Newly diagnosed tnbc grade 3

Wow, 

First time posting on here and I'm a little nervous. 

I first found a lump mid April and finally got a doctors appointment with my GP on the 30th May!!!

Was seen by the breast clinic in the 11th Jun and had a mamorgram, ultrasound along with 2 core biopsies on the lump and 3 fine needle biopsies on the lymph nodes. My consultant said the same day that the lump looked 'suspicious' 

I went back for the results on the 21st June and was told I had grade 3 ductal carcinoma. Tbh, I was prepared for the diagnosis after reading on here how many people were diagnosed with cancer after being told a lump looked suspicious, but it was a shock all the same, particularly as it was grade 3.

The mamorgram I had showed M2 (clear with the exception of dense glandular tissue) as I have tiny boobie and struggled to get them in the machine. The fine needle biopsies of the lymph nodes were unreadable due to not enough sample. 

 

On the 1st July I went for an MRI which showed the breast clear of any further cancer but 3 enlarged lymph nodes. I went back for another ultrasound on the 3rd, where I was told I had triple negative invasive ductal carcinoma, and had tests for BRCA on the 4th.

All I've been told is that surgery and chemo will be  nessesary but not what surgery I'll be having nor whether I'll have chemo 1st or surgery first.

 

I go back on the 12th July for (hopefully a treatment plan) but just trying to prepare myself for things before I go.

 

I have asked for a double masectomy but I guess that will depend on the BRCA gene results. 

 

I'm 43 and have had benign breast lumps before and have had lumpectomies to remove them. 

 

Can anyone advise please? 

  • Hello love, sorry you find yourself on here....so you'll get your treatment plan tomorrow,  I think ( but I may be wrong) it comes down to the size of the tumour as to if you'll have surgery or chemo first....my lump was 11mm ....I had surgery first then chemo....

    once you have your treatment plan you'll be eager to get on with it....anything to get the wretched thing gone......

    let us know what happens? Xxx

  • Thank you Marilyn,

    Yes, I do hope I get my treatment plan. 

    The first scan I had the ultrasound measured 11mm but the MRI and the 2nd ultrasound it measured 15mm. They say its possible it was measured incorrectly the 1st time  it I feel as though its grown. 

    I'm itching to just get on with treatment now, seems like this has been going on forever and the wait is definitely the worst part so far.

    I found this forum by chance and am happy I have. So so many brave and positive ladies.

    How are you?, are you still having treatment? What surgery did you have and how long was/is your chemo for? (hope you don't mind me asking, don't feel as though you have to tell me if you don't  want to)

    Thanks again. 

    Best wishes xx

  • Hi,

    yes, it's the waiting that screws you up....of course I don't mind you asking......I had a lumpectomy first ( in January) followed by 4 cycles of chemo, I couldn't have the last 2 cycles as my side effects were in danger of becoming permanent and as I was having a chemo flush the oncologist said 4 would stand me in good stead.....I then went on to have 23 radiotherapy sessions.....not long finished those.....I'm also getting 3 weekly herceptin injections ( for the foreseeable) and started on my hormone inhibitors last week, I'm also about to start bio phosphates...phew!!!

    this forum was my God send when I was diagnosed....and looking back now the time flew..although at the time it felt like it was dragging....have you looked on the " good and the bad" thread? Lots of breast lasses on there.....

    xxxx

  • Crikey, you've been through the mill, 

     

    Friday didn't go quite as I'd hoped, still no definite treatment plan.... I have a pre op on Wednesday and surgery on Monday. 

    The core biopsies they last took from the lymph nodes have again come up unreadable so they're are going ahead with a lumpectomy and will use radioactive blue dyd to search the lymph nodes. I'm to go back 2 weeks after surgery to (hopefully) get my treatment plan.

     

    Oh well, at least things are moving now, I just want this thing out of me and start chemo so I can get on with my life!

     

    Thank you for all your advise. I really appreciate it xx

  • Your right about wanting to get on with things, I felt miles better once the gremlin was gone....I had the blue dye too.....still got a blue nipple! 

    Good luck and let us know how things go? Xxx

  • I will do. 

     

    My doc said I may look grey afterwards and my pre could be blue, so I replied, 'same as any other day then?'

     

    I've kind of just joked my way through the whole 'experience' as I find it's easier to deal with,

    People keep telling me that they can't belive I'm so happy and positive and I just tell them that I can't change what's going on but I  an change the way I deal with it. No point in balling my eyes out and not carrying on with my daily routines, it won't change what's happening.

     

    This cancer is like my ex, it may be a part of me now, but it will soon be gone!!!!

     

    Xx

  • Fantastic attitude! I'm much the same, I have a pretty dark humour and it's helped me no end through this.....I use to think....it is what it is....just got to crack on.

    lol.....kick em both to the kerb!! Xxx

  • Definitely me too!

     

    When I had my MRI, the radiologist said to let her know when I was 'in' so I immediately said 'in'

     

    She said, that was quick so I said, 'yep, God blessed me with a big nose and small ***, and I still managed to get cancer!'

    I don't think she quite knew what to say to me ‍♀️

     

    Please keep. Me updated with your recovery too xx