Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

Parents
  • Hi [@WarriorWilko]‍ welcome to the thread but so sorry you find yourself here . This group of ladies have been a fantastic support to me and will be to you also . 

    I’m 45 was diagnosed in March IDC her2 + , Ed &pr+ , and it’s in my lymph nodes . Had chemo and have had mastectomy and auxiliary clearance last Thursday. It’s a tough long road but you will get there . We have all been there when you feel every little ache and pain and you imagine the worst . I’m sending you positive vibes and support. 

    Hope all goes well for you with your results . 

    Take care 

    j xx

  • Hello BigJean

    It’s good to hear from you - thank you for replying. It’s so good to know we’re not on our own on this journey, although I wish none of us were on it in the first place. I really hope you get your drain out today or tomorrow and that you can catch up on some sleep. You sound very positive though and I know that will really help, both physically and mentally in our recoveries. I’m trying to get there and today has been fractionally easier than yesterday. 

    Sending you too my best wishes

    Helen xx

  • Hi

    Its horrid how this whole thing just turns your life upside down with all of the appointments you have to go to, I have to go to two different hospitals depending upon whether I'm seeing the breast Surgeon or the plastic surgeon, sometimes both on the same day! I would like to have a day when I don't have a conversation about it but I think that's a long way off yet.

    Ive just been told Friday for the op, I'm awaiting confirmation from the surgeons secretary. It will be good to get it over and done with and hopefully not a prolonged hospital stay this time.

     

    I can't think of any other tips for your mastectomy, I had some nighties instead of pj's as I couldn't bend down to put the bottoms on, but I had an abdominal wound as well for the reconstruction. And I got my husband to set our bedroom up so I could reach everything I needed, clean bedding, we moved the tv in there as well, my mum bought me a lap tray and a travel mug which was handy so I didn't spill things and it took me ages to drink a cuppa, so it never went cold.  I think you've just got to let yourself heal, are you having your lymph nodes removed as well? 
     

    wl

  • Hi WL

    Have you heard from Secretary and is Friday confirmed yet?  Trust me, I have everything crossed for you that it is a complete success and your recovery from the skin graft goes well.  I do hope you are not in for too long and get to recover at home in relaxed comfortable surroundings.

    Like you I have two hospitals depending on who I am seeing, one is 3/4 an hour away and the other is an hour and a quarter away, luckily most appointments are at the closest one so pleased about that.  Luckily we've only had one instance when we had to go to both on the same day and that added to the stress but I got a McDonald's I was craving as no time to stop for a proper lunch so that was a bonus.  A McDonald's of all things - life is so funny!!!!

    We are going out on Monday to do some shopping so I'll get a couple of winter nightshirts (thank you).  I like the idea of a travel mug so will look at one of those too as due to the complications I suffered, I struggled after the original lumpectomy and lymph node removal I also had problems with a cup of tea and it keeping warm!!!!!  Will change the bedding on Tuesday and remember your words to let myself heal......  Let's hope it is a better recovery than my last operation.......

    As mentioned above, I had 4 lymph nodes removed at the same time as my lumpectomy and the cancer had only spread into two so no more being removed thankfully.  The consultant has said I will receive my results on either 20th or 23rd December and from there my MT will have decided if I need any further treatment or if everything has been cleared and that's it.  I just want them to be 100% sure that everything is clear so I don't mind what treatment I need, they are the professionals and I trust them totally!!!!

    Good luck for Friday, keep us updated on how it goes...... Rosie

     

  •  

    Hi Woolylamb,

    I'm glad to hear that Friday is the day for your op and hope that you don't have any further complications.

    I agree about the mastectomy pillow.I found these absolutely invaluable, especially as I had experienced the double mastectomy.

    Hoping and praying that all goes well for you.

    Kind regards,

    Jolamine xx

  •  

    Hi Rosie,

    I would fully agree with Woolylamb about the mastectomy pillow. I had a double mastectomy 9 years ago and found them invaluable.

    It must feel great to be able to drive now and, I hope that your wound heals up soon.

    Kind regards,

    Jolamine xx

  • Hi Jolamine

    The pillow has been sourced, great to know two of you recommend!!!

    Sleep is illusive tonight but that's okay as I actually enjoy a little "quiet time"!

    Have a lovely Thursday. Rosie

  • Hi WL , 

    wishing you all the best for today . Hope everything goes well and you get home quickly and recover . 

    Hope everyone is doing and keeping well .

    wishing you all the best and hope everyone has a lovely weekend.

    sending lots of love 

    j xx

  • Hi

    Thank you. All went well and I'm back at home to rest and recover I feel knackered if I'm honest. Pray to the wound goddess that the graft takes. 
     

    Hope you are good as well. X

  • Hi, 

    great to hear you are home and that all went well . You will be able to relax more and feel much more comfortable in your own surroundings.

    You have every right to feel knackered you have been through an awful lot these last few weeks .

    Take it easy and get plenty of rest .

    have a lovely weekend.

    jxx

  • Hi Woollylamb

    Chuffed you are home and praying that the graft takes, you deserve a break after the past few months.

    Wishing you a lovely weekend

    Rosie

  • Hello again everyone

    I just wanted to let you know that although I haven’t been on here for a while you are all in my thoughts and prayers every day. I’m just finding the emotional side of this very difficult, as I know you all are too.

    Rosie80, I’m sorry you find yourself on here, but I’m sure you’re finding the support of these lovely ladies invaluable. 

    With ongoing love & very best wishes to you all

    Helen

Reply
  • Hello again everyone

    I just wanted to let you know that although I haven’t been on here for a while you are all in my thoughts and prayers every day. I’m just finding the emotional side of this very difficult, as I know you all are too.

    Rosie80, I’m sorry you find yourself on here, but I’m sure you’re finding the support of these lovely ladies invaluable. 

    With ongoing love & very best wishes to you all

    Helen

Children
  • Hi Helen

    Thank you very much for your kind words.  It is truly awful to have to be on this site but as you righty say, the support of the ladies here is proving totally invaluable and a great source of comfort.

    It's good to be able to through the posts in those dark hours of night when sleep is illusive and find answers to questions I didn't know I had.

    I will be honest, this is a hard time of life but I'm doing my utmost to keep positive.

    Sending you some really positive vibes and a virtual hug to try and help you at the moment.

    Rosie

  • HI Helen,

    I'm so sorry to hear that you are struggling emotionally  at the moment. If it is of any consolation, we all do at your stage, but rest assured that we are all here for you, whether you want information, a chat or just simply to rant.

    Kind regards,

    Jolamine xx

  • Helen

     

    Just checking in to see how you are? It can be tough sometimes with everything that's going on, it feels like you go from one appointment to the next with no time to think about the enormity of what's going on.

    anyway - always here if you need a chat.

    WL