Hi Evie!

First of all, welcome to the forum. I just wanted to let you know some stuff about how this works, since it could be a little tricky at the beggining. If you want Oscar and Ginnie to know you have mentioned them in a post you have to write '@' and then start typing their user until they appear (try it, you'll see how it works). For example [@Oscar2020]‍ and [@Ginpo]‍ now are mentioned and a notification will appear in their account once they log in and probably will pop up here soon.

Regarding the friend request, just click on their username. You will be redirected to their profile page, and there you'll find one button that says "+Add friend". Once they accept it, you will be able to click the second botton "Message" and have a private chat with each of them. 

That's basically how most of this works, and I am sure you'll manage it soon. By the way, you are about to turn into a carer and should also seek help for yourself. Try to sleep well and, if you find it hard as it seems, I would try telling your GP about it. Don't feel guilty about it just because the one facing cancer is other person, you are going to turn fundamental in his recovery and you are as important. 

Love x :love:

Hi evie64 sorry to hear about your husband, you don't say what's wrong with him, different C, s needs different treatment, some people have no side effects at all others can be very bad, it varies from the person and the cemotheropy can be different,, until treatment starts I'm afraid it's guesswork, alot of people are sick, joint Pain as I said it varies a lot, good luck with your husband and look after your self,..

Billy 

Hello Billy thank you for the reply I am not used to using the forum I am not really used to any social media chats but I am desperate and everyone seems so helpful. He has throat cancer a tumour at the base of the tongue and 2 effected Lyphnodes. Still have a biopsy to have with GA but aware this treatment is quite brutal and has horrible side effects. I have cared for relatives going through chemotherapy but the radiotherapy of 7 weeks is really a worry to me. That’s as far as we have come hopefully see the Oncologist next week to plan treatment. 

Thank you lemonice so much to learn my head is buzzing . I am just off to work but will hopefully post a few messages and friends request very grateful .

Evie64

Hi Elvie we are all different of course but the docs asked me at the beginning how I felt and what physical condition I considered my self to be in. Even at 60 at the time im 61 now I was playing football 3-4 times a week, I carried on playing after being diagnosed as I wanted to be as normal as possible and not let this thing affect me if I could help it.

The treatment (30 radio fractions) began 3rd December and I stopped playing only because the travelling to the hospital each day prevented it, As you have probably heard the side effects kick in at about week 3 and peak after the treatment has ended, I think around the second week after treatment ended I started to play again, we play 6 minute games and I got by gulping water between games because of the dry mouth problems.

Your husband will be offered painkillers by your team, I didnt like the Oramorph (morphine) and only used it a few times as it gave me bad indegestion, I got by on the liquid Paracetamol. 

The soft toothbrushes from Amazon are called Curaprox

The toothpaste which is high in Flouride is Duraphat prescription only, ring the Dentist they will know.

The mouthwash is Difflam your team at the hospital will probably prescribe this, my wife made up two bottles of mouthwash too on the advise from my team, one with salt and one bicarbonate soda. I used these 3-4 times a day and they helped a lot with hygene and mucas removal.

If need any more help just ask.

Dave

Of course I have sent you a friends request . Ginny x

Thank you so much Dave I am grateful for your information and positive outlook. It really helps in the past I am 65yrs and have had difficult situations to deal with but something like this illness really knocks you back and it is so over overwhelming especially when my husband has been so fit and well and has always worked hard to keep fit. So you message really does help that it is doable with a lot of support thank you for your time posting I am a newbie the forum but it is so helpful thank you to everyone who has contributed as well. 

Hi Evie this is hazel welcome to the club no one really wants to join I am hazel now 9 month post radiotherapy for tonsil cancer h p v 16+ 

i have a blog www.radioactiveraz.wordpress.com where I do a blow by blow account if treatment and more importantly recovery  .

theres is also a good thread on livingvwith cancer sub section Radiotherapy for Throat Cancer where several  of us post regularly 

good luck Hazel