got a call today to say that my annual check up tomorrow, with my consultant has now got to be changed to a telephone call!! Yet again!! So again I have no one giving me a physical check over!! :angry:

     

    Caroline xx

  • Oh Caroline, 

    That physical check by someone who knows what they are looking at and talking about is so important. I found the telephone call very unsatisfactory as a check up. Even going for the mammogram and biopsies doesn't feel particularly satisfying because the people involved only know their bit of the business and can't answer the questions about how I'm doing with regard to recovery, remission or possible recurrence etc.

    Thank goodness we aren't going through those early days now, it must be terrifying. 
    I wonder if the moderators will censor this. It's a bummer!

    Chin up and try to remember your questions tomorrow.

    C xx

     

  • Hiya!!

    Caroline
    You'll maybe not surprised to know that I'm not a fan of muted colours, the thought of a grey or beige house is not my idea of fun, my house is quite colourful and my current and ex-curtains ( the latter now being a cushion cover) follow my love of bright colours.  The boyfriend is more of a Farrow & Ball lover, another reason why we could never live together...
    Is Eddie sleeping through yet?  What has he eaten? When I visit my pals cockerpoo we have to put shoes on the tops of dining table chairs so that they remain intact...little monkey.
    Good that mammo all clear, hope annual check up all good....am sure it was. I got to see someone F2F by asking that they check out my lumps & bumps (which were confirmed to be scar tissue)...just to be on the safe side.

    Christine 
    Whilst Eddie is cute, Archie definitely wins in the fluffiness dept! Good to see him in all his glory, and he so looks like butter (well fat balls in his case) wouldn't melt ...
    Whilst its good they're determined to find out what's going on in that boob, its pants that you have to be hole punched all over again...no fun at all.  I do wonder given they couldn't get a decent sample last time what they'll be doing differently this time? 
    Hope your garden is a little less soggy now.  I came across a large mud & horse muck bog last night that was the breadth of the bridlepath I was cycling on, no way I could cycle through so got off but 2 ft deep bog got the best of me and sucked me in so I fell over, had a very soft but smelly landing.  Then the dog walker behind me pointed out the way she was going and there was actually a way round...great!  I do like to think that I at least gave her some amusement with my muddy/horse cr4p covered ar5e/feet & legs/hands.  I do think that ingesting horse muck must have medicinal properties, lucky for me.

    Spent the weekend harvesting about 80 bl00dy chillis!  I was dreaming about de-seeding chillis Saturday night and now have enough green chilli sauce, marinara sauce, picked and oil infused ones to last right through the winter.  I now know I'd never make it as a farmer.


    Well I now have a weeks holiday...lovely. What that means nowadays is longer bike rides, doing chores (cue a clean house), last of the bulb & bedding plantings and more cushion construction!  A thrilling week indeed...will hopefully be seeing a pal over from Southern Ireland too in sunny Bedford (!!)....think its far enough away from dodgy bits of the Midlands.  Let's see what Boris has to say later though eh?


    Having now gained (lymphodema created) sausage index & middle fingers I'll be doing super long massages...still no date for compression sleeve fitting, at this rate it will be delivered by Santa.  Think I've also got mild asthma from radiotherapy....these don't really bother me just a tad annoying more than anything, gives me something to moan about & focus on I guess!  Still waiting for confirmation of DIEP date...lucky I'm a tenacious person eh?

    Right time to go to gym, that chest & back aren't going to work themselves out!!!

    Hope all good in the naughty north & sunny south X
     

  • Hiya!

    Sam you make me laugh even when you are reporting a catastrophe!  I won't even take the dogs on muddy paths when the weather is wet. You can imagine what Archie looks like after a muddy walk, and Smudge has the same kind of coat, just a different colour. I hope it was only your pride that suffered in that fall!

    As I was reading your message the phone rang - the landline - only ever rings when someone wants to sell me something or scam me, or worse, number withheld!  That was the case today, so I answered it, don't answer unknown numbers but withheld means the doctor or the hospital and sure enough it was the BCN with my appointment for what she euphemistically called a "procedure". So tomorrow's the day for pinning me to a machine again. 11 o'clock, whoopeedoo!

    I was checking up on the calcification thing and apparently if they are large in clusters they are usually totally innocent but if they are tiny and spread apart, as mine are, they can be sinister. Unfortunately, being tiny means they are difficult to grab!  I thought with the new increase in local Covid 19 cases that they might delay my "procedure" but, alas, they are eager to get me done. My daughter says it might be a way to get the other boob lopped off, as I wanted originally! She's very optimistic - or something!

    I think you are having it worse than me, with your fat fingers and asthma and all. I'm well impressed at your horticultural and culinary activities! I love chillies, in all forms, but never thought of growing them. The nearest I got to growing anything, recently was planting the base of a head of celery and sure enough it started growing and I followed the instructions to water daily, but it should be ready for picking now, after five months but all I've got is an abundance of leaves, the stalks have not grown at all. Still, it looks nice and smells good.

    Enjoy your week off, I hope Boris doesn't scupper your plans to meet up,with your friend..

     

    Caroline, 

    Did your telephone consultation happen and how was it? 

    How is Eddie? He sounds like a delight and looks adorable.  I'm impressed with his sitting etc. It took me nearly three years to get Archie to learn anything! It didn't help that he only took notice of Faith, who sabotaged everything I tried to teach him. He's a much nicer dog now. 
     

    I'm expecting to be in a bit more of a lockdown after Boris speaks to us today as we are on the list of the boroughs expected to be on the top tier, even though we are very near the bottom of that list. One of my girlfriends has tested positive this weekend. She works as a bus escort for children with disabilities and has been worried about her exposure to the virus since the schools went back. She has lost her sense of taste and smell and is very fatigued, (and bad tempered, she says) but not feeling too bad. Her husband and son have to self isolate, too, but are keeping out of her way. It's difficult keeping isolated within the family. 
     

    Stay safe, stay well

     

    Christine xx

     

     

     

  • Just a question!  Do you find yourself checking on some of the people you have been in contact with, on here, if you haven't seen/heard anything from them for a while?

    I do! Not the most sensible thing to do, I know. One person I was in touch with was diagnosed with the cancer that killed my dad within ten weeks of diagnosis and this person's posts became more and more worrying then stopped. I knew he must have died. He had no one, just his dog. I was heartbroken!

    x

     

  • Hi Ladies, 

     

    Firstly, between the 2 of you, you never fail to make me smile!! Sam, your tale about falling over in the mud was funny:laugh: and loved the addition of numbers into the naughty words! :wink:

    Had a funny old week last week. Not sure if it's my hormones or what but felt very emotional all last week. Had my phone appointment which was very quick. But they are going to send me for a bone scan as I mentioned that I've been getting quite a lot of hip pain. I don't think it's anything sinister - more likely old age/wear and tear or muscular. Consultant said if it is fine, they will discharge me which actually made me very emotional as I feel like I am being deserted! Then I was 50 last week too and think that made me very emotional too!! So I've been a bit weepy, tired and down for the past week. But on the positive side my family and friends thoroughly spoilt me and I set up a fund raising page on Facebook to raise money for a local cancer charity and we ended up raising £1200! So that's positive. I saw a few friends over the weekend so did manage some very small celebrations.

    Eddie is a handful - especially when he has his hyperactive spates!! But he's sleeping through the night and will choose to go in his crate by himself. He's not destroyed anything yet! (Touch wood) he has found an old pair of slippers, which he likes to chew but I know I shouldn't let him. 
    Christine, I have everything crossed for tomorrow!! Let's hope they manage to get the samples and all is fine. 
    I have a couple of people on here, who I message privately every now and again but that's all. Very sad re the gentleman you mentioned and I suspect your prediction is correct or he found the support somewhere else.

    Right off to pick up youngest son from the gym!!!

    Caroline xx

  • Hi lovely ladies,

     

    Today I feel like I can breathe again! My bone scan results came back - no cancer in my hips!! Relief doesn't even come close to how I feel! I had worked myself into a real state and was convinced I had secondary cancer in my hips! They said I do have degenerative changes in some of my joints but that might run alongside my osteopenia. I'll just keep taking the adcal and joint pills! I have never felt so frightened and was convinced my time was going to be cut short so now I need to stop letting this cancer take over my head! Life is too short for me to spend time worrying over things that might come back, so cancer is parked - done and dusted!!! 
    Hope you are both well!!! 
    Caroline xx

  • Oh Caroline 

    I am absolutely delighted with your good news but feel quite sad that I had no idea you were going through all that fear again. I just thought you were suffering from hormone related problems. I blame everything on the Letrozole!

    I haven't been on here for a couple of weeks because I have been too grumpy. The second attempt at capturing a sample of the calcification in my right breast was another failure. This time it was a different team and the doctor said he would send away the tissue he had got (from a dozen attempts) to see if he had managed to capture the elusive chalk and then it would go to the MDT for a decision on what to do next. The experience this time was worse than the first, probably because I knew what to expect.  The staple effect wasn't as bad as the first time  but I nearly hit the roof when he injected the local anaesthetic it hurt so much, then I was trapped by the boob in that chair for an hour while he tried again and again to get a bit of the chalk.  It really knocked me for six. I think my body went into shock because I felt ill for the next two days. 
    I had just about got over it by the weekend, then on the Saturday i did something to my knee as I was getting up from the toilet and have hardly been able to walk since. The steroid injections I had a few weeks ago didn't help my right knee and I was in so much pain the doctor I spoke to sent a prescription to the pharmacy and a man turned up in the afternoon with 50 Tramadol and 100 Paracetamol! The first night the Tramadol knocked me out for a blissful eight hours, less on the second night and failed to do anything for the pain the third night. I was worried about taking it during the day in case it made my head spin and reverted to my codeine and paracetamol but my daughter, who cannot function without a huge number of meds every day, has told me to try taking the Tramadol as prescribed every four hours to see if it works. She has been walking Archie for me and wants me better!  My own doctor rang and said I probably hadn't done anything to the knee, that it was the arthritis causing cartilage to slough off and touch the nerve. He has ordered an X-ray of the knee and is referring me for knee replacement surgery. Apparently the two MRI scans I have had on that knee are not acceptable as evidence that I need surgery! It just shows how bad the pain was that I accepted that I need it.
    In the meantime a letter came via email with an appointment to see the breast cancer nurse on January 5th and one came in the post telling me the biopsies showed only breast tissue and not to worry, except we knew it was breast tissue and wanted chalk!! 
    Then to cap it all my lovely brother in law has died suddenly and we don't know anything else as his daughter was too upset to tell us any more and we won't be able to go to his funeral as he has too many closer relatives .

     

    See why I've been grumpy? I think I need chocolate!

     

    Take care!

     

    Sam, I hope you are ok, managing to stay on the bike and get to the gym. Have you had your DIEP date?
     

    love

     

    Christine xx

     

     

     

     

     

  • Oh Christine!!!

    Im so sorry to hear that your brother in law has died. A  friend from school contacted me a couple of weeks ago to say his mum had died after a fall whilst in hospital. As well as it being a shock and sudden, the fact they can't have a proper funeral is really hard. 
    I hope they don't subject you to any more needle biopsies. If they are still worried, then surely they can do regular mammograms to check for any changes. And then your knee, to top it off!! Let's hope they can do something sooner rather than later as no one should have to put up with that pain. 
    Sending you virtual hugs. 
    Caroline xx