Invasive Lobular Breast Cancer

First time to post and feeling very scared. 

Diagnosed with Stage 2 Invasive Lobular Breast Cancer recently.  Underwent a therapeutic mammoplasty and axillary node clearance. Got the results of my surgery yesterday and was told that I needed more surgery (mastectomy) and chemo. The one thing that really frightened me was out of the 13 lymph nodes that were removed, 12 had cancer in them. I am due for a whole body CT scan on Monday, but I'm feeling pretty terrified. I have no symptoms/aches or pains bodily wise and found a thickening in my right breast a few weeks ago which I got investigated which turned out to breast cancer so still in shock. I have a lovely little family who I want to see grow up and feel very tearful and anxious, although hiding this in front of my children as I don't want to worry them. They know mummy has breast cancer, but not the rest which was told to me yesterday. 

Can anyone advise/help me please? 

  • Hello shades, I completely understand where your coming from ......I'm currently halfway through fec chemo for breast cancer, I thought the bottom of my world had fallen out...me? Cancer? Chemo? No way!! It's all a whirlwind and very scary....BUT....what I can tell you is that it all settles down, your in the first stages of panic and what ifs and buts.....

    I had a lumpectomy and now chemo flush....while chemo is no walk in the park life can and does go on during it....I promise you! 

    They want to keep you well during chemo and will be keeping an eye on you...doses can be tweaked and the first cycle is always the scariest, once it's under your belt I promise you ..you will crack on with it and be ticking them off...

     

    im always popping in and out of the forum....and here if you need to chat xxx

  • Hi, I hope and pray your CT scan is clear

    but yes biggest problem is our brains and keeping a good front infront of family, it is truley terrifying and exhausting.

    I have young family son 12 daughter 8. Im a radiographer and work in very department i was diagnosed in. i only posted first time this week too. Big mass I could see in my reflection and embarrassed not noticed it sooner. Diagnosed January 10th, stage 2b invasive er+pr+her2- 36mm by 30mm with second tumour growing. Sentinel node positive, Mastectomy 30th Jan, no reconstruction at moment as radiotherapy to chest wall. I was told id have all treatment and accepted that including the chemo, but they then did the oncodx and said score was 10  low so would likley not benefit from chemo, but i wanted it anyway to fight all cells as I'm 45 youngish and fit. But oncologist said no, I'm still struggling with lack of control over myself and their decisions . Ctl scan clear after cysts found in liver but ok, but looks like a bone staging scan was missed so waiting to hear if needed. Started radiotherapy this week, and my son came to see the machine. I'm having counselling from mid may when I start tamoxifen again reacted badley few weeks ago when i tried it.. I'm teary a lot alone when I walk dog on beach.  I'll be thinking positive thoughts for you. Xxx

  • Thank you ladies for your replies. 

    My scan came back clear so it's a mastectomy and chemo for me soon. 

    Wishing you both speedy recoveries and positive thoughts.

    Xx

  • Hi how are you doing? did they offer nuclear staging bone scan? I'm waiting for my results been over a week, the waiting is horrendous.  Hope your feeling ok. Xx ruthie

  • Hi Ruthie,

    My bones came back clear thank goodness and I start my chemo this Wednesday. Waiting for results is the worst part of this horrific process. Wishing you clear results and positive thoughts xx