Hi BigJean,

A very warm welcome to our forum, although I'm sorry for the reason you've joined. I hope that your results on Tuesday can help to put your mind at rest. Even if the news is not so good, it helps to know what the next moves are and puts a more positive slant on things.

I suspect that the pain in your back is consequential to your diagnosis. We always seem to think the worst and develop all sorts of additional symptoms. In most cases this seems to be due to stress.

I have lost my mum to breast cancer and, have had 2 bouts myself within the past 9 years. Waiting for results is always one of the most stressful times of a cancer journey. Try to keep yourself distracted by other pursuits and do your best to stay away from Google. The fact that you are healthy and have never smoked, should stand you in good stead with any treatment needed.

Do please keep in touch and let us know how you get on on Tuesday. We are always here for you.

Kind regards,

Jolamine xx

Hi Jolamine ,

thank you for your kind words . I’m so sorry you lost your mum and you going through it twice . I am not going to let it get me down just back from a big walk with my family and I feel great . That’s the weird thing I don’t feel sick at all . 

I’ll let you know how I get on on Tuesday but I am ready to fight 

talk soon xx

Hi Lorraine,

I had a phone call from the hospital today to see what implants I have in my body, prior to brain scan and, the girl who phoned told me that it is normally about 6 weeks before the appointment will come through. As usual, they are running behind with appointments.

Many ladies become prone to osteoporosis as they become older. Cancer treatment can also affect the bones, so I expect that this is the injection that you will get. Your GP should be able to tell you all about it, as this reduces the chance of broken bones.. It is purely preventative, so nothing to worry about.

I'm delighted to hear that the OT is coming out to see your mum tomorrow and is bringing a trolley for her. Are you or your sister going to be there when she comes? It might be worth getting her to do an assessment of your mum to see if she can give her anything else that could help.

Did you notice my post asking you to apply for a friend request again? I had written a reply accepting you. This just disappeared into the ether and off my pending requests. My computer was playing up at the time, so maybe this was why.

Kind regards,

Jolamine xx

Hi Jolamine, 

surgery finally over . I was first done . Glad it’s all over . Surgeon said it went well . Feeling ok took a turn today think I did too much and got sick so they put me back in bed . 

Bc nurse came up to see me today she said the same that surgery went well and from today I was cancer free . She also said that the type of cancer I have I have a high risk of recurrence. I didn’t say anything to her but I am very emotional now thinking about what she said. 

Sorry to burden you all with this . 

[@Woollylamb]‍ hope you are doing ok 

take care 

j x

Hey

Good to hear from you, I'm pleased it went well and you are on the road to recovery. I'm doing ok, will prob be in here till Monday, still have two drains in and a wired Doppler which they are using to ensure the blood supply is healthy. 
Take it easy, I know it's hard to rest in hospital but take your time to get yourself up and about.

Bit insensitive of the nurse to say that when you've just had an op and your emotions are high anyway. I think once you have cancer you will prob always worry if it's come back, but the positives are that you are now in the system, you'll probably have 6 monthly check ins to start with so anything will get picked up. Allow yourself to take in that you are cancer free..... what an achievement. You should be mega proud of yourself. 
 

sending you a big hug. 
wl

Hey , 

thank you for getting back to me . Good to hear you doing ok too . The drains are a bit of a pain and it’s taking a while to get used to them . 

I know I don’t think it hit me till she had gone and I realized what she said . You are right I’m not going to dwell on it . 

Thanks so much for your kind words you are doing amazing also . It’s another hurdle down for both of us . 

Mind yourself and take care

j xx

Hi BigJean,

What a relief to have your surgery behind you at long last. I am so sorry to hear that the breast care nurse came up and burst your bubble so quickly. As WL said, this was rather insensitive. Still, try not to dwell on this.

I was initially told that my type of cancer was one of the less aggressive forms, yet I had another diagnosis within the year. Since I was dianosed with my second bout, I have always lived in fear of another recurrence, but you learn to live with it.

Sorry to hear about the turn you took today - as you said, possibly just trying to do too much too soon. I saw a nurologist on Saturday re turns that I've been taking in the past couple of years. He has referred me for a brain scan. My mum lived with primary breast cancer for 12 years before it metastasised in her brain, bones, liver and lungs. At 10½ years since diagnosis, you can imagine my train of thought. Hopefully, it's just a side-effect of medication.

I hope that you are not in hospital for too long and that all heals well.

Kind regards,

Jolamine xx

hi yes I thought I did it but no so doing it now got a letter in today to go for a muga heart scan not going it was for the 4 th of November they put radiation 2 injections into your hand or arm my heart is okay my heart dropped to 44 as blood pressure was seriously low when I found out I needed second operation was worried more because of this so requested my doctor to phone me went over my medication said stop water pill for a week and off heart pill for 2 days the surgeon said anestic lowers blood pressure too anyway second operation was a lot better still had low blood pressure but not too bad and heart wen5 to 59 instead of 44 which is huge difference if I had chest pain etc would go I have not had angina for 2 years also looked it up on you tube radiation not good if your away to get chemotherapy and radiotherapy it's not a lot of radiation but it stays in body few weeks ty for agreeing to be my friend it makes a big difference when your anxious Lorraine xx

Hi WoollyLamb,

I hope that your temperature is going down now and, that you are getting more used to the drains. They can be a nuisance, but they won’t be in for long. You must be doing well if they are talking about letting you out on Monday.
Kind Regards,

Jolamine xx

hi yes my friend think I know how lol yes my sister going to be there I appreciate you telling me about trolley she got it this morning an£ loves it said much easier to move and stop I really hope nothing too serious but with the effects you were better to see what's causin* it as you know if you turned unwell which I hope you dont they would run tests sooner I know what like it's all the waiting tests etc lorraine xx

Hi @bigjean

How are you getting on? I was discharged yesterday with one drain, and I have a Doppler wire still in situ. Got to go back tomorrow to have both removed so hopefully will be a little freer to move around. Struggling to get comfy to sleep but I prefer to be at home than in the hospital. Hope you are doing ok.

x

Hi [@Woollylamb]‍ I was discharged today ! I still have one drain in too . So glad to be home can’t wait to get into my own bed . So glad you got out too you seemed to be in there a lot longer than me! You rest up and hope all goes well getting the other drain and wire out . I’m back Thursday/Friday to have drain out . 

Another hurdle down . We both did it

Stay in touch . 

Take care 

j xxxx

Hi [@Woollylamb]‍ I was discharged today ! I still have one drain in too . So glad to be home can’t wait to get into my own bed . So glad you got out too you seemed to be in there a lot longer than me! You rest up and hope all goes well getting the other drain and wire out . I’m back Thursday/Friday to have drain out . 

Another hurdle down . We both did it

Stay in touch . 

Take care 

j xxxx

Hi

I think I was in longer because of the reconstruction, they needed to make sure that the flap didn't die, they were checking me every 15 minutes for the first 24 hours, then every 30 minutes. and my temp was up and down like a yo yo. Just hope they take this stuff out tomorrow As it's painful now.  Managing the rest of the pain with paracetamol. 
 

Glad to hear you are out, makes such a difference to be in your own home. 

We definitely did do it, were nearer the end than the beginning now. 
 

x

Hi BigJean,

I'm glad to hear that you got home today and hope that you are doing well and are not too uncomfortable.

Thinking of you,

Jolamine xx

Hi woollylamb, bigjean and jolamine 

sorry not been on again but have struggled with this paxotaxin or whatever it’s calked. The pain even with strong painkillers is taking me out of action for a few days but my last cycle is next Friday - whoop whoop!! I’m going to hang off that bell lol x 

glad to hear your ops have gone well ladies. My drain was in for about seven days and was a relief when taken out. If you had lymph nodes removed please do the exercises given but don’t push it, take it nice and easy. At first it’s hard and sore and can’t really move the car but over time it just becomes easier. I would say I nearly have full movement back but now it looks like lymphodema so occasionally I am restricted in movement but they have given me an exercise to do for next few weeks to see if it helps.

thank you ladies for being on here. I know I haven’t supported you as much as I would have liked but for me just reading your comments about your journey and your experiences have given me comfort that I wasn’t on my own and y thoughts/fears are natural x 

Hi , 

hopefully you get all the stuff out today and you’ll be a lot more comfortable. I’m hoping to get the drain out Thursday or Friday! I’ve taken Tramadol for pain but have been given paracetamol too . It’s great being home , own bed and just being in your own surroundings is bliss . 

We are doing great . 

Take care 

j xx

hi jean so you got home and nurse coming into your house to get drain out yes ? That's good no infection I'm happy for you I have to wait until 18th November it's to discuss my treatment 9am in the morning will find out if they put a bus out for you I know when I went see dermatologist they gave me a bus could not walk up steep hill as I was at clinic they dialled a bus for I will phone tomorrow I'm pleased for you yes when I was in I was so cold 1 thin blanket asked for 2 more was still cold put on my housecoat and slept with it on lol xx

Hey Mejules

no need to apologise. just pleased you are ok and know we are here for you if needed. 
Now then....one cycle left.... that's amazing, have you got anything planned to celebrate getting through it. We took the kids off to Centre Parcs for a couple of days as they've not had any time away over the summer with my treatment. I also had a teeny tiny prosecco for one. 
I'm struggling to sleep at the minute and feel like I have a very heavy arm, but I am persevering with the exercises I have been given . Next step for me is pathology results, I want to know that they got all of it. 
 

Keep going, you are doing amazing. 
 

X

Hello Mejules,

I'm sorry to hear about the pain that your treatment is causing - I shall be thinking of you on Friday, as you hang on that bell!

I fully agree that doing the exercises regularly help to get you back on track quicker.

I know that treatment can be a very lonely journey, but you know that you are never on your own. We are always here for you.

I sincerely hope that things improve for you after Friday.

Kind regards,

Jolamine xx

Hi BigJean,

It's great that you are doing so well. I hope that you get your drain out if possible, tomorrow.

I'm glad to see that you are enjoying being back home - there really is no place like it!

Kind regards,

Jolamine xx

Hi Jolamine, 

thank you for your kind words. It’s great being home . Still not sleeping great but can cope with that . Hopefully the drain will be out on Friday. 

Hope you are keeping well and your son is recovering well also 

Kindest Regards 

j xx