Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

  • Am sure everything helps & I’ll definitely be doing more of that now too. Good for you for doing plenty already! I haven’t seen what can be bought on here but will have a look now. And I’ll definitely be showing whatever gratitude I can to the team who are looking after me during this experience.

    It’s been good to talk to you tonight - it’s really helped me, thank you so much. Sorry to have been so self-absorbed - promise not to be so much like that in future posts! 

    Have a good sleep too! Xx

  • Hi warriorwilko 

    Sorry to hear you are on this journey. I had a masectomy and lymph node removal back in May and have just had my seventh chemo cycle out of eight. 

    The ladies on here have helped me more than they will ever know because they have listened to my fears, spoken openly about their feelings and made me feel like I’m not going mad when I think thevdoc is hiding things from me or every pain or ache is sinister and it’s perfectly normal to feel like this. 

    As loz said trying to keep yourself busy helps with trying to lessen the mental state we can get ourselves into. Always here for a chat if you feel you need to vent x 

    take care 

    juliet x 

     

     

  • Hello mejules 

    thank you for replying. It’s good to hear from you too & I'm sorry too you’re on this scarey journey too. I’m glad you’re nearly at the end of your chemo & I hope things are now much more positive for you. It’s been useful to read all the previous posts about chemotherapy as it’s been something (before today) that I’ve been terrified of, but I can see with all the support on here that although it does sound extremely challenging, you are all surviving it & trying to stay as positive as possible, which is incredibly inspiring and heartening. 

    To normalise some of our common fears must be very helpful as I’ve certainly felt as tho I’m going crazy over the last few weeks since I was diagnosed on the 2nd October & to describe myself as one-track minded would be very accurate. 

    Thank you for your offer of chats. I will definitely be back on here. I’ll try my best to offer some support back. Xx

  • Hey Mejules

    no need to apologise. just pleased you are ok and know we are here for you if needed. 
    Now then....one cycle left.... that's amazing, have you got anything planned to celebrate getting through it. We took the kids off to Centre Parcs for a couple of days as they've not had any time away over the summer with my treatment. I also had a teeny tiny prosecco for one. 
    I'm struggling to sleep at the minute and feel like I have a very heavy arm, but I am persevering with the exercises I have been given . Next step for me is pathology results, I want to know that they got all of it. 
     

    Keep going, you are doing amazing. 
     

    X

  • Hi [@WarriorWilko]‍ 

    A warm welcome to the thread. Sorry to hear about your diagnosis. Try not to think about the what ifs, I think once you are on this cancer path you will always wonder whether aches and pains are a spread of the cancer. Somehow I'm certain we will all come to live with this and actually we are probably In a better place than most as we are in the system, it will get picked up and dealt with. Will your treatment plan be impacted by having to have further lymph nodes removed? 

    Your husband sounds ace. Mine is unbelievable actually, he has just let me do what I need to do, and taken the burden of everything else away. My children have also been amazing. But I think we are definitely looking forward to a day when I'm fit and we can do more adventurous family activities. Focus for 2020 is fitness. 
     

    Always here for a chat if needed. Insomnia is poking its little head up for me at the minute.

    take care

     

    wl

  •  

    Hello Mejules,

    I'm sorry to hear about the pain that your treatment is causing - I shall be thinking of you on Friday, as you hang on that bell!

    I fully agree that doing the exercises regularly help to get you back on track quicker.

    I know that treatment can be a very lonely journey, but you know that you are never on your own. We are always here for you.

    I sincerely hope that things improve for you after Friday.

    Kind regards,

    Jolamine xx

  •  

    Hi BigJean,

    It's great that you are doing so well. I hope that you get your drain out if possible, tomorrow.

    I'm glad to see that you are enjoying being back home - there really is no place like it!

    Kind regards,

    Jolamine xx

  •  

    Hi Helen,

    Of course it is ok to join us all, although I'm sorry to hear of the reason you've joined for You will be relieved to have your lumpectomy behind you, but what a pity that they have to go in again to remove your lymph nodes. At least your margins are clear, which is good news.

    This is one of the scariest parts of your cancer journey. There are so many unknowns. It is not at all unusual for your mind to go into overdrive and for you to think the worst.

    Cancer doesn't just affect the individual with cancer, it affects the entire family. You are fortunate to have such good support in Steve. Try to keep all communication chanels open between both of you. This will help you both. Does he attend your appointments at the breast clinic with you? It is always useful if he can, particularly when you are going for the results of any tests.

    It is good news that your cancer is HER-. Do you know what grade or type of breast cancer you have?

    When I was first diagnosed 10 years ago, my mind raced ahead of me too. I have had 2 bouts of breast cancer in the past 10 years and, have had a lumpectomy and a double mastectomy. I certainly never expected to be here still and living a fulfilling life.

    I sincerely hope that all goes well for you on Thursday. Do please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  •  

    Hi Woolylamb

    I hope that you managed to get rid of your drain and wires yesterday and that you are feeling a little more comfortable without them.
    Kind regards,

    Jolamine xx

  • Hi Woollylamb

    good to hear from you - thank you for replying. Sorry tho it’s in the middle of the night - I hope you can get back to sleep soon too. 

    Isn't it great to have such wonderful support around us? This forum is incredible and we are very lucky too to have such amazing families. I hope too that yours have support from around you as I have been very lucky to have for Steve. Our friends have really rallied around. 

    Yes, the what ifs can be crippling can’t they? I’m reassured that I can see from previous threads that this can be the worst part of the journey. I can see that one of the things that is promoted is to take it one step at a time. The poor doctor I saw yesterday did well not to be pushed into a corner by me going down the what if route to the most catastrophic outcome. This must be one of the most challenging parts of their job!

    Here’s to our fit & healthy 2020 tho, and for your adventurous family activities! 

    Have a good sleep soon! 

    Helen xx